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Tourette's Podcast - S7 - Replay - Exorcism (and Other Bogus Solutions)

S7 - Replay - Exorcism (and Other Bogus Solutions)

08/01/21 • 56 min

1 Listener

Tourette's Podcast

This is a replay of an episode from 2019 that speaks pretty well to the emails we get asking for discussion of alternative "remedies" -- and why the podcast doesn't (or does so with heavy heaps of caution). Here's the writeup that accompanied the original airing:

For Episode 10 of Season 3, we've called a doctor. (Yes, one with TS.) Clay Jones, M.D., is a pediatrician with a frequent byline on the widely read Science-Based Medicine (SBM) blog and is co-host of The Prism Podcast, which explores science, skepticism and the perils of not being an informed or careful seeker of what should be life-improving solutions.

That's kind of an uncomfortable subject to dig into sometimes, particularly within the Tourette community. I've heard from Touretters asking whether I've tried certain alternative "remedies" or "healing" practices, or if I know anyone who has. What's tough about that is we as Touretters don't have a wholesale, go-to, zap-it-away solution presently. And as noted in a previous post here, current insurance protocols don't make it any easier.

That may lead individuals searching for relief wherever hope might be -- which, sadly, is the scenario that swindlers love. That's not to say there's no merit in looking outside the mainstream for a solution that might work for you when all else has failed. Just be careful. Really careful. Ask questions. Ask for the science behind it, and don't accept feelgood anecdotes as a substitute. Some listeners I've heard from are desperate -- the word used -- for relief from complicated TS. Clay, on this episode, discusses his own TS before helping us develop our defenses against peddlers of illegitimate answers.

Clay Jones, M.D., on Science-Based Medicine https://sciencebasedmedicine.org/author/clayjones/

On Twitter https://twitter.com/SBMPediatrics

New Tourette's Podcast website https://www.tourettespodcast.com

Support the show https://www.patreon.com/tourettespodcast

Tourette's Podcast is made possible by the Tourette Association of America, tourette.org. Support!

You can give Tourette’s Podcast individual support at https://www.patreon.com/tourettespodcast

Tourette's Podcast Discussion Group on Facebook

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This is a replay of an episode from 2019 that speaks pretty well to the emails we get asking for discussion of alternative "remedies" -- and why the podcast doesn't (or does so with heavy heaps of caution). Here's the writeup that accompanied the original airing:

For Episode 10 of Season 3, we've called a doctor. (Yes, one with TS.) Clay Jones, M.D., is a pediatrician with a frequent byline on the widely read Science-Based Medicine (SBM) blog and is co-host of The Prism Podcast, which explores science, skepticism and the perils of not being an informed or careful seeker of what should be life-improving solutions.

That's kind of an uncomfortable subject to dig into sometimes, particularly within the Tourette community. I've heard from Touretters asking whether I've tried certain alternative "remedies" or "healing" practices, or if I know anyone who has. What's tough about that is we as Touretters don't have a wholesale, go-to, zap-it-away solution presently. And as noted in a previous post here, current insurance protocols don't make it any easier.

That may lead individuals searching for relief wherever hope might be -- which, sadly, is the scenario that swindlers love. That's not to say there's no merit in looking outside the mainstream for a solution that might work for you when all else has failed. Just be careful. Really careful. Ask questions. Ask for the science behind it, and don't accept feelgood anecdotes as a substitute. Some listeners I've heard from are desperate -- the word used -- for relief from complicated TS. Clay, on this episode, discusses his own TS before helping us develop our defenses against peddlers of illegitimate answers.

Clay Jones, M.D., on Science-Based Medicine https://sciencebasedmedicine.org/author/clayjones/

On Twitter https://twitter.com/SBMPediatrics

New Tourette's Podcast website https://www.tourettespodcast.com

Support the show https://www.patreon.com/tourettespodcast

Tourette's Podcast is made possible by the Tourette Association of America, tourette.org. Support!

You can give Tourette’s Podcast individual support at https://www.patreon.com/tourettespodcast

Tourette's Podcast Discussion Group on Facebook

Previous Episode

undefined - S7 - Episode 10 - Tourrhetoric

S7 - Episode 10 - Tourrhetoric

Tourette. Rhetoric. Tourrhetoric. We're talking on this episode with Sophia Maier, a Touretter who takes extra care and study when it comes to the shapes and tones and incisions we create with our words. This isn't just a "words matter" dialogue -- it's about really caring for the language people use and why, so loaded with implications for empathy, public policy and, maybe most importantly, reflections WITHIN individual communities to allow for criticism and growth. In focus here are Sophia's life as a trans woman, her appreciation for her own tics, coprolalia (never censored here) included, and her recognition that individual challenging factors like TS aren't enough to constitute or capture the full experience of other marginalized or mistreated communities.

We're also remembering the life and work of someone we've lost -- Suzanne Dobson, chief executive of Tourette's Action in the UK.

Sophia Maier: A story of transition

On Instagram| Twitter| [email protected] | [email protected]

Tourette's Podcast is made possible by the Tourette Association of America, tourette.org. Support!

You can give Tourette’s Podcast individual support at https://www.patreon.com/tourettespodcast

Tourette's Podcast Discussion Group on Facebook

Next Episode

undefined - Production Catastrophe - S7E11 Preview

Production Catastrophe - S7E11 Preview

A small preview of the good times awaiting you on Episode 11 of Season 7, out this weekend. It'll be a good one; we're checking back in with Australia. Eyes peeled!

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