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AlzAuthors: Untangling Alzheimer's & Dementia

AlzAuthors: Untangling Alzheimer's & Dementia

AlzAuthors Featured on The Whole Care Network

Welcome to the AlzAuthors podcast! We’re so glad you found us. We're the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.

Featuring Marianne Sciucco, RN

Podcast producer and host Marianne Sciucco is a co-founder and director at AlzAuthors and a registered nurse who cared for hundreds of dementia patients over a 20-year career. She provided care to her stepfather during his dementia journey and witnessed the painful decline of four beloved aunts to the disease. Her novel, "Blue Hydrangeas, an Alzheimer’s love story," is based on a couple she met through her work and is a testament to the power of love in the face of this heart-wrenching disease.

Learn more about Marianne at AlzAuthors.com.

Purchase "Blue Hydrangeas"

Featuring Christy Byrne Yates, M.S., LEP

Christy is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, “Building a Legacy of Love: Thriving in the Sandwich Generation” recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.

Learn more about Christy at AlzAuthors.com.

AlzAuthors is an Amazon Affiliate and may receive a small commission on book sales at no cost to you.

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AlzAuthors: Untangling Alzheimer's & Dementia - Susan Landeis Untangles Searching for Rainbows in Dementia

Susan Landeis Untangles Searching for Rainbows in Dementia

AlzAuthors: Untangling Alzheimer's & Dementia

play

02/21/22 • 51 min

About Susan Landeis

Susan Landeis and her mother shared a difficult childhood, leading to abandonment issues, estrangement, and then a need for care on a dementia journey. Despite decades of abuse, Susan put aside her feelings and came to her mother’s aid, taking on not only the role of mom’s caregiver, but eventually the role of caring for her father.

This experience inspired her first book, Optimal Caregiving: A guide for managing senior health and well-being. And then a second, more personal memoir, called In Search of Rainbows: A daughter’s story of loss, hope, and redemption.

Susan is a certified nutritionist and certified senior advocate. Prior to this, she spent over twenty years working in the field of Health Information Management. She is also a member of the AlzAuthors management team, and is responsible for creating the beautiful graphics on our social media platforms.

In this episode, we discuss how she overcame her difficult childhood and rebuilt her relationship with her mother, her search for the rainbows in dementia care, and the unexpected gift she received from her mother’s Lewy Body disease.

Read Susan’s AlzAuthors Post: Susan Landeis Cares for Her mother with Lewy Body Dementia: In Search of Rainbows

Start reading In Search of Rainbows: A daughter's story of loss, hope, and redemption

and Optimal Caregiving: A guide for managing senior health and well-being now!

Note: We are an Amazon Associate and may receive a small commission from book sales.

Connect with Susan Landeis

Website

Facebook

Twitter

Linked In

##

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.

Thanks for listening.

We are a Whole Care Network Featured Podcast.

Proud to be on The Health Podcast Network.

Want to be on the podcast?

Here’s what you need to know.

Shop our Store

Join our book club

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AlzAuthors: Untangling Alzheimer's & Dementia - Elevate Your Caregiving in the Kitchen with Melissa & David Bernstein
play

07/05/23 • 45 min

A crucial aspect of caregiving is keeping those in your care engaged and productive with simple, everyday tasks. Such activities can include folding laundry, arranging books, cooking, and eating. Not only does this provide purpose and enjoyment for the care recipient, but it also promotes independence and preserves dignity. Encouraging participation in daily tasks, even in a small capacity, can significantly enhance the overall quality of life for both caregiver and care recipient.

In this podcast, Melissa Bernstein, an occupational therapist, and David Bernstein, a geriatrician with over 40 years of practice, share the importance of these regular activities and how they can benefit those receiving care. They stress the value of including all the senses in these tasks, such as playing music while cooking or eating. The goal is to create a rich, sensory experience that nurtures and engages the mind and body, thereby fostering continued independence and self-worth in the care recipient's life.

