Episode 41 – MS in Their Voices

11/21/22 • 7 min

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New segment – MS in Their Voices – launches

A new segment for our podcast is MS in Their Voices. This segment features the writing of MS authors who will read to you the powerful words of their personal essays, poetry and prose.

Our first featured author is Tamara Sellman. She is the author of INTENTION TREMOR, a book published by MoonPath Press in 2021. This hybrid collection of poems and personal essays chronicles her life in the five years following her MS diagnosis in 2013.

Tamara lives in the Seattle area and writes regularly on MS topics.

INTENTION TREMOR is available wherever books are sold. For information or to order a signed copy, visit www.intentiontremorbook.com.

New segment – MS in Their Voices – launches

A new segment for our podcast is MS in Their Voices. This segment features the writing of MS authors who will read to you the powerful words of their personal essays, poetry and prose.

Tamara lives in the Seattle area and writes regularly on MS topics.

INTENTION TREMOR is available wherever books are sold. For information or to order a signed copy, visit www.intentiontremorbook.com.

Previous Episode

Episode 40 – Louie Preciado and his newly diagnosed perspectives

In this episode, we pull in our friend Louie Preciado to share his perspectives as a person recently diagnosed with Multiple Sclerosis. He was formally diagnosed December 1, 2021.

This diagnosis didn’t stop him from achieving his goal to ride the Texas MS150 in April 2022 and six months later finish the MS Ride to the River. But rising to the challenges of these rides was just part of Louie’s journey in navigating his life with MS.

Join us in our conversation with Louie as he talks honestly about adjusting to living with an unpredictable disease, how his persistence ensured he was prescribed the disease-modifying therapy of his choice, and what he does to stay on track and keep moving forward.

Oh yeah, and see what he has to say about whether we were correct in our assertion in Episode 37 that people with MS (like each of us who have had the disease for 20+ years) are forever newly diagnosed.

Here are a few ways to connect with Louie:

Next Episode

Episode 42 – Check-ins & check-ups go way beyond MS

It’s hard to conceptualize, but Multiple Sclerosis doesn’t hold the market on our health concerns. In fact, we see other health care providers a lot more often than we connect with our neurologist.

For real.

On the surface, these scheduled check-ins often have nothing to do with our chronic disease of the central nervous system. But it doesn’t mean MS isn’t lurking in the background each time we visit our other doctors.

Join us as we contemplate the realities we were dealing with as we prepared for our pending appointments with Jennifer’s gynecologist, Dan’s podiatrist and our shared dentist. You get an inside look into issues like what Jennifer fears the most about each of her doctor visits and why Dan rarely tells new doctors about his MS.

And here is the link to the interesting article we discussed about doctors who avoid treating patients with disabilities: For Many Disabled Patients, the Doctor Is Often Not In