Bowel Moments

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This week we spoke to Dr. Alan Moss! Dr. Moss is the Chief Scientific Officer at the Crohn's & Colitis Foundation in the US. Previously he was the Director of the Crohn’s & Colitis Program at Boston Medical Center (BMC) and Professor of Medicine at Boston University (BU). He is a clinician-scientist who is a passionate patient advocate. We talked to him about moving from Ireland to the US to pursue training in IBD. We talked to him about why he decided to switch from direct patient care to leading the scientific efforts at the Foundation. We talked to him about what plans he has for the future of research at the Foundation including shepherding in new technology such at AI. We talked to him about how they are ensuring patient data protections and equity in how technology may shape research. We discussed how the research agenda has changed from focusing solely on remission to prevention, remission and on to repair and healing past damage. Finally we discussed the new 5 year strategic plan that the Foundation has undertaken in guiding their research agenda and the process by which healthcare providers, researchers and patients helped to build this new plan.
We had such an interesting conversation with Dr. Moss and we're excited to see what he will accomplish in this new role.
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)
Links:

• Overview of Challenges in IBD
• Information about IBD Plexus
• Information about IBD Qorus
• Information in IBD Ventures

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This week we reflect on the journey since launching Bowel Moments in August 2021, sharing our personal updates and the lessons we've learned along the way. We reminisce about the podcast's beginnings as a concept born out of a love of podcasts and how it evolved into a heartfelt platform for the IBD community, featuring memorable interactions with guests. We open up about our own journeys, revealing more than just the polished elevator pitches we've rehearsed over the years.
As we look to the future, we discuss plans for expanding our reach, engaging diverse voices around the world, and demystifying healthcare navigation by involving nurses, physician assistants, and insurance insiders. Highlighting our dream interviews, we express our desire to feature influencers like Sunny Anderson, Mike McCready, Kim Holderness and Rachel Elizabeth Slocum, hoping they can bring fresh perspectives and humor to our discussions.
We want to keep growing our incredible community of listeners who are passionate about understanding and supporting the IBD journey. So, hit subscribe, share with those who might need a dose of inspiration or laughter, and let us know what you think by leaving a review. Your support means the world to us, and we're excited to continue sharing these meaningful conversations with you. Thank you for being part of our journey, and here's to a future of engaging stories and shared discoveries!
Links:

• Our episode with Dr. David Rubin
• Our episode with Stacey C- The Deuce
• Our episode with Dr. Ashish Patel
• Our episode with Dr. Anish Patel
• Our Research Roundup Episode with both Drs. Patel
• Our episode with Dr. David Schwartzberg
• Our episode with Stacey Collins- One of our guest hosts!
• Our episode with Hannah Cramer- One of our guest hosts!
• Our episode with Derek Dodson- One of our guest hosts!
• Our episode with Lauren Erbach Barnfield- One of our guest hosts!

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This week we tried something new! We let our friend Stacey Collins guest host the show! Stacey is a Registered Dietitian who specializes in IBD and our guest this week is Neha Shah who is also a Registered Dietitian who specializes in IBD. In addition to being a RD, Neha is also also a certified nutrition support clinician (CNSC), credentialed by the National Board of Nutrition Support Certification, a certified health education specialist (CHES), credentialed by the National Commission of Health Education Credentialing, and holds a Master’s in Public Health. She is in private practice but also is integrated into the IBD Center at UCSF. Beyond caring for her patients, she continues to provide lectures to healthcare providers, supervise nutrition interns, give community talks, author articles, and plan research studies with the medical teams. Neha is a powerhouse and a light.

They had such an interesting peer-to-peer conversation on diets and IBD, the cultural aspects of diet and how to navigate that with IBD, learning "cultural humility" and how to work with people from other cultures, and so much more. Robin and I really enjoyed eavesdropping on their conversation and I know you'll be just as fascinated.
Links:

• South Asian IBD Alliance- Neha is on the board and super active with SAIA!
• Nutrition and IBD info- UCSF health
• Diet and Nutrition Info- Crohn's & Colitis Foundation
• Diet and Nutrition Info- Crohn's Colitis Canada

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In this episode you'll meet Dr. Sunanda V. Kane! Dr. Kane is a professor of medicine at the Mayo Clinic in Rochester, Minnesota; physician chair of the Mayo Clinic Quality Academy’s Fellow Subcommittee; and assistant chair of patient experience in the Gastroenterology and Hepatology Division of the Mayo Clinic. She has a special and passionate interest in women and IBD and so we spend a lot of time talking about fertility, hormones, pregnancy, and sexuality. We also talk about her upcoming book for patients on living well with IBD, being one of few female GIs, the PIANO study on pregnant women on IBD biologics, and a brief foray into why cilantro and ginger taste weird to some people.
Links:

• Dr. Kane's Upcoming Book- Preorder now!
• PIANO Study- Safety of IBD biologics during pregnancy
• Information and resources on pregnancy and IBD- MothertoBaby.org
• Pregnancy and IBD Factsheet- Crohn's & Colitis Foundation
• Sex, Intimacy, and IBD Factsheet- Crohn's & Colitis Foundation
• Video on Sexuality and IBD- Canadian Society on Intestinal Research
• Fistula Removal- Crohn's & Colitis Foundation
• (Lots more links for fistula information on Josie's episode!)

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This week we share a tequila cocktail with Josie McGarva! We talk about her Crohn's disease and her struggle with fistulas and abscesses. We also spend quite a bit of time talking about mental health and IBD and Josie's graduate work in health psychology. She's making great strides researching Post Traumatic Stress and IBD and health disparities and IBD. Very cool stuff and we're really excited. We also talked about how opening up about her disease and how getting an ostomy empowered her, gave her more freedom, and helped her connect with others. You won't want to miss this episode! Follow Josie on Instagram! @it_takesguts
Links:
A journal article by Josie's Graduate Advisory on Post Traumatic Stress and IBD
Intestinal Complications information from the Crohn's & Colitis Foundation
Information on Fistula Removal Surgery- Crohn's & Colitis Foundation
Information on Abscess Draining- Crohn's & Colitis Foundation
Information on Fistulas and Abscesses- Crohn's & Colitis Foundation of Canada
An educational video on Fistulas- Cleveland Clinic
A video on how to change your ostomy bag- Phoenix Children's Hospital
So many great videos on living with an ostomy!- United Ostomy Association
Mental health & IBD- Cleveland Clinic

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