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The Squarepeg Podcast - 59. S5, Ep4: Getting an autism diagnosis while doing a PhD in autism and parenting an autistic child

59. S5, Ep4: Getting an autism diagnosis while doing a PhD in autism and parenting an autistic child

01/29/22 • 57 min

The Squarepeg Podcast
Gilly McKeown is an autism researcher in Brisbane, Australia. Originally from Manchester in the UK, she is in her thirties and was diagnosed autistic in 2021, when she was already more than halfway through her PhD in autism. She also has suspected ADHD, and is a single parent to her young autistic and ADHD daughter.

Like many autistic people she has pursued various different courses and degrees, including doing a degree in speech therapy, and at the time we recorded this episode she was just coming to the end of the third year of her PhD, looking at the challenges faced by autistic children and young people in sport.

In our conversation we talk about

➡ Parenting an autistic daughter as an autistic adult, and what’s changed since they’ve both been diagnosed

➡ When is a good time to share a child’s diagnosis with them

➡ The difficulties she faced as an undiagnosed autistic student on an undergraduate course

➡ Her research into access to sport for autistic children and young people

➡ The barriers to inclusivity in sport, including sensory and physical needs - and ableism.

Squarepeg is a podcast in which neurodivergent women, and trans and nonbinary people, explore navigating a neurotypical world and share their insights, challenges and successes.

I hope that these conversations will be inspiring and thought provoking, open you up to new ways of thinking about being neurodivergent, and help you feel more connected to a worldwide community of people with similar experiences.

I’m Amy Richards, and after being diagnosed autistic at the age of 37 I’m now on a mission to learn more about different perspectives and issues around being a neurodivergent adult in a world that feels like it doesn’t quite fit.

EPISODE LINKS:

Gilly’s website: https://neurodivergentresearcher.com/

Twitter: https://twitter.com/gemckeown1

Instagram: https://www.instagram.com/neurodivergent_researcher/

Facebook: https://www.facebook.com/neurodivergentresearcher

If you'd like to connect or get in touch with Squarepeg, you can find me on:

Instagram: https://www.instagram.com/squarepeg.community/

Twitter: https://twitter.com/squarepegautism

Facebook: https://www.facebook.com/squarepegautism/

Or on my website: https://squarepeg.community/

THANK YOU TO MY PATRONS!

A HUGE thank you to my amazing patrons, who support my work on the podcast:

Abi Hunter, Amy Adler, Amy-Beth Mellor, Abigail J Moore, Ben Davies, Benita Borchard-Thierbach, Caroline, Cat Preston, Catrin Green, Cindy Bailey, Corinne Cariad, Danielle Warby, Elise, Jackie Allen, Jeff Goldman, Kate Faust, Katharine Richards, Katherine Lynch, Lilli Simmons, Pete Burke, Rebecca Kemp, Susan Millington, Tree Hall, Una Walkenhorst, Vera Cady, Vicki Temple and Victoria Routledge.

If you’re enjoying the Squarepeg podcast and would like to help me carry on making new episodes, you can become a member of the Squarepeg community on Patreon from just £3 per month: https://www.patreon.com/squarepegpodcast

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Gilly McKeown is an autism researcher in Brisbane, Australia. Originally from Manchester in the UK, she is in her thirties and was diagnosed autistic in 2021, when she was already more than halfway through her PhD in autism. She also has suspected ADHD, and is a single parent to her young autistic and ADHD daughter.

Like many autistic people she has pursued various different courses and degrees, including doing a degree in speech therapy, and at the time we recorded this episode she was just coming to the end of the third year of her PhD, looking at the challenges faced by autistic children and young people in sport.

In our conversation we talk about

➡ Parenting an autistic daughter as an autistic adult, and what’s changed since they’ve both been diagnosed

➡ When is a good time to share a child’s diagnosis with them

➡ The difficulties she faced as an undiagnosed autistic student on an undergraduate course

➡ Her research into access to sport for autistic children and young people

➡ The barriers to inclusivity in sport, including sensory and physical needs - and ableism.

Squarepeg is a podcast in which neurodivergent women, and trans and nonbinary people, explore navigating a neurotypical world and share their insights, challenges and successes.