In this episode, you will be able to:

· Discover their groundbreaking "Power of Five" formula for preventing neurodegenerative diseases.

· Explore compassionate approaches to nutrition and engagement for Alzheimer's caregivers and their loved ones.

· Foster independence and uphold dignity in dementia and Alzheimer's care.

· Unlock flavorful secrets from Melissa's cookbook for healthy eating and pet care.

After the Podcast

Read Melissa and David's AlzAuthors posts

Melissa Bernstein Creates a Cookbook for Caregivers

Doctor Shares Strategies for Dealing with Unsafe Senior Drivers

Discover their books:

The Power of Five Formula:The Ultimate Formula for Longevity & Remaining Youthful

Power of 5 Test Kitchen Cookbook Your Guide to Healthy Cooking and Eating

The Power of 5 Test Kitchen Cookbook: Caregiver Edition

I've Got Some Good News and Some Bad News: YOU'RE OLD: Tales of a Geriatrician, What to expect in your 60's, 70's, 80's, and Beyond

Senior Driving Dilemmas

Note: We are an Amazon Associate and may receive a small commission from books sales.

Connect with Melissa

The Powerof5life.com website

Facebook

Instagram

Connect with Dr. Bernstein

Website

Facebook.com/DrDavidBernstein/

LinkedIn

Twitter

***

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

We are a WCN Featured Podcast.

Proud to be o...

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AlzAuthors: Untangling Alzheimer's & Dementia - Cynthia Huling Hummel Untangles the Memories Behind the Masks

Cynthia Huling Hummel Untangles the Memories Behind the Masks

AlzAuthors: Untangling Alzheimer's & Dementia

play

11/29/21 • 48 min

The Rev. Dr. Cynthia Huling Hummel is an Alzheimer's artist, author, and advocate. She is the author of "UnMasking Alzheimer's: The Memories Behind the Mask,” a collection of photos of the 36 masks she created as a participant in an arts program called "Art Reflects" for those living with memory loss and their care partners. Cynthia says she started with one mask and couldn't stop! Each one reveals a story that speaks to her experience of living with early onset Alzheimer’s. She hopes that her mask collection will travel around the country and provide a better understanding of the challenges of living with a cognitive disorder. She also hopes that it will reduce the stigma of a dementia diagnosis and serve as a catalyst for opening discussions about the condition.

Cynthia was diagnosed with Mild Cognitive Impairment in 2011. This changed to clinical Alzheimer's in 2016. She does not let her diagnosis stop her. In fact, she does everything she can to raise awareness and funds for research and support services for those living with memory conditions. She’s enrolled in several clinical trials and urges everyone to learn more at Trialmatch.alz.org. She loves public speaking and has given more than 50 talks to community groups. A former pastor, she especially enjoys speaking to faith communities on how to be more dementia friendly.

In this episode, we discuss how life doesn’t stop after an Alzheimer’s diagnosis, her new ministry as an advocate for those living with dementia, and her exhaustive schedule of activities, filled with the arts, education, and many surprising adventures.

Read Cynthia’s AlzAuthors Post: https://alzauthors.com/2019/09/03/cynthia-huling-unmasking-alzheimers/

Start reading UnMasking Alzheimer’s: The Memories Behind the Masks now!

Note: We are an Amazon Associate and may receive a small commission from book sales.

Connect with Cynthia:

Facebook

LinkedIn

View Cynthia’s YouTube message about COVID-19

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast?

Here’s what you need to know

Shop our Store

Join our book club

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AlzAuthors: Untangling Alzheimer's & Dementia - Finding Peace in Chaos: A Caregiver's Journey in a War Zone with Miriam Green
play

11/22/23 • 56 min

In a health crisis, we often refer to our journey as a "battle." We may see ourselves as "warriors." This is true for those impacted by Alzheimer's and dementia. The diagnosis brings uncertainty, disruption, and fear. But what happens when you're dealing with dementia in the middle of a war zone? When airstrikes are the norm, and screeching sirens interrupt each day, warning you to seek safety and shelter in a minute or less? When ordinary life ceases and the top of mind issue is simply staying alive? Avoiding disaster? Breathing?

