S4, Ep 1- Guess What We Learned at a Medical Conference?
06/09/22 • 10 min
1 Listener
The Health Advocates share several takeaways from attending a medical conference on rheumatology. One was a “bombshell finding” that chronic pain is now identified as its own disease. Another is that people’s level of anger and social isolation have declined after COVID vaccines became widely available.
“It was really powerful to come to this conference and realize that there's an abundance of research happening on chronic illness and COVID,” says Zoe Rothblatt, Patient Advocate and Community Outreach Manager at Global Healthy Living Foundation. “And we really aren't being left behind. People are studying and are caring.”
Among the highlights in this episode:
1:11: Listeners’ feedback
1:36: Macintosh makes another cameo as we begin season 4 of The Health Advocates
1:57: By a vote of 21-0, experts recommend that the U.S. Food and Drug Administration issue an Emergency Use Authorization for the Novavax vaccine
2:58: “A huge win” for the chronically ill community, says Zoe
3:08: Steven takes his first international trip since the start of the pandemic, a medical conference on rheumatology
3:45: The benefits of attending such conferences
4:28: The best way to be a health advocate is armed with information
4:38: At the conference, “there was a lot of discussion about anxiety and depression for patients, long COVID and its implications for autoimmune patients,” reports Steven
5:38: Bombshell finding: Chronic pain was identified as its own disease
6:28: Other discussions at the conference centered on sexual health, fatigue, diet and exercise, the role of your gut and inflammation overlapping with other conditions
7:09: GHLF research was presented
7:34: GHLF report: levels of anger and social isolation measured in people during the pandemic declined after vaccines became widely available
8:07: “It's very important for the medical providers... to hear the mental health plight that patients go through,” says Steven
8:48: What our hosts Steven and Zoe learned from this episode
Contact Our Hosts
Steven Newmark, Director of Policy at GHLF: [email protected]
Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: [email protected]
We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]
Catch up on all our episodes on our website or on your favorite podcast channel.
See omnystudio.com/listener for privacy information.
The Health Advocates share several takeaways from attending a medical conference on rheumatology. One was a “bombshell finding” that chronic pain is now identified as its own disease. Another is that people’s level of anger and social isolation have declined after COVID vaccines became widely available.
“It was really powerful to come to this conference and realize that there's an abundance of research happening on chronic illness and COVID,” says Zoe Rothblatt, Patient Advocate and Community Outreach Manager at Global Healthy Living Foundation. “And we really aren't being left behind. People are studying and are caring.”
Among the highlights in this episode:
1:11: Listeners’ feedback
1:36: Macintosh makes another cameo as we begin season 4 of The Health Advocates
1:57: By a vote of 21-0, experts recommend that the U.S. Food and Drug Administration issue an Emergency Use Authorization for the Novavax vaccine
2:58: “A huge win” for the chronically ill community, says Zoe
3:08: Steven takes his first international trip since the start of the pandemic, a medical conference on rheumatology
3:45: The benefits of attending such conferences
4:28: The best way to be a health advocate is armed with information
4:38: At the conference, “there was a lot of discussion about anxiety and depression for patients, long COVID and its implications for autoimmune patients,” reports Steven
5:38: Bombshell finding: Chronic pain was identified as its own disease
6:28: Other discussions at the conference centered on sexual health, fatigue, diet and exercise, the role of your gut and inflammation overlapping with other conditions
7:09: GHLF research was presented
7:34: GHLF report: levels of anger and social isolation measured in people during the pandemic declined after vaccines became widely available
8:07: “It's very important for the medical providers... to hear the mental health plight that patients go through,” says Steven
8:48: What our hosts Steven and Zoe learned from this episode
Contact Our Hosts
Steven Newmark, Director of Policy at GHLF: [email protected]
Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: [email protected]
We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]
Catch up on all our episodes on our website or on your favorite podcast channel.
See omnystudio.com/listener for privacy information.
