Angela Walker In Conversation - Inspirational Interviews, Under-Reported News

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Imagine what it's like not to be able to eat, not because of a lack of food, but because of a rare disorder that prevents your body from processing it. This is the reality for our guest, Celia Chartres-Aris, living with Loeys-Dietz Syndrome. Celia's condition requires her to be reliant on a feeding tube for nutrition. Her life is a testament to resilience and strength, and she joins us to shed light on her experience, from dealing with verbal abuse to answering inappropriate questions, all while living with a feeding tube.
Our conversation takes a critical turn as we scrutinize how legislation often fails to protect those with disabilities. With Celia's life as a backdrop, we examine poignant examples like the introduction of the Down Syndrome Bill, the care for children, and current access and architecture requirements for public buildings. We focus on the urgent need for inclusive policy making that involves the disabled in the process, underscoring the importance of designing everything right from the outset, with accessibility in mind.
The final part of our discussion turns to the crucial aspect of accessibility and inclusion. Listen as Celia recounts instances where she was denied access due to her disability, and how she uses these moments to educate others. We explore the Access Maturity Model, a tool organizations can use to assess their inclusion and accessibility policies. We conclude our conversation by emphasizing the importance of diversity inclusion, stressing the need for disabled people to be included in design and entrepreneurship roles, and a deep understanding of these critical issues.
#DisabilityRights #Inclusivity #Accessibility
#InclusiveDesign #DisabilityAdvocate #Access2Funding
#Legislation #PublicBuildings #Resilience
#DisabledEntrepreneurs #CeliaChartresAris
#FeedingTubeLife #DiversityandInclusion #GovernmentAdvisory
#DisabilityAwareness #AccessibleSpaces #InclusivePolicy #ForbesFeature #DiscriminationAwareness #AccessDenied

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Are you ready to unravel the complex world of Ehlers-Danlos Syndrome (EDS)? This in-depth discussion with Sarah Hamilton from Ehlers-Danlos Support UK is set to provide an enlightening perspective on this rare connective tissue disorder that affects roughly one in 500 people. From offering a closer look at the myriad of symptoms to unravelling the challenges in securing an accurate diagnosis, this comprehensive dialogue is designed to shed light on the often overlooked serious consequences of EDS.
As we delve further into the societal impact of EDS, one cannot ignore the inadequate government response to the healthcare needs of those affected. The narrative of EDS going undiagnosed due to scarce resources, lack of education, and a lackluster government response is sadly all too common. Yet, as Sarah and I explore, it's not just about joint issues; many individuals experience more debilitating symptoms and are left without adequate support.
Beyond the academic discourse, our conversation takes a pragmatic turn as we discuss self-management strategies and workplace accommodations for chronic illness. Sarah lends valuable insights on the importance of self-advocacy, pacing, and advocating for reasonable adjustments at work. We also examine the potential impact of initiatives like the red seeds framework, the major conditions strategy, and MSK services. If EDS affects you or someone you care about, this conversation is a treasure trove of insights, strategies and hope. Tune in, learn and lend your voice to the conversation.
https://www.ehlers-danlos.org/

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EXCLUSIVE. Government commits to reviewing new evidence in Primodos scandal for first time.
Families who believe miscarriages and devastating birth defects were caused by the NHS-prescribed pregnancy test Primados say it's a fantastic positive that the British government has told this programme it is "committed to reviewing all new evidence on hormone pregnancy tests and adverse effects in pregnancy."
The Government and pharmaceutical company Bayer have been accused of bullying the campaigners into silence, by threatening that, unless they commit to never making another claim, they will have to pay the legal bills of the lawyers used to block their joint action.
Marie Lyons took the oral hormone pregnancy test in 1970. Her daughter was born with a badly deformed arm. But the potential risks of the damage to unborn babies had been raised by medical professionals years earlier.
In our enlightening talk with Marie, an advocate from the Association for Children Damaged by Oral Hormone Pregnancy Tests, we trace the timeline of events that began with the introduction of Primados in 1958. We hear Marie's poignant recollections of her daughter Sarah's struggles during her schooling years and in relationships due to her disability.
Marie discusses the Association's High Court battle and how the Government and Bayer filled the court with teams of legal experts, dwarfing their representation.
Fifty years since she started her campaign for justice, Marie remains determined to uncover new evidence to prove her case. We hear statements from the Department of Health and Social Care and Bayer who maintain their denial of any link between HPTS and foetal harm. They were invited to take part in the discussion but declined.
In the final segment of our talk with Marie, we expose the devastating consequences of the drug company's decision to unlawfully distribute the drug in nations where abortion is illegal. Hear Marie's fears for her daughter's future health, the distressing tales of other association members, and the complexities of estimating the number of people affected. As we ponder the heated debate in Parliament and Theresa May's actions post-reading the expert working group's report, Marie stresses the need for an independent review of the MHRA and funding for an independent review of synthetic hormones. Her message is clear and uncompromising: the quest for justice and safety in healthcare is a fight that's far from over.
https://primodos.org/
#Primados
#NHSprescribedpregnancytest
#Hormonepregnancytests
#Pregnancytestcontroversy
#MarieLyons
#AssociationforChildrenDamagedbyOralHormonePregnancyTests
#Primadoshistory
#Primadoscampaign
#NHSandPrimados
#Bayerpharmaceuticalcompany
#Legalbattle
#DepartmentofHealthandSocialCare
#Foetalharm
#MHRA (MedicinesandHealthcareproductsRegulatoryAgency)
#Synthetichormones
#Healthcaresafety
#AbortionandPrimados
#Expertworkinggroupreport
#TheresaMay
#MarieLyonsStory
#PrimadosControversy
#PregnancyTestScandal
#HealthcareInjustice
#PatientAdvocacy
#MedicalNegligence
#PharmaceuticalScandals
#BirthDefects
#LegalChallenges
#HealthcareTransparency
#MedicalRegulation
#GovernmentAccountability
#PatientRights
#FoetalDevelopment
#HealthcareEthics
#HealthcareAdvocacy
#Women'sHealth
#MedicalResearch
#PatientSafety
#MedicalControversies#Justiceinhealthcare

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Imagine going in for routine day surgery to help stop occasional bladder leaks and being left permanently disabled needing a wheelchair or stoma bag.
That's what's happened to thousands of women around the world.
When Kath Sansom of Sling the Mesh began her campaign, she never imagined it would resonate with so many. This episode brings Kath's emotional account of her personal struggles with pelvic mesh complications, revealing the depths of a medical disaster that has left countless lives in turmoil and even led some women to take their own lives.
The conversation with Kath is both enlightening and heart-wrenching, as she discusses not only her own journey—from the debilitating aftermath of surgery to her powerful activism—but also the shared narratives of women facing similar battles.
The physical and psychological scars left by mesh surgeries are profound . We delve into how these medical procedures have drastically altered lives, leaving individuals grappling with chronic pain, loss of mobility, and an array of systemic health problems and an inability to have sex leading to marriage breakdowns. Kath's insights into the ongoing fight for recognition, the quest for justice, and the stark increase in dependency on medications are eye-opening. This episode is an earnest exploration of the human cost of a healthcare crisis, shedding light on the resilience and determination of those who have been affected.
Join us as we discuss the urgent need for financial redress and transparency in the healthcare system, and Kath's calls a Sunshine Payment Act. We touch on the stark differences in responses across the globe. Kath’s advocacy work with Sling the Mesh provides a beacon of support, offering resources for anyone affected by mesh. This episode is more than a conversation; it's a call to awareness and empathy for the victims of a widespread medical oversight that demands our attention and action.

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