On October 7th, Miriam Green, an AlzAuthor living in Israel, found her life as a caregiver turned upside down when terrorists invaded her country. In this podcast, she shares with us the horror and brutality of what occurred, how her country, her family, friends and community have been affected by this conflict, and how they are dealing with it. She is a mother, daughter, grandmother, and wife, and like most women juggles her responsibilities as best as she can on a good day. Now, she struggles to find peace in the chaos, searching for meaningful, uplifting moments, even hope, while carefully balancing her family's needs. We are grateful to her for speaking with us. We take no sides in this conflict and pray for a peaceful resolution soon.

In this episode, you will:

  • Learn how Miriam finds brief moments of solace and peace in the midst of war
  • See how her mother's care community maintains a routine and stability for their patients even in the most challenging of circumstances, giving them a sense of familiarity and security.
  • Discover the unique challenges faced by caregivers who are helping to raise grandchildren while caring for aging parents in war time
  • Gain insights into the power of hope and resilience in the face of adversity, and learn how to nurture these qualities within yourself and your care recipients

About Miriam Green

Miriam Greenis the author of The Lost Kitchen: Reflections and Recipes from an Alzheimer's Caregiver. Her poetry has been published in several journals, including Poet Lore, The Prose Poem Project, Ilanot Review, The Barefoot Review, and Poetica Magazine. Her poem, “Mercy of a Full Womb,” won the 2014 Jewish Literary Journal’s 1st anniversary competition. Her poem, “Questions My Mother Asked, Answers My Father Gave Her,” won the 2013 Reuben Rose Poetry prize. She holds an MA in Creative Writing from Bar Ilan University, and a BA from Oberlin College. Miriam is a 24-year resident of Israel.

After the Podcast

Find Miriam on Facebook and on Twitter .

Read Miriam's AlzAuthors blog post.

Purchase The Lost Kitchen: Reflections and Recipes from an Alzheimer's Caregiver

Purchase Life on Planet Alz by Jack Cohen, Miriam's father

Note: We are an Amazon Associate and may receive a small commission on book sales which will cost you nothing.

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

Thank you for listening.

We are a WCN Featured Podcast.

Proud to be on The Health Podcast Network.

Want to be on the podcast?

bookmark
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AlzAuthors: Untangling Alzheimer's & Dementia - Edie Weinstein Untangles How Children’s Books Can Diminish Barriers Caused by Dementia
play

12/06/21 • 52 min

Edie Weinstein is the youngest of the AlzAuthors. She published her illustrated children’s book, Grandpa and Lucy: A Story About Love and Dementia, at the tender age of 16! But today, at 18 and a college student, she may be one of our wisest contributors.

Unlike most of our authors, Edie did not write her book because of a personal experience with dementia. She wrote it as a Girl Scouts Silver Award Project because her grandpa did not have dementia.

After learning about the condition at a Dementia Friends meeting, she realized that for many kids, dementia is a barrier to a happy relationship with their grandparent, which prevents them from enjoying the kind of loving relationship she enjoyed with her Grandpa.

So, she wrote a heartwarming story and seven of her teen friends collaborated with her on the illustrations. Their goal was to help other kids understand the condition, and to show them that their relationship with Grandpa (or Grandma) need not change after a diagnosis.

Edie is an inspiring, intelligent young woman who is clearly going places. You will enjoy this delightful interview, where we explore what sparked her interest in dementia, what happened after she published her book (hint: theater is involved), and how the experience of publishing a book about dementia at such a young age has enhanced her life.

Read Edie’s AlzAuthors Post: https://alzauthors.com/2020/03/10/12299/

Start reading Grandpa and Lucy now! https://amzn.to/2TOPhuo

Note: We are an Amazon Associate and may receive a small commission from book sales.

