Bloody Minded - Episode 31 - Advanced Myeloma Nursing with A/Prof Tracy King

Episode 31 - Advanced Myeloma Nursing with A/Prof Tracy King

01/07/25 • 54 min

Thankfully, it's time for an actual expert to join us again on Bloody Minded! We are thrilled to be sitting down and chatting with A/Prof. Tracy King, Myeloma CNC from RPA Hospital in Sydney, Co-Founder and past president of the HSANZ Nursing Group. From convenient treatment schedulers to the side effects we should be thinking more about to many ideas to improve clinical practice, this is a veritable hour of power worth diving into.
TIMESTAMPS
2:23 - Intro to Tracy King
3:30 - A Nightingale Sang in Hammersmith Square
5:22 - How did you get into myeloma nursing?
9:35 - If not nursing, what?
10:50 - What is a CNC?
14:12 - Nursing expertise in myeloma - best supportive care
16:57 - The most asked questions
19:54 - Strategies to manage complex regimens
23:13 - MyeTxScheduler - A Godsend
26:37 - What do we miss, what should we be asking more?
28:21 - The crux of communication issues
29:33 - "What matters to you today"
29:49 - Patient advocacy groups
32:04 - Steroid side effects - there's just so much dex...
35:37 - M protein variations - how to see the forest for the trees
38:22 - Time toxicity
45:44 - Quality of life assessment tools
49:35 - How to get started in advocacy/education/further work?
51:57 - Organisations - find your tribe
Also we promised to link MyeTx here so have at it
https://rego.interact.technology/myetx/#/main

Check out show notes, additional references and (sometimes) extra content at www.bloodyminded.com.au

Previous Episode

Episode 30 - Schnitzler’s List | Other Paraprotein Associated Diagnoses

All that glitters isn’t gold, and all that paraproteins isn’t myeloma. But if we’re not going to blame myeloma, then what else might be responsible? Hold on to your M-Spikes as we the Bloody Minded Team dive into the weird and wonderful world of paraproteins causing havoc in patients without myeloma. This episode isn’t for the faint of blood so get ready for an advanced look at paraproteins and take a bit of the U out of MGUS.
2:12 - The Problem with "Unknown" Significance
8:45 - Waldenström's macroglobulinemia/Lymphoplasmacytic Lymphoma
11:17 - Marginal zone lymphoma
12:42 - Cold Agglutinin Disease
15:09 - Heavy chain disease
16:27 - POEMS Syndrome
23:10 - Other Paraproteinemic Neuropathies
25:55 - TEMPI
27:03 - CANOMAD
29:16 - Schnitzler Syndrome
31:34 - Scleromyxedema
34:06 - The “paraprotein AND...” approach

Check out show notes, additional references and (sometimes) extra content at www.bloodyminded.com.au

Next Episode

Episode 32 - Phagocytose. Pray. Love. | Haemophagocytic Lymphohistiocytosis (HLH)

Ferritin keeps climbing and you’re getting jumpy? Did you consult Haem and then they were bedside 5 minutes later? Ever had to donate your own blood to test the patient for something? Join Nick, Cale and Bashar as we unpack a very special bonus episode on another deadly TLA, HLH.TIMESTAMPS3:24 - History of HLH
5:26 - What is a histiocyte?
7:44 - How do you turn *off* an immune response?
8:52 - HLH - A Definition
10:49 - What are NK cells?
13:03 - Primary HLH - "HLH Disease"
13:34 - Secondary HLH - "HLH Syndrome"
14:46 - Causes of familial HLH
16:34 - Infective causes
18:05 - Malignant causes
20:24 - Clinical presentation and diagnostic criteria
32:47 - H-Score
34:36 - Treatment - Replacing Your Dodgy Off Switch
38:04 - Prognosis
38:55 - Take Home Messages

Check out show notes, additional references and (sometimes) extra content at www.bloodyminded.com.au