I hope that these conversations will be inspiring and thought provoking, open you up to new ways of thinking about being neurodivergent, and help you feel more connected to a worldwide community of people with similar experiences.

I’m Amy Richards, and after being diagnosed autistic at the age of 37 I’m now on a mission to learn more about different perspectives and issues around being a neurodivergent adult in a world that feels like it doesn’t quite fit.

EPISODE LINKS:

Gilly’s website: https://neurodivergentresearcher.com/

Twitter: https://twitter.com/gemckeown1

Instagram: https://www.instagram.com/neurodivergent_researcher/

Facebook: https://www.facebook.com/neurodivergentresearcher

If you'd like to connect or get in touch with Squarepeg, you can find me on:

Instagram: https://www.instagram.com/squarepeg.community/

Twitter: https://twitter.com/squarepegautism

Facebook: https://www.facebook.com/squarepegautism/

Or on my website: https://squarepeg.community/

THANK YOU TO MY PATRONS!

A HUGE thank you to my amazing patrons, who support my work on the podcast:

Abi Hunter, Amy Adler, Amy-Beth Mellor, Abigail J Moore, Ben Davies, Benita Borchard-Thierbach, Caroline, Cat Preston, Catrin Green, Cindy Bailey, Corinne Cariad, Danielle Warby, Elise, Jackie Allen, Jeff Goldman, Kate Faust, Katharine Richards, Katherine Lynch, Lilli Simmons, Pete Burke, Rebecca Kemp, Susan Millington, Tree Hall, Una Walkenhorst, Vera Cady, Vicki Temple and Victoria Routledge.

If you’re enjoying the Squarepeg podcast and would like to help me carry on making new episodes, you can become a member of the Squarepeg community on Patreon from just £3 per month: https://www.patreon.com/squarepegpodcast

Previous Episode

undefined - 58. S5, Ep3: Women’s health, intergenerational autism and giving language to the autistic experience

58. S5, Ep3: Women’s health, intergenerational autism and giving language to the autistic experience

Lucy Pearce is an author, artist and publisher from East Cork in Ireland. She is 41, and when she was 37 she, her mother and her daughter were all diagnosed autistic within 6 months of each other.

Lucy is the author of ten non-fiction books for women, focusing on women’s healing, and founded her own publishing company in 2014 to offer support to new women authors whose books are often ignored by the mainstream publishing industry. Not knowing at the time that she was autistic, she has since realised that she and her books attract a neurodivergent audience.

We covered a huge amount in our conversation, including:

➡ Her fight to get her daughter assessed

➡ How her relationship with her mother has changed since they were both diagnosed

➡ Coming to terms with her own needs, and learning to put her wellbeing first

➡ Giving language to the autistic experience

➡ Autistic women and advocating for our physical and mental health

Squarepeg is a podcast in which neurodivergent women, and trans and nonbinary people, explore navigating a neurotypical world and share their insights, challenges and successes.

I hope that these conversations will be inspiring and thought provoking, open you up to new ways of thinking about being neurodivergent, and help you feel more connected to a worldwide community of people with similar experiences.

I’m Amy Richards, and after being diagnosed autistic at the age of 37 I’m now on a mission to learn more about different perspectives and issues around being a neurodivergent adult in a world that feels like it doesn’t quite fit.

EPISODE LINKS:

Lucy's personal website: www.lucyhpearce.com

WomanCraft Publishing: http://www.womancraftpublishing.com/

Instragram: https://www.instagram.com/lucyhpearce/

https://www.instagram.com/womancraft_publishing/

If you'd like to connect or get in touch with Squarepeg, you can find me on:

Instagram: https://www.instagram.com/squarepeg.community/

Twitter: https://twitter.com/squarepegautism

Facebook: https://www.facebook.com/squarepegautism/

Or on my website: https://squarepeg.community/

THANK YOU TO MY PATRONS!