Watch the play, Grandpa and Lucy, on CLIMB Theater https://tinyurl.com/grandpaandlucydigital

Connect with Edie

Website: www.inkypuppypaws.com

Facebook: https://www.facebook.com/inkypuppypaws/

Twitter: https://twitter.com/InkyPuppyPaws

Instagram: https://www.instagram.com/inkypuppypawsmn/

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast?

Here’s what you need to know

Shop our Store

bookmark
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share episode
AlzAuthors: Untangling Alzheimer's & Dementia - Pam Ostrowski Untangles Common Myths About Dementia Care

Pam Ostrowski Untangles Common Myths About Dementia Care

AlzAuthors: Untangling Alzheimer's & Dementia

play

11/22/21 • 72 min

Pam Ostrowski was the first to recognize her mother’s Alzheimer’s symptoms and spent 14 years with her on her journey. This led her to become a Certified Senior Advisor (CSA)®, a Certified Dementia Practitioner (CDP®), and Certified in Dementia Care® (CDC®). She is passionate about educating families on dementia care, to help them attain peace of mind while caring for a loved one.

Pam pulled together her caregiver experience and her skills in marketing and promotion to write It's Not That Simple: Helping Families Navigate the Alzheimer's Journey, the book she wished for during her caregiving years, and created Alzheimer's Family Consulting, an agency that provides caregivers with one-on-one dementia guidance.

She now works directly with Alzheimer’s and dementia families to help them navigate the difficult conversations and the many processes, decisions, and emotions they encounter on their journeys.

In this episode, we discuss the many levels of dementia care, the difference between loving and caring, and debunk the many myths that surround the dementia journey.

Read Pam’s AlzAuthors Post:

https://alzauthors.com/2021/05/26/pam-ostrowski-its-not-that-simple/

Start reading It's Not That Simple: Helping Families Navigate the Alzheimer's Journey now!

Note: We are an Amazon Associate and may receive a small commission from book sales.

Connect with Pam Ostrowski

Website: https://itsnotthatsimple.com/

Twitter: https://twitter.com/Pam_AlzSupport

LinkedIn: https://www.linkedin.com/in/pam-ostrowski-ma-56159717/

Facebook: https://www.facebook.com/pamatsos

Instagram: https://www.instagram.com/pam_alzsupport/

Note: Lynne Russell passed away on January 19, 2024.

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AlzAuthors: Untangling Alzheimer's & Dementia - Untangling Dementia Through Writing and Podcasting with Pippa Kelly

Untangling Dementia Through Writing and Podcasting with Pippa Kelly

AlzAuthors: Untangling Alzheimer's & Dementia

play

06/21/21 • 92 min

What happens when two dementia advocates from opposite sides of the Atlantic who have each written books and blogs and host podcasts on the condition get together for a chat? The conversation flows and grows into a wealth of storytelling and sharing. This is what happened when Pippa Kelly joined me for a Zoom call.

Pippa is the author of Invisible Ink, a novel that explores a man’s relationship with his mother who has dementia. She also blogs on all things dementia, and hosts the popular podcast, “Well I Know Now,” featuring a variety of guests sharing their dementia stories.

Her dementia journey started when her father became ill and she needed to step in to care, not only for him, but for her mother, who had dementia. She was thrust into caregiving unexpectedly and says she felt ill-equipped for the role. Like most caregivers she had to learn everything on the spot and tackled such issues as moving her mother out of her home against her will and convincing the National Health Service to provide services for her father at home. A journalist, she soon began writing about their experiences, won an award for her writing, and became known across England as a campaigner and trusted speaker on the subject.

In this discussion we touched on all of these topics, as well as the emotional chaos of dementia, and what you can get back from dementia care.

