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Akathisia Stories

Akathisia Stories

MISSD + Studio C Chicago

Akathisia Stories, a co-production of MISSD and Studio C Chicago, is a podcast series that features interviews and news concerning the adverse drug reaction akathisia and medication-induced suicide.
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Top 10 Akathisia Stories Episodes

Goodpods has curated a list of the 10 best Akathisia Stories episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to Akathisia Stories for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite Akathisia Stories episode by adding your comments to the episode page.

Akathisia Stories - Episode 7: Janet Schiel

Episode 7: Janet Schiel

Akathisia Stories

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08/06/20 • 34 min

In this seventh episode of Akathisia Stories, we hear from Janet Schiel.

In 2016 her husband, Joe, was nearing the end of his 37-year career in the pharmaceutical sales business. But prior to making his own announcement of retirement, his boss had a health scare and retired, and several people at the company were let go, thereby doubling Joe's workload and his regional responsibilities, from half the country to the entire country. Meanwhile, Joe and Janet found their perfect retirement home in the Lake of the Ozarks. But Janet believes the reality of buying and selling homes on top of the workload led Joe to call his doctor. Without talking with him in person, the doctor prescribed the generic version of Lexapro, an antidepressant Joe had briefly been on a decade earlier. When he took the drug then, Janet remembers that he couldn't get a grip on reality.

[Janet Schiel] “We thought he was having a nervous breakdown, and we drove to the hospital and he wouldn’t get out. He said, ‘Just take me home and I’m going to get off all the medicines.’”

In 2016 the adverse effects were significantly worse.

[Janet Schiel] "I watched him change and become depressed and paranoid. And I finally said to him about three weeks into this, ‘What are you taking?’ And I’ve never said that to him in my entire life. And, you know, I don’t even know where the words came from, and he looked at me and he told me and I said, “Don’t you remember what happened the last time?” And obviously he didn’t. And I said, “You can’t take this drug.” I said, “You have got to promise me you’re going to wean off of this. And that’s as much as I knew.”

Janet Schiel is a drug safety advocate who champions policies and practices to stop medication-induced suicide. In 2019, she founded Butterflies for Joe, a nonprofit organization dedicated to spreading awareness about the negative adverse effects of SSRIs, which tragically precipitated her husband's death in 2016. Like many others who have lost spouses to prescribed harm, Janet also lost her best friend when Joe died.

Prior to her husband's death, Janet was the founder and president of Guiding Hand Senior Resources, which helps families navigate the financial challenges of long-term elder care. She currently lives in Denver, Colorado with her dogs Buddy and Annie, and enjoys spending as much time as possible with her two adult children, Luke and Blake, and their partners. We spoke late last year in Chicago.

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Akathisia Stories - Episode 6: Mathy and Caroline Downing
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01/22/20 • 70 min

In this sixth episode of “Akathisia Stories,” we hear from two amazing women: Mathy and Caroline Downing. Mathy was Candace Downing's mother and Caroline her sister. Candace died 16 years ago this month. Her older sister, Caroline, is now 30 years old. She's been outspoken about drug education since losing her sister in 2004. Just a child herself at the time, she co-wrote and narrated the documentary "Prescription: Suicide?" Winner of the Citizens Commission on Human Rights Award for her advocacy at just 18, Caroline remains passionate about her sister’s legacy. As a young adult, she knows that knowledge is power and encourages others to learn as much as they can about medications and their health before making any major decisions regarding their health care. Her blog, although mostly focused on style, doesn’t shy away from talking about sensitive issues such as mental health and losing a sibling. Caroline works in D.C. and lives in Maryland and hopes to write a book about her experience of losing a sibling to SSRIs. We spend the first half of this episode listening to her story, recorded late last year via Skype.

Currently Mathy Downing is a nonpublic school teacher working with grades kindergarten through fifth grade, in subjects such as math, reading fluency and comprehension, writing, and counseling. She remains an international child advocate, a position she's had since 2005, the year following Candace's death. Advocacy has played a major part in her life beginning the year Candace died. It began with her testifying in front of the FDA in the summer of 2004, which led to numerous television, magazine and newspaper article appearances. She has spoken internationally about the rights of children with informed consent, drug transparency, and over-medication. She has also been heavily involved in numerous documentaries in which Candace's story has played a key part. Mathy is also now a key member of the Know More About Drugs alliance. KMAD alliance is an informative website for parents so that they can make informed decisions about any drug prescribed for their child. Last year we spoke first by Skype and then, when the Internet connection wasn't ideal, by phone.

