Bowel Moments

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This week we tried something new! We let our friend Stacey Collins guest host the show! Stacey is a Registered Dietitian who specializes in IBD and our guest this week is Neha Shah who is also a Registered Dietitian who specializes in IBD. In addition to being a RD, Neha is also also a certified nutrition support clinician (CNSC), credentialed by the National Board of Nutrition Support Certification, a certified health education specialist (CHES), credentialed by the National Commission of Health Education Credentialing, and holds a Master’s in Public Health. She is in private practice but also is integrated into the IBD Center at UCSF. Beyond caring for her patients, she continues to provide lectures to healthcare providers, supervise nutrition interns, give community talks, author articles, and plan research studies with the medical teams. Neha is a powerhouse and a light.

They had such an interesting peer-to-peer conversation on diets and IBD, the cultural aspects of diet and how to navigate that with IBD, learning "cultural humility" and how to work with people from other cultures, and so much more. Robin and I really enjoyed eavesdropping on their conversation and I know you'll be just as fascinated.
Links:

• South Asian IBD Alliance- Neha is on the board and super active with SAIA!
• Nutrition and IBD info- UCSF health
• Diet and Nutrition Info- Crohn's & Colitis Foundation
• Diet and Nutrition Info- Crohn's Colitis Canada

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In this episode you'll meet Dr. Sunanda V. Kane! Dr. Kane is a professor of medicine at the Mayo Clinic in Rochester, Minnesota; physician chair of the Mayo Clinic Quality Academy’s Fellow Subcommittee; and assistant chair of patient experience in the Gastroenterology and Hepatology Division of the Mayo Clinic. She has a special and passionate interest in women and IBD and so we spend a lot of time talking about fertility, hormones, pregnancy, and sexuality. We also talk about her upcoming book for patients on living well with IBD, being one of few female GIs, the PIANO study on pregnant women on IBD biologics, and a brief foray into why cilantro and ginger taste weird to some people.
Links:

• Dr. Kane's Upcoming Book- Preorder now!
• PIANO Study- Safety of IBD biologics during pregnancy
• Information and resources on pregnancy and IBD- MothertoBaby.org
• Pregnancy and IBD Factsheet- Crohn's & Colitis Foundation
• Sex, Intimacy, and IBD Factsheet- Crohn's & Colitis Foundation
• Video on Sexuality and IBD- Canadian Society on Intestinal Research
• Fistula Removal- Crohn's & Colitis Foundation
• (Lots more links for fistula information on Josie's episode!)

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This week we share a tequila cocktail with Josie McGarva! We talk about her Crohn's disease and her struggle with fistulas and abscesses. We also spend quite a bit of time talking about mental health and IBD and Josie's graduate work in health psychology. She's making great strides researching Post Traumatic Stress and IBD and health disparities and IBD. Very cool stuff and we're really excited. We also talked about how opening up about her disease and how getting an ostomy empowered her, gave her more freedom, and helped her connect with others. You won't want to miss this episode! Follow Josie on Instagram! @it_takesguts
Links:
A journal article by Josie's Graduate Advisory on Post Traumatic Stress and IBD
Intestinal Complications information from the Crohn's & Colitis Foundation
Information on Fistula Removal Surgery- Crohn's & Colitis Foundation
Information on Abscess Draining- Crohn's & Colitis Foundation
Information on Fistulas and Abscesses- Crohn's & Colitis Foundation of Canada
An educational video on Fistulas- Cleveland Clinic
A video on how to change your ostomy bag- Phoenix Children's Hospital
So many great videos on living with an ostomy!- United Ostomy Association
Mental health & IBD- Cleveland Clinic

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This week we were so excited to have a crossover episode with the host of the About IBD Podcast- Amber Tresca! We turned the tables on Amber and interviewed her about her IBD story! Amber has been living with UC for several years and underwent a 2-step J-Pouch surgery. We talked about her story thus far and how that plus her background in medical writing led her to a career of educating and advocating for the IBD community and how that prompted her to create the About IBD podcast! We discussed her medical writing career, the many projects that she's been involved like IBD Social Circle, Verywell Health and more, her work attending and writing about GI conferences, and the importance and care with which she writes about and educates the IBD community. We also discussed her advocacy work for the IBD community including being invited to share the vital patient voice during the American Gastroenterological Associations annual "Fly In" in Washington, D.C. We also talked about her podcast called About IBD! We explored why she started it, how she selects and prepares her guests, the process she uses to create the episodes, and how she prioritizes her topics. You'll also get a chance to hear us geek out about hosting podcasts and even so insider info about the process.
Amber is truly a badass and we had such a great time getting to know her better!! We can't wait for you to learn more about her in this episode and for you to hear our About IBD episode with her in the near future!
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)
Links:

• About IBD Instagram site
• About IBD X account
• About IBD YouTube account
• Info on About IBD podcast including where to find it!
• A video about J-Pouch surgery- Crohn's & Colitis Foundation

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This week we talked to Dr. Michael Dolinger! Dr. Dolinger is an Assistance Professor of Pediatric Gastroenterology at the Icahn School of Medicine and Mount Sinai Kravis Children's Hospital. Dr. Dolinger leads the Henry and Elaine Kaufman intestinal ultrasound program at the Susan and Leonard Feinstein Inflammatory Bowel Disease Center, the first of its kind in the United States. We talked to him all about intestinal ultrasound and how revolutionary it is as a noninvasive tool to monitor disease activity and treatment response. It's seriously super cool and we had such an interesting conversation with Dr. Dolinger! We also talked to him about his very personal reason for going into pediatrics and focusing on Inflammatory Bowel Disease. Dr. Doling is a joy and we loved speaking to him more than eating a pint of ice cream.
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)
Links:

• Intestinal Ultrasound Ushers in New Era of IBD Treatment article- Mount Sinai
• Exploring uses of ultrasound in monitoring and treating IBD- Crohn's & Colitis Foundation USA
• Real Time Ultrasound of the Intestines video featuring Dr. Dolinger- Mount Sinai Health System YouTube channel

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