Read Pippa’s AlzAuthors Posts:

Meet Pippa Kelly, Dementia Writer and Advocate https://alzauthors.com/2016/06/16/meet-pippa-kelly-dementia-writer-advocate/

Meet Pippa Kelly, Author of Invisible Ink

https://alzauthors.com/2017/04/12/meet-pippa-kelly-author-of-invisible-ink/

Start reading Invisible Ink now! https://amzn.to/3pYpXSh

(Note: We are an Amazon Associate and may receive a small commission from book sales.)

Connect with Pippa

Website https://pippakelly.co.uk/

Blog https://pippakelly.co.uk/blog/

Podcast https://pippakelly.co.uk/blog/

Twitter https://twitter.com/piponthecommons

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast?

Here’s what you need to know

Shop our Store

Join our book club

bookmark
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AlzAuthors: Untangling Alzheimer's & Dementia - Untangling Caring for a Husband with Early Onset Alzheimer’s with Renée Harmon, MD
play

05/17/21 • 49 min

Today’s guest is Renée Brown Harmon, MD, author of the teaching memoir “Surfing the Waves of Alzheimer's: Principles of Caregiving That Kept Me Upright.” She and her husband Harvey created, developed, and shared a thriving family medicine private practice in Birmingham, Alabama, for more than twenty years. In 2010, Harvey, at age 50, was diagnosed with early onset Alzheimer’s and forced to retire. Renée became “The Queen of Everything” at work and at home. She was a solo physician at their practice as well as Harvey’s primary caregiver, and primary parent to their two teenaged daughters. With reluctance and resentment, she also took on the role of head of household. It was a lot, but she managed to “surf the waves,” which she shares in her insightful book. Harvey’s dementia journey ended in memory care in 2018. Renée retired in 2019 and uses her time and talents to write and speak on Alzheimer’s and dementia while advocating for caregivers.

In this episode we discuss how being a physician affected her caregiving journey, how she tried to do it all herself but learned to reach out for help, and the creative ways her friends helped her and Harvey.

Read Renée’s AlzAuthors Post: https://alzauthors.com/2020/06/16/renee-harmon-earlyonset-alz-blog/

Start reading "Surfing the Waves of Alzheimer's: Principles of Caregiving That Kept Me Upright" now! https://amzn.to/3atH7jU

Note: We are an Amazon Associate and may receive a small commission from book sales.

Connect with Renée

Website: https://www.reneeharmon.com/

Blog: https://www.reneeharmon.com/blog/

Facebook: https://www.facebook.com/reneeharmonauthor

Instagram: https://www.instagram.com/reneeharmon_writes/?hl=en

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.

Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.

Thanks for listening.

We are a Whole Care Network Featured Podcast

Proud to be on The Health Podcast Network

Find us on The World Podcast Network and babyboomer.org

Want to be on the podcast?

Here’s what you need to know

Shop our Store

Join our book club

bookmark
plus icon
share episode
AlzAuthors: Untangling Alzheimer's & Dementia - Untangling Caring for Two Parents Diagnosed at the Same Time with Jean Lee
play

01/18/21 • 41 min

Jean Lee is a co-founder and director of AlzAuthors. and author of the brave, inspirational memoir "Alzheimer’s Daughter," written from a journal she kept during her years of caring for both parents diagnosed with Alzheimer's on the same day. At the time, she was working full-time as an elementary school teacher and took over their care. Throughout her caregiving years she experienced the heartbreak, confusion, and exhaustion common to all dementia caregivers. Readers of her deeply personal and painfully written memoir travel a journey beginning with a sweet WWII romance through family life, aging, and a daughter’s first suspicions that something’s not right with Mom and Dad, ending with her parent’s final breaths. “I wrote the book I needed to read while caregiving for my parents,” she says. "Alzheimer’s Daughter" is a beautiful but poignant tribute to her parents and a source of support for caregivers everywhere. Jean is also the author of a delightful series of children’s books based upon the family dogs: "Lexi’s Triplets," "Lexi’s Litter of Three," and "Julia’s Journey to her Forever Home."