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Akathisia Stories - Episode 4: Kim Witczak

Episode 4: Kim Witczak

Akathisia Stories

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09/18/19 • 59 min

In this fourth episode of Akathisia Stories, we hear from Kim Witczak, whose husband, Woody, was having trouble sleeping in the summer of 2003. He paid a visit to his regular doctor and left with a three-week sample pack of Zoloft. Kim was out of the country for the first three weeks Woody was on the drug; when she returned home, she was alarmed to see what was happening to her husband of almost 10 years. Kim Witczak: “I will never forget: He came in with his blue dress shirt, which he had an undershirt under, and it was just drenched with sweat; dropped his briefcase at the backdoor; went into a fetal position on our kitchen floor with his hands wrapped around his head like a vice, going: ‘Help me, Kim; help me. I don’t know what’s happening to me. It’s like my head’s outside my body looking in. Help me, Kim. Help me.’ And I remember just looking at him – and I had no idea, but we calmed him down. You know, I’m like, ‘Let’s try breathing; let’s try praying; let’s try yoga. If this job is so stressful, quit.’ You know, I had no idea.”

Kim shares Woody's story — and her own. Her advocacy work has taken her to the nation's capital not only to testify before House and Senate panels but to serve on the FDA Psychopharmacologic Drug Advisory Committee. Kim Witczak: “Being appointed on this committee I think is a success in that I’m not going to be just the rubber stamp, which I see a lot of. So for me, I think it’s a success that I have a seat at the table. But I’m often the only one that votes no.”

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Akathisia Stories - Episode 1: Wendy Dolin

Episode 1: Wendy Dolin

Akathisia Stories

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06/17/19 • 43 min

We launch the Akathisia Stories podcast series with MISSD founder Wendy Dolin. Over the course of two interviews recorded in the first half of 2019, she talks to Akathisia Stories host Andy Miles about the 2010 suicide of her husband, Stewart Dolin, the work of the foundation she started in his name, medication-induced suicide and cases of chronic akathisia, her work with and on behalf of veterans, the legal battle she has waged in the courts and the status of her petition to the United States Supreme Court, and more.

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Akathisia Stories - Episode 2: Gail Regenbogen
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07/11/19 • 59 min

On this second episode of Akathisia Stories, we hear from Gail Regenbogen. In late 2010 Gail's husband, Howard, went on the antidepressant Cymbalta; in a short period of time he changed from the "very outgoing, happy" man Gail had known him to be through 30 years of marriage, to someone who was "real quiet and withdrawn." "This was three weeks into the course of the Cymbalta,” she recounts. “And that night my daughter called me up and she said, ‘We were all driving home and we were talking about dad tonight and I think something’s not right.’ And I said, ‘Well, I’ve noticed a change in his personality, as well.’ And my kids were concerned, and I sort of just kind of let it be because I really wasn’t educated on any of the side effects of any of these drugs. You know, all I knew is that these drugs work and they help people."

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Akathisia Stories - Episode 3: Kristina Kaiser Gehrki
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08/14/19 • 48 min

In this third episode, we hear from Kristina Kaiser Gehrki, whose daughter Natalie's prescription drug-induced tragedies began at the age of two and a half, when she was prescribed a powerful cancer drug to combat juvenile rheumatoid arthritis. Around the time of her 10th birthday, Natalie was put on Prozac for mild social anxiety. A year and a half later the prescribing doctor advised Natalie to take a medication holiday. Kristina Gehrki: “When the doctor told her to immediately and cold turkey stop Prozac, within two weeks I had to rush Natalie to the hospital. And what I did was this: I came into Natalie’s room and she said, ‘Mom’ – she was very flat – she said, ‘Mom, I can’t stop thinking about killing myself, but I know I can’t so I won’t.’ And I was just shocked. And I rushed her to the hospital because I didn’t know what was happening and I was so concerned. And what we learned is you’re not supposed to stop cold turkey. You’re supposed to taper. And if you do stop cold turkey, it can cause withdrawal akathisia."

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Akathisia Stories - Episode 5: Kim Witczak (Part 2)
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09/24/19 • 24 min

In this episode, we bring you more from the Kim Witczak interview featured in Episode 4. Here Kim talks about the legal battle she waged in the courts; her work producing the Selling Sickness conference; more about her work with the FDA panel and its involvement with the drug Chantix; and becoming involved with MISSD and the first time she met MISSD founder Wendy Dolin.

