The FND Podcast
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Top 10 The FND Podcast Episodes
Goodpods has curated a list of the 10 best The FND Podcast episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to The FND Podcast for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite The FND Podcast episode by adding your comments to the episode page.
Uniting FND | Parenting & FND
The FND Podcast
08/19/21 • 62 min
This episode Jake let’s it rip as he talks about parenting and FND we talk about the strategies the struggles and findings of FND and Parenting. Join us on this conversation On Uniting FND
follow him on Instagram on @punkchef41 and his podcast it’s me it’s me it’s fnd & Facebook page FND NEAD & US.
click here for Apple podcast
and for Spotify:
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=AYZJ06XxRvOG2eBbO3bfAg&dl_branch=1
links to check out or talked about :
The song that Jake has suggested we listen to has been added to the Spotify playlist but here is the the link : Kelly Clarkson
People like us:
what on earth did Jake send detty that she’s laughing at? this week it’s football Uk chants
To listen to our song playlist started by our lovely Maggie on Spotify click on the link below
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA
FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
A website for young people and families living with NEAD and neurological symptom
Amazing website with information and links to fnd
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer
https://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks
follow on Instagram @ Meg.jacks_
TicTok: @megjacks
The Fnd Podcast always suggests that you always talk with your gp and or specialist...
The Deb & Detty Show
The FND Podcast
06/08/21 • 54 min
In this episode of the Deb & Detty show we have Jess as our special guest as we talk about Deb and her Dating. When someone asks her out for dinner. What is acceptable what is not especially when it’s your first time in a while, setting boundaries and clearly being able to say no.
To listen to our song playlist on Spotify click on the link below
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA
the laughter group that Deb had mentioned that she will go to you can check out where is the closest in your area. Please consult with your fnd team first to check if it is right for you.
https://www.meetup.com/en-AU/topics/laughter-club/
Blue care offer home assistance which Deb uses here is the link for more information
https://www.bluecare.org.au/home-care
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
if you are interested in FND Merchandise to support FND Australia support services by Friends of FND
The Caregiver Hangout
The FND Podcast
06/06/21 • 25 min
Welcome to the new segment where we are here to help support the caregivers who look after us FNDers. As much as it is difficult going through having this condition for most of us who have family and friends who become our permanent carers it is just as difficult if not heartbreaking to go through. With this in mind we hope this segment can help support provide resources and direct you to places of support encouragement and give you friendly voices to listen to, that you’re not alone on this journey. Rod is the son of Deb from the Deb and Detty show he is the caregiver and also now a support worker. Aiming to provide assistance where he can.
To listen to Rods My FND Reality : his Caregiving story click below
https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodney
Carer Gateway is an excellent resource provided by the federal government to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :
https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway
For more information on Carer Gateway
https://www.carergateway.gov.au/
their phone number is 1800 422 737
also join their Facebook page to keep updated and their support groups.
Planning for emergencies especially when it happens to yourself you need to plan for and ensure that your loved one is still looked after. For an emergency care plan and card look to this link below :
https://www.carergateway.gov.au/help-advice/planning
For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link below
https://www.facebook.com/groups/588224248292396
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
To listen to our song playlist on Spotify click on the link below
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA
The JJ Segment
The FND Podcast
06/03/21 • 34 min
On today’s segment on the JJ segment Jess talks about the importance of preparing ahead for upcoming events/ outings and spending your energy prioritising your time. A little bit of self care and advocating for yourself with FND. follow Jess on Instagram @functionallyjess for more FND information.
Follow Jess on Instagram @ functionallyjess.
Some Links to Check out
FND and PACING
https://www.fndaction.org.uk/pacing/
The Spoon Theory is in relation to energy and how ,ice energy you have to use in a day, when you’re unwell. Check it out
https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
if you are interested in FND Merchandise to support FND Australia support services by Friends of FND
The JJ segment | Lets talk Tremors
The FND Podcast
05/28/21 • 61 min
On this Episode Jess talks about Tremors different types what she experiences what her triggers are the causes and what effects her FNd. Amounts different things with FND including seizures, Drop Attacks, being mindful to others when talking about life with FND and more.
Follow Jess on Instagram @ functionallyjess.
Functional Tremors :
https://www.neurosymptoms.org/functional-tremor/4594357998
Non epileptic seizures
https://www.fndaction.org.uk/non-epileptic-attack-disorder/
Drop attack
https://www.neurosymptoms.org/drop-attacks/4594358006
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
if you are interested in FND Merchandise to support FND Australia support services by Friends of FND
My FND Reality | Talking to Elicia
The FND Podcast
05/15/21 • 55 min
To follow this Amazing creative FNDer here are her handles:
instagram: @naught_3, @eliciatate
tiktok: naught_3
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
The Deb & Detty Show
The FND Podcast
04/27/21 • 30 min
The Red Cross offers a service which calls people on a daily basis to ensure they are okay every day; if the call isn’t answered Red Cross will take action to make sure you’re okay. This can be a temporary service too. It’s called Telecross
https://www.redcross.org.au/get-help/community-services/telecross
Personal mobile alarms are another good way to keep safe. When you have emergency you activate the alarm it contacts your emergency contacts and nowadays even alerts your whereabouts and sometimes emergency services.