Read Jean’s AlzAuthors blog post: https://alzauthors.com/2018/05/08/jean-lee-author-of-alzheimers-daughter/

Purchase Alzheimer’s Daughter: http://.to/2rVqJjm

(Note: We are an Amazon Associate and may receive a small commission from book sales.)

Follow Jean Lee

Alzheimersdaughter.com: https://jeanllee.blogspot.com/

Alzheimer’s Daughter on Facebook: https://www.facebook.com/AlzheimersDaughter/

Twitter: https://twitter.com/JeanLee18

Instagram: https://www.instagram.com/jeanlee18/

LinkedIn: https://www.linkedin.com/in/jean-lee-629b88180/

Pinterest: https://www.pinterest.com/jeanleeauthor/

Goodreads: https://www.goodreads.com/author/show/770111.Jean_Lee

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ .

Thank you for listening.

We are a WCN Featured Podcast.

Proud to be on The Health Podcast Network.

Want to be on the podcast? Here’s what you need to know.

Shop our Store

Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.

bookmark
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AlzAuthors: Untangling Alzheimer's & Dementia - Untangling Working and Writing While Caring for Mom with Robin Perini
play

01/11/21 • 57 min

Robin Perini is an award-winning author of heart-stopping suspense and poignant romance novels. When not writing she works for an advanced technology corporation. When not writing or working she helps care for her mother who has Alzheimer’s and lives just across the street with Robin’s father. An advocate for Alzheimer’s education, Robin has woven the topic into two of her novels, “Forgotten Secrets” and “Forgotten Legacy,” books one and two in her Singing River Series. Her goal was to both entertain and educate her readers about the disease, and to raise needed funds for the Alzheimer’s Association. She happily donates a portion of the royalties from these books to the organization.

As a writer, Robin is devoted to giving her readers fast-paced, high stakes adventures with a love story sure to melt their hearts. Her strong characters and tightly woven plots made her a seven-time Romance Writers of America Golden Heart® finalist. In 2011, she won the Golden Heart®, and that title became her first Harlequin Intrigue novel, “Finding Her Son.” There are now ten. She’s written two other series, including Montgomery Justice and Carder Texas Connections, as well as several stand-alone novels.

Robin resides in the southwestern United States. In her spare time, you might find her giving one of her many nationally acclaimed writing workshops or training in competitive small-bore rifle silhouette shooting. She’s a voracious reader and a die-hard fan of the T.V. series, BONES. She’s also an AlzAuthors Associate, bringing her advanced tech skills to cataloguing our bookstore, a work-in-progress.

In this episode we discuss how her mom’s Alzheimer’s diagnosis changed her life, the challenges of caring for her mom at home while balancing work and writing, thankfulness, and the joys of finding the best home healthcare provider you can find.

UPDATE: We are sad to report that Robin Perini passed away on January 10, 2023.

Start reading “Forgotten Secrets” https://amzn.to/3fUX30a and “Forgotten Legacy” https://amzn.to/3muikQW now.

(Note: We are an Amazon Associate and may receive a small commission from book sales.)

Read Robin's AlzAuthors blog post: https://alzauthors.com/2016/12/07/meet-robin-perini-author-of-forgotten-secrets-more-than-a-romantic-mysterythriller/

About the Podcast

AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

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How many episodes does AlzAuthors: Untangling Alzheimer's & Dementia have?

AlzAuthors: Untangling Alzheimer's & Dementia currently has 132 episodes available.

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The podcast is about Health & Fitness, Society & Culture, Podcasts and Relationships.

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The episode title 'Cynthia Huling Hummel Untangles the Memories Behind the Masks' is the most popular.

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The average episode length on AlzAuthors: Untangling Alzheimer's & Dementia is 530 minutes.

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Episodes of AlzAuthors: Untangling Alzheimer's & Dementia are typically released every 7 days, 2 hours.

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The first episode of AlzAuthors: Untangling Alzheimer's & Dementia was released on Oct 21, 2020.

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