Previous Episode
S3, Ep 21- It's Time to Start Your Wellness Evolution
What is your trilogy of living a healthy life? Is it the body, mind and soul or perhaps exercise, nutrition, and mindset? Whatever it is, we are all part of an evolution of wellness. In this episode, we introduce you to a new GHLF podcast, “Wellness Evolution” with its hosts Angel Tapia and Danielle Ali.
“Your community is such an essential part of your wellness,” says Danielle. “We have an opportunity to bring the community together to discuss mental health, like the physical wellness, and how that can change the experience that we're having as a patient,” adds Angel.
Among the highlights in this episode:
1:12: Listeners’ feedback
1:51: Angel describes the vision for the podcast, Wellness Evolution
2:30: “Our podcast...ties together real stories and challenges that everyone faces,” says Danielle
3:06: Advocacy starts with self-care
3:41: What is “advocacy burnout” and how does it happen
4:39: Zoe describes the “spoon theory” that can help anyone, especially people living with chronic illness, better manage their life
6:31: Tips for self-care
7:45: Danielle describes her portion of Wellness Evolution that focuses on breathing exercises
9:06: How breathing can help us deal with chronic pain, triggers, and emotions
9:37: Angel explains why Danielle’s breathing exercises are an important part of the Wellness evolution podcast
11:25: The book “The Four Agreements” points to doing your best, regardless of how much energy you have
12:18: “The whole point of the (Wellness Evolution) podcast is that we're ever changing. And that wellness is your evolution,” says Danielle
13:55: The power of “patient stories” that fosters advocacy
16:19: The hosts each describe how community and wellness work hand in hand
10:23: What Zoe learned from this episode
Listen here to the "Wellness Evolution" podcast, hosted by Angel and Danielle
Contact Our Hosts
Steven Newmark, Director of Policy at GHLF: [email protected]
Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: [email protected]
We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]
Catch up on all our episodes on our website or on your favorite podcast channel.
See omnystudio.com/listener for privacy information.
Next Episode
S4, Ep 2- New Test: Are You Immune To COVID?
You're vaccinated, boosted, and perhaps even had COVID. But how much protection do you currently have from the virus or one of its variants? An international group of researchers have developed a new blood test to help assess a person’s COVID immunity. While the test is already used in Europe, the FDA is in the process of reviewing the technology.
“If there was an at-home version...I would take it every week. The idea of just knowing and I would feel safe,” says Steven Newmark, Director of Policy at Global Healthy Living Foundation.
Among the highlights in this episode:
1:11: We’ve surpassed 10,000 listens to our podcast
1:24: Listeners’ feedback
1:48: Pfizer and Moderna ask the FDA to authorize COVID vaccine for younger kids
2:25: Kaiser Family Foundation: 18% of parents with kids under five are eager to get them a shot, 27% of parents said they will definitely not get their child vaccinated
3:32: Massachusetts distributing another 2 million free COVID testing kits
4:09: U.S. lifts COVID testing requirements for international travelers returning to the United States
5:36: “Our community always feel safer knowing people have tested negative that they're going to be around and get more nervous if safety measures are dropped,” say Zoe
5:59: GHLF Quick Poll: what activities are immunocompromised people comfortable doing this summer
7:26: Zoe describes getting her antibody levels tested
7:50: T cells are the white blood cells that work alongside a virus fighting antibodies to mount an immune response
7:56: An international group of researchers recently developed a new blood test to help assess COVID immunity
8:28: While the test is already used in Europe, the FDA is in the process of reviewing the technology
9:46: This blood test lets you know how much protection from COVID you have
10:29: “If there was an at-home version...I would take it every week, depending on the cost,” says Steven
11:30: What our hosts Steven and Zoe learned from this episode
Contact Our Hosts
Steven Newmark, Director of Policy at GHLF: [email protected]
Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: [email protected]
We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]
Catch up on all our episodes on our website or on your favorite podcast channel.
See omnystudio.com/listener for privacy information.
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