A HUGE thank you to my amazing patrons, who support my work on the podcast:

Abi Hunter, Amy Adler, Amy-Beth Mellor, Abigail J Moore, Ben Davies, Caroline, Cat Preston, Catrin Green, Corinne Cariad, Danielle Warby, Elise, Jackie Allen, Jeff Goldman, Kate Faust, Katharine Richards, Katherine Lynch, Lilli Simmons, Pete Burke, Rebecca Kemp, Susan Millington, Tree Hall, Una Walkenhorst, Vera Cady and Vicki Temple.

If you’re enjoying the Squarepeg podcast and would like to help me carry on making new episodes, you can become a member of the Squarepeg community on Patreon from just £3 per month: https://www.patreon.com/squarepegpodcast

Next Episode

undefined - 60. S5, Ep5: Autism and the intersection of culture, race and gender

60. S5, Ep5: Autism and the intersection of culture, race and gender

Suzanna Chen was born in China and raised in Vancouver, Canada from the age of 9. She was diagnosed autistic in her final year of high school. She is now 18 and an undergraduate student at University College London in the UK.

Standing at the intersection of gender, racial, and ability minorities, she is passionate about advocating for the overlooked intersectionality of social justice issues. She writes for popular student magazine The Tab, and is a staff writer at the youth-led advocacy publication Detester Magazine, a non-profit platform dedicated to amplifying Black, Indigenous, and People of Color youth activism on social and political issues.Alongside the Learn from Autistics platform, Detester are currently collecting research for a book on autistic youth/young adult advocacy for inclusion in all areas of society, with particular emphasis on the intersection of disability and race.

In our conversation we talk about:

➡ Cultural attitudes to autism, disability and mental health in Chinese communities

➡ Sharing her autism diagnosis with her school, teachers and peers in Canada

➡ Coming to terms with her new identity

➡ Accessibility for autistic students

➡ The intersectionality of autism, gender, race and ability

Squarepeg is a podcast in which neurodivergent women, and trans and nonbinary people, explore navigating a neurotypical world and share their insights, challenges and successes.

I hope that these conversations will be inspiring and thought provoking, open you up to new ways of thinking about being neurodivergent, and help you feel more connected to a worldwide community of people with similar experiences.

I’m Amy Richards, and after being diagnosed autistic at the age of 37 I’m now on a mission to learn more about different perspectives and issues around being a neurodivergent adult in a world that feels like it doesn’t quite fit.

EPISODE LINKS:

Suzanna’s Instagram: https://www.instagram.com/suzannachen8/

The survey: https://forms.gle/bR8QChdjxrm19hw78

Detester Magazine’s website: https://detester.org/index.html

https://www.learnfromautistics.com/ (Learn from Autistics - the other organisation involved in the book project)

https://www.instagram.com/p/CSPyvdkpr0S/?utm_source=ig_web_copy_link (Detester’s social media post about the survey)

Suzanna’s autistic freshers article: https://thetab.com/uk/london/2021/10/05/how-im-navigating-or-trying-to-survive-freshers-as-an-autistic-ucl-student-42123

The sunflower lanyard scheme: https://hiddendisabilitiesstore.com/about-hidden-disabilities-sunflower

If you'd like to connect or get in touch with Squarepeg, you can find me on:

Instagram: https://www.instagram.com/squarepeg.community/

Twitter: https://twitter.com/squarepegautism

Facebook: https://www.facebook.com/squarepegautism/

Or on my website: https://squarepeg.community/

THANK YOU TO MY PATRONS!

A HUGE thank you to my amazing patrons, who support my work on the podcast:

Abi Hunter, Amy Adler, Amy-Beth Mellor, Abigail J Moore, Ben Davies, Benita Borchard-Thierbach, Caroline, Cat Preston, Catrin Green, Cindy Bailey, Corinne Cariad, Danielle Warby, Elise, Jackie Allen, Jeff Goldman, Kate Faust, Katharine Richards, Katherine Lynch, Lilli Simmons, Mandy Allen, Pete Burke, Rebecca Kemp, Susan Millington, Tree Hall, Una Walkenhorst, Vera Cady, Vicki Temple and Victoria Routledge.

If you’re enjoying the Squarepeg podcast and would like to help me carry on making new episodes, you can become a member of the Squarepeg community on Patreon from just £3 per month: https://www.patreon.com/squarepegpodcast

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