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Akathisia Stories - Episode 10: Angela Peacock, MSW
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09/01/21 • 38 min

In this episode, we hear from Angela Peacock. At age 18, Angela went into the United States Army, where she rose to the rank of sergeant. Five years into her service, the U.S. invaded Iraq and Angela was deployed to Baghdad. For a variety of reasons, the deployment took a physical and mental toll on her, and within six months she was medevacked out of Iraq to recover in Germany. A day after her evacuation, one of the soldiers in her platoon was badly injured, requiring medical assistance in the same military hospital where she was recovering.

[Angela Peacock] And he was like clearly traumatized; you know, it had just happened 48 hours prior. I don’t know how to explain it. I just felt, like, out of control. I didn’t know what to say. I didn’t know how to handle it. I just said OK, I can’t hear any more; I’ve got to go. And I just walked out of his room and I walked down the hall, and I didn’t have anything in my mind at that point, to, like, go get help; I just saw the sign; it said “Psychiatry,” arrow. I was like, I need to talk to somebody right now, and I just walked straight into the office and I was like, “My soldier just told me what happened; I don’t know what to do; I’m having a hard time as it is, readjusting to Iraq — or back to Germany. I feel like I almost died,” and then the answer was, here’s a prescription.

Angela Peacock is a former U.S. Army sergeant and subject of the documentary film “Medicating Normal.” Diagnosed with PTSD after one deployment to Iraq in 2003, she was overmedicated for it for over a decade and a half. She suffered from akathisia during a medically supervised taper and during withdrawal. Angie is part of the “Medicating Normal” outreach team, having already facilitated more than 150 post-screening panel discussions with communities worldwide. Her past roles include Veterans of Foreign Wars Legislative Fellow, Wounded Warrior Project Courage Award recipient, and finalist for Student Veteran of the Year with Student Veterans of America. She is a mental health advocate, writer, and YouTube creator who travels in her campervan across the United States with her service dog, Raider, in an effort to improve the mental health care system for veterans and civilians alike.

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Akathisia Stories - Episode 9: Colleen Bell

Episode 9: Colleen Bell

Akathisia Stories

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07/29/21 • 50 min

In this episode of “Akathisia Stories,” we hear from Colleen Bell, the loving niece of Stephen O'Neill, who died in 2016 at the age of 48. Stephen was a devoted family man who Colleen describes as having dedicated his life to helping others. A talented singer-songwriter and guitarist, Stephen was well known to pub-goers and nursing home residents in Northern Ireland, playing frequent gigs, several of which were abruptly canceled in the summer of 2016 when he had what was later characterized as a catastrophic reaction to the antidepressant Sertraline, also known as Zoloft. Within 48 hours of starting the prescription, Stephen experienced the scariest night of his life. His heart was racing and his mind was in overdrive with a relentless stream of dark and disturbing thoughts.

[Colleen Bell]: He said that his thoughts were multiplied by a thousand. He could feel almost things crawling on his skin. And he felt like he couldn’t sit down. He couldn’t settle. I believe he went for a walk because he wanted to try and shake the agitated feeling that he had throughout his whole body, and he still didn’t feel any better. So he basically said that he just waited for the sun to come up so that he could go and get help.

We'll have Colleen and Stephen's full story in a moment.

Colleen Bell grew up in a small town in Northern Ireland and studied Law at the University of Ulster and went on to train as a lawyer at Queen’s University. She was admitted to the Roll of Solicitors in 2012 and shortly after emigrated to Melbourne, Australia. On the 29th of July, 2016, Colleen’s life changed forever when her Uncle Stephen died by medication-induced suicide. Returning to Ireland upon the devastating news of Stephen’s death, she settled into a career in local government, vowing to use all of her spare time to ensure some form of justice for Stephen was served. Using her legal expertise, Colleen led the family through the coroner’s inquest where it was agreed that Stephen had a catastrophic reaction to Sertraline and suffered akathisia. Following the inquest, Colleen founded Stephen’s Voice, a Facebook page that aims to generate awareness around side effects to prescribed medication and medication-induced suicide; she also launched Prescribed Harm Awareness Day [July 29] in 2020 and co-founded a pressure group, Families Bereaved by Medication-Induced Suicide, uniting families from all around the world to push for change. Her activism has found her a place on Dr. David Healy’s Politics of Care Forum. A busy mother of two wonderful children under three years old and a King Charles Cavalier named Buddy, she is supported by her husband, Patrick, who has been and continues to be an absolute rock to her. It is Colleen’s dream to one day be in a position to dedicate even more of her time and efforts to Prescribed Harm Awareness.

