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Tourette's Podcast - S2 - Episode 15A - It's Worth Our Effort

S2 - Episode 15A - It's Worth Our Effort

12/14/18 • 58 min

Tourette's Podcast

In the first of a two-part season finale, we've got two special guests -- Tourette Association of America President and CEO Amanda Talty, followed by Matt Capriotti, a scientist whose research is furthering our understanding of TS and its impacts. Talty answers listener questions and talks about changes going at the Tourette Association to better support the TS community of all ages. Capriotti lays out findings from a recent study of life outcomes for people diagnosed with TS. This is massively interesting stuff with loads of points about people, awareness, and where we're headed.

Some Tourette organizations around the world:

https://tourette.org/ 

https://tourette.ca/ 

https://tourette.org.au/ 

http://www.tourettescotland.org/ 

https://www.tourettes-action.org.uk/ 

Study: Long Term Follow-Up of Patients with Tourette's Syndrome https://onlinelibrary.wiley.com/doi/pdf/10.1002/mdc3.12696 

 

 

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In the first of a two-part season finale, we've got two special guests -- Tourette Association of America President and CEO Amanda Talty, followed by Matt Capriotti, a scientist whose research is furthering our understanding of TS and its impacts. Talty answers listener questions and talks about changes going at the Tourette Association to better support the TS community of all ages. Capriotti lays out findings from a recent study of life outcomes for people diagnosed with TS. This is massively interesting stuff with loads of points about people, awareness, and where we're headed.

Some Tourette organizations around the world:

https://tourette.org/ 

https://tourette.ca/ 

https://tourette.org.au/ 

http://www.tourettescotland.org/ 

https://www.tourettes-action.org.uk/ 

Study: Long Term Follow-Up of Patients with Tourette's Syndrome https://onlinelibrary.wiley.com/doi/pdf/10.1002/mdc3.12696 

 

 

Previous Episode

undefined - S2 - Episode 14 - If One More Person Stares At You

S2 - Episode 14 - If One More Person Stares At You

A portrait photographer whose work lights up disorders including Tourette Syndrome; a fiction author who's written a Tourettic protagonist; and listener feedback on Justin's question. 

Photographer AJ Ouellette, "Invisible Illness Project" - https://annajeanouellette.wixsite.com/ajphotography/invisible-illness-project

Janet McLaughlin, "Different" https://absolutelovepublishing.com/different/

Next Episode

undefined - S2- Episode 15B - Take Off Your Gloves (SEASON FINALE)

S2- Episode 15B - Take Off Your Gloves (SEASON FINALE)

SEASON 2 FINALE PART B! We end with one of the most deep and interesting conversations yet. Entrepreneur Niko is the founder of PRML Soul Clothing in Las Vegas and has quite a life story driving him, from his family's international search for TS relief to self-acceptance that tours through the deepest elements of human nature. His experiences roll into personal empowerment and life coaching for others, and it makes for a talk that ends on sharply engaging notes. Season 2 fin!

DISCLAIMER: Tourette's Podcast is not a medical or therapeutic advice show. It's purely about our experiences and what they've made of us. Talk to professionals about what's right for your life.

Video about Niko, "Strength in Adversity" https://www.youtube.com/watch?v=Eqs7YLoWT0o 

PRML Soul https://prmlsoul.com/ 

Niko on Twitter https://twitter.com/nikolomic 

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