S2 EP01 LIFE WITH A FEEDING TUBE: Award-Winning Campaigner Celia Chartres-Aris on Discrimination Because of Her Rare Disability

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Imagine what it's like not to be able to eat, not because of a lack of food, but because of a rare disorder that prevents your body from processing it. This is the reality for our guest, Celia Chartres-Aris, living with Loeys-Dietz Syndrome. Celia's condition requires her to be reliant on a feeding tube for nutrition. Her life is a testament to resilience and strength, and she joins us to shed light on her experience, from dealing with verbal abuse to answering inappropriate questions, all while living with a feeding tube.
Our conversation takes a critical turn as we scrutinize how legislation often fails to protect those with disabilities. With Celia's life as a backdrop, we examine poignant examples like the introduction of the Down Syndrome Bill, the care for children, and current access and architecture requirements for public buildings. We focus on the urgent need for inclusive policy making that involves the disabled in the process, underscoring the importance of designing everything right from the outset, with accessibility in mind.
The final part of our discussion turns to the crucial aspect of accessibility and inclusion. Listen as Celia recounts instances where she was denied access due to her disability, and how she uses these moments to educate others. We explore the Access Maturity Model, a tool organizations can use to assess their inclusion and accessibility policies. We conclude our conversation by emphasizing the importance of diversity inclusion, stressing the need for disabled people to be included in design and entrepreneurship roles, and a deep understanding of these critical issues.
#DisabilityRights #Inclusivity #Accessibility
#InclusiveDesign #DisabilityAdvocate #Access2Funding
#Legislation #PublicBuildings #Resilience
#DisabledEntrepreneurs #CeliaChartresAris
#FeedingTubeLife #DiversityandInclusion #GovernmentAdvisory
#DisabilityAwareness #AccessibleSpaces #InclusivePolicy #ForbesFeature #DiscriminationAwareness #AccessDenied

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