Living in the Now: The Journey of My Progressive Quadriplegia as a Musician
03/20/23 • 16 min
In this episode, I shared my medical story, part 2, about how I experienced traumatic experiences with progressive paralysis while staying in the moment and continuing my performance career.
I want to share my stories now, right before my surgery next week, on the podcast to raise awareness of the rare disease and let everyone know that it’s okay not to know the answer or find your diagnosis yet but still be validated for your symptoms.
Living in the present is the ONE thing that helps me through each traumatic experience with paralysis, still enjoy each of my performances, and cherish each performance opportunity.
As a musician podcast, I want to encourage disabled musicians to come out and talk about their experiences with accessibility at work, inclusivity in different work settings - orchestras, chamber music, composition, conducting - of course, not limited to these.; and what do you think are the obstacles for the disabled musicians to shine... list literally can go on. So, if you are a disabled musician and love to talk about your story and experiences, you can reach out to [email protected]; or fill out the contact form on my website amywangviolin.com.
Thank you for listening! Find me on www.instagram.com/thrive_on_wheels/ and more video clips on Thrive x Strive YouTube Channel.
In this episode, I shared my medical story, part 2, about how I experienced traumatic experiences with progressive paralysis while staying in the moment and continuing my performance career.
I want to share my stories now, right before my surgery next week, on the podcast to raise awareness of the rare disease and let everyone know that it’s okay not to know the answer or find your diagnosis yet but still be validated for your symptoms.
Living in the present is the ONE thing that helps me through each traumatic experience with paralysis, still enjoy each of my performances, and cherish each performance opportunity.
As a musician podcast, I want to encourage disabled musicians to come out and talk about their experiences with accessibility at work, inclusivity in different work settings - orchestras, chamber music, composition, conducting - of course, not limited to these.; and what do you think are the obstacles for the disabled musicians to shine... list literally can go on. So, if you are a disabled musician and love to talk about your story and experiences, you can reach out to [email protected]; or fill out the contact form on my website amywangviolin.com.
Thank you for listening! Find me on www.instagram.com/thrive_on_wheels/ and more video clips on Thrive x Strive YouTube Channel.
Previous Episode
"In my Head" or Just Rare? - Zebra Exists
For this episode, I share my medical journey for the last two and half years being absent on my podcast, how I got my diagnosis of Ehlers-Danlos Syndrome and other comorbidities, and what it is like to be a full-time patient advocate for myself.
I hope this will lead us in a new direction as I will bring more guests who are musicians with disabilities. I want to bring awareness to the music community to see this minority group of equally talented people, what issues we have encountered in terms of accessibilities, inclusivity, and how we manage our disability as each individuals to accommodate our music career.
Thank you for listening! Find me on www.instagram.com/thrive_on_wheels/ and more video clips on Thrive x Strive YouTube Channel.
Next Episode
Adrian Anantawan: Disability and Diversity in Classical World
Today’s guest Adrian Anantawan is a Canadian violinist who holds degrees from the Curtis Institute of Music, Yale University, and Harvard Graduate School of Education. He is also the founder of the Music Inclusion Program, which aims to help children with disabilities learn instrumental music with other typical peers.
In this episode, We discuss the diversity needs in the current classical world, technical adaptation in music performance, and how to see strength through our disabilities.
This interview in video format is available on the Thrive x Strive YouTube Channel.
Please leave valuable reviews on the forum you are listening on and share your takeaway from today’s episode. More details will be in the show notes on my website, amywangviolin.com/podcast.
Thank you for listening!
Thank you for listening! Find me on www.instagram.com/thrive_on_wheels/ and more video clips on Thrive x Strive YouTube Channel.
Thrive x Strive Musician Podcast - Living in the Now: The Journey of My Progressive Quadriplegia as a Musician
Transcript
Welcome back to another episode of Thrive x Strive Musician Podcast. This is the host Amy Wang-Hiller. Today we will continue the story of my medical journey.
It has been quite an eventful week. I am trying to batch-record several episodes of the podcast as well as some of the Instagram posts. Because I’m heading off to Rhode Island for my surgery. By the time you hear this episode, I will guess I will probably be recovering in the hospital and out of the OR.
If you like this episode you’ll love
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