Influencer Chan Plante on Coping with Misdiagnosis and Finding a Community
07/18/24 • 59 min
In this episode of Brain & Life podcast, influencer Chan Plante joins Dr. Katy Peters. Chan shares her experience dealing with misdiagnosis, building an online community, and eventually losing her eye. Dr. Peters is then joined by Dr. David Newman-Toker, professor of neurology, ophthalmology, and otolaryngology at Johns Hopkins Hospital. He explains how misdiagnosis can happen, visual loss in young people, and how patients can advocate for themselves to ensure they get the treatment they need.
Additional Resources
How to Lower Your Risk of Neurology-Related Vision Loss
When to Seek a Second Opinion on a Neurologic Diagnosis
Five Ways to Cope with Vision Loss
Other Brain & Life Podcast episodes on this Topic
How Paula Carozzo is Redefining Disability and Advocating for Her Community
Making the Years Count with Brooke Eby, Influencer Living with ALS
Strokes in Younger Patients with Journalist Kristen Aguirre
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at [email protected]
Social Media:
Guests: Chan Plante @chanplante; David Newman-Toker @newmantoker
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In this episode of Brain & Life podcast, influencer Chan Plante joins Dr. Katy Peters. Chan shares her experience dealing with misdiagnosis, building an online community, and eventually losing her eye. Dr. Peters is then joined by Dr. David Newman-Toker, professor of neurology, ophthalmology, and otolaryngology at Johns Hopkins Hospital. He explains how misdiagnosis can happen, visual loss in young people, and how patients can advocate for themselves to ensure they get the treatment they need.
Additional Resources
How to Lower Your Risk of Neurology-Related Vision Loss
When to Seek a Second Opinion on a Neurologic Diagnosis
Five Ways to Cope with Vision Loss
Other Brain & Life Podcast episodes on this Topic
How Paula Carozzo is Redefining Disability and Advocating for Her Community
Making the Years Count with Brooke Eby, Influencer Living with ALS
Strokes in Younger Patients with Journalist Kristen Aguirre
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at [email protected]
Social Media:
Guests: Chan Plante @chanplante; David Newman-Toker @newmantoker
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
Previous Episode
Still Standing with Staff Sergeant John Kriesel
In this episode of Brain & Life podcast, Dr. Katy Peters is joined by Staff Sergeant John Kriesel as he shares about his experience losing his legs in combat. He discusses his recovery process, phantom limb pain, and what changes he hopes to see in treatment options for others. Dr. Peters is then joined by Tamar Makin, professor of cognitive neuroscience at MRC cognition and brain unit at Cambridge University. She shares her research, including an article she wrote entitled “Phantom limb pain: thinking outside the (mirror) box” and how we can all ensure that phantom limb sensation treatment is truly based on facts.
Additional Resources
Still Standing with John Kriesel
Phantom limb pain: thinking outside the (mirror) box
Can Psychedelics Treat Neurologic Conditions?
Other Brain & Life Podcast Episodes on This Topic
Special Bonus: Physician BJ Miller’s Recovery from Phantom Limb Pain
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at [email protected]
Social Media:
Guests: John Kriesel @JohnKriesel
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
Next Episode
Olympic Swimmer Rowdy Gaines on His Career and Guillain-Barré Syndrome
In this episode of Brain & Life podcast, Olympic swimmer and announcer Rowdy Gaines joins host Dr. Daniel Correa. He shares how he found his passion for swimming and how he dealt with Guillain-Barré syndrome in the height of his career. Dr. Correa is then joined by Dr. Mark Milstein, director of the Adult Neurology Residency Training Program at Montefiore and associate professor of Neurology and Medicine at Albert Einstein College of Medicine. Dr. Milstein explains exactly what Guillain-Barré is, who is at risk, and treatment options.
Additional Resources
What is Guillain-Barré syndrome?
Guillain-Barré Syndrome Didn’t Stop this Marathoner
GBS/CIDP Foundation Support Groups
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at [email protected]
Social Media:
Guests: Rowdy Gaines @rowdygaines; Dr. Mark Milstein @monteneurology
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
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