We’re releasing this episode on July 29th, 2021, the fifth anniversary of Stephen O'Neill's death. It’s also Prescribed Harm Awareness Day, which Colleen and Stephen's Voice created in memory of of those who have lost their lives to medication-induced suicide, in support of their families, and of all those suffering around the world with iatrogenic illness. To find out more, please visit https://www.facebook.com/stephenoneillsvoice.

READ THE FULL EPISODE 9 TRANSCRIPT

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Akathisia Stories - Episode 11: Heather McCarthy
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10/26/21 • 52 min

In this episode, we hear from Heather McCarthy, mother of O'Shea McCarthy, known as Shea, who was born in December of 1988.

His love of art and music was apparent from an early age, and by the time he reached adolescence, he had become proficient in a variety of instruments and was the recipient of numerous art awards. Shea excelled in his studies throughout his K through 12 education, especially in his love of nature and science. Upon graduation from high school, he was admitted to Purdue University where he was accepted in the Earth and Atmospheric Science Program. Prior to undergoing corrective surgery for a deviated septum the summer before his sophomore year, Shea was prescribed an extremely large dose of the antibiotic Levaquin. After a three-week course of this veritable atomic bomb of antibiotics, Shea's life would never be the same. Heather remembers that her son became a shadow of the “intelligent, curious, beautiful young man” he was as he was suddenly struggling with anxiety, cardiac issues, insomnia, and a host of other adverse effects caused by Levaquin. Despite telling his treatment providers that he believed his condition was the result of an adverse effect of Levaquin, they chose a diagnosis of bipolar disorder and subsequently prescribed a host of psychotropic drugs that included Risperdal, Lamictal and Ativan.
[Heather McCarthy] I think these drugs are so insidious on how they affect your spirit and your mind and, my belief, your soul, because it’s such a slow walk. It’s such a slow chipping away at who he was. And his anxiety was all the time. He, you know, was twitching a lot and he had so much anxiety. And I think he just got tired. And how degrading it is to not be listened to and to not be believed. I mean, we have medical records that says, “I’m afraid,” he’s telling his therapist, “I’m afraid I’m going to crash my car." In hindsight, it’s just this ridiculous, to me, belief that he was — you know, he’s going, he’s getting the treatment, he’s going to get better. Like, this is going to pass. This is a brilliant young man. You know? Like, this is going to pass.”

Heather McCarthy is an attorney from Northwest Indiana who holds advanced degrees in public administration and English lit. Prior to establishing a private law practice, she was an executive in the mental health industry. She served in the role of vice president at the administrative services organization for Regional Mental Health Center, the facility that treated her son, O’Shea. After his death, Heather pursued an eight-year legal case alleging medical malpractice of the mental health treatment providers in the wrongful death of her son. She also testified, with numerous other victims, at the 2015 FDA hearings that resulted in additional black box warnings for the antibiotic Levaquin and the acknowledgment of a disability, Fluoroquinolone Associated Disability, of which symptoms include cardiac issues, insomnia, restlessness, and psychosis, some of which can be permanent. Heather also supports the efforts of MISSD in creating awareness about akathisia, a condition that was fatal for Shea after receiving mental health treatment.

In this episode we hear two interviews with Heather, the first of which was recorded in late 2019, following the MISSD organization's silent auction in Chicago. At that time Heather's lawsuit was in progress and she was not permitted to make mention of it. Later, we hear an interview recorded just last month, following resolution of that litigation.

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FAQ

How many episodes does Akathisia Stories have?

Akathisia Stories currently has 18 episodes available.

What topics does Akathisia Stories cover?

The podcast is about Health & Fitness, Medicine, Podcasts and Science.

What is the most popular episode on Akathisia Stories?

The episode title 'Episode 17: Wendy Dolin (MISSD) & Michael Tellerino (K9s For Veterans)' is the most popular.

What is the average episode length on Akathisia Stories?

The average episode length on Akathisia Stories is 45 minutes.

How often are episodes of Akathisia Stories released?

Episodes of Akathisia Stories are typically released every 55 days, 3 hours.

When was the first episode of Akathisia Stories?

The first episode of Akathisia Stories was released on Jun 17, 2019.

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