smartphones with fall detection features also are much like personal Mobile alarms :
https://www.medicalalertadvice.com/articles/apple-watch-fall-detection/
For those with Telstra: priority assist is available for you if it is necessary that you have an available phone line 24/7 and you have a medical condition
and last but not least there are laughter groups! We will be hearing more from Deb how it went however if you’re keen to find out where one is in your area . Apparently good for your mind and emotionally aswell. There is such a thing as laughter yoga.
https://www.meetup.com/en-AU/topics/laughter-club/
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
if you are interested in FND Merchandise to support FND Australia support services by Friends of FND
My FND Reality | Talking with Jess
The FND Podcast
04/24/21 • 52 min
To Purchase FND Shirts Hoodies and Bags go to website :
https://imprintmerch.com.au/collections/lets-have-the-chat
Proceeds go to FND Australia support services.
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
The Deb & Detty Show
The FND Podcast
04/20/21 • 36 min
To access the episode that we talked about Leannes My FND reality please click on this link
https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-leanne
If you are experiencing feelings of depression hopelessness pain, if you notice changes in your sleep or eating and thoughts , if you notice a change in the usual activities that you are interested in or usually do or have thoughts of suicide please talk to someone , notify your gp, your medical team let someone know. Reach out to someone.
In Australia:
Lifeline: 13 11 14
Beyond blue: 1300 22 4636
Headspace
Immediate danger : 000
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
Youtube video: What is Functional Neurological Condition By Dr. Phil Parker. A great thorough explanation of FND and the updates of FND.
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
FND Action: FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND Action provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
if you are interested in FND Merchandise to support FND Australia support services by Friends of FND
03/24/22 • 71 min
FND awareness day 2022 #voices4FND we talk on the Panel to discuss what we don’t usually talk about amoungst ourselves. How does the hormones affect us? Peri menopause , Menopause in general? Chrissie Deb Jess and myself explore this topic in depth. Follow Jess @functionallyjess Chrissie @Chrissiejbutler Thankyou all of you for participating and Maggie hopefully you’ll join in the next panel so we can hear your views too
Articles/links to check out:
Eostrogen levels and the Central Nervous System:
https://academic.oup.com/edrv/article/20/3/279/2530824
Shaping of the Female Human Brain by Sex HormonesnA Review
https://www.karger.com/Article/FullText/507083
Sec Hormones and the Brain
https://www.dana.org/article/hormones/
The Role of the Menstrul Cycle in Chronic disorders in the Central Nervous System
https://link.springer.com/chapter/10.1007/978-1-4757-2576-6_4
What other FNDers have mentioned about this :
“I have noticed I have more symptoms and seizures when I'm due on my period”
“I actually mentioned to Chrissie the other day that I actually got diagnose with FND and Early Menopause at the same time during this year. I get fatigued easier and a lot of hot flushes. For me. I have loss of periods and can affect my moods. I guess and definitely my sleeping patterns have gotten worse. Not much sleep. And I'm 33.”
“Yes every month when my hormones fluctuate I have a flare just before or while I am on my period. I want to chat to my doctor about options, but I don’t know if a hysterectomy or I think it’s called a Oblation? Would even help. Would love to know if they would.”
“My symptoms are worse during my period but I also am a lot more tired during that time and tiredness seems to be my main exacerbated”
“I’m actually slated for a hysterectomy to help with this. My cycle has always been awful but my FND occurred shortly after going through a few rounds of IVF. Hormones are definitely linked.”
“@thefndpodcast great topic! It’s actually more complex than just hormones, due to the relationship and influences of these chemicals in our emotions mental processes and our bodies physiology. Hormones can also be influences by our environment and our genetics. I would be happy to discuss this in detail during our next community conversation or in your podcast: MD Functional Disorder healing ally”
“This is a great post and interestingly I had this conversation in rehab. I went into surgical menopause5 years ago. Since I’ve had FND it’s been hard to figure out if the increase in “hot flashes” is hormone related. I only need oestrogen and after speaking with Gina Team it was suggested my HRT be increased. I’ve had the increase for a few weeks now and have noticed a difference. However, I have also had new medications started for some of my FND symptoms. I would suggest if someone isn’t sure to get a blood test done to check hormone levels - be interesting to see the outcome”
“My FND symptoms increase 2-3 days before auntie flow visits. My fatigue is the worst. Usually the day is a bit of a write off. Just can’t concentrate on anything”
“Since really young I’ve always had a drop attack (and seizures when older and experiencing more FNDy things) around my periods. I knew it wasn’t always just because of the pain ( From good ol Ends). I was in but the change in hormones affecting my nervous system. Makes total sense and I’m really looking forward to this discussion.”
“I was just talking to a fellow FNDer about how bad my symptoms were the other day. The worst side I went in for treatment in May. I go my period later that day. Usually I have a huge increase in fatigue as well so that usually tips me off but this time I didn’t notice the fatigue as much”
“Feel like I've been hit by a bus every period these past few months, they were bad enough before but I feel like exhausted with them now”
“I unfortunately have a flare up every month. It usually starts around 3-5 days before my period begins and can sometimes last up to a week from then to calm down. It is very difficult to cope with it happening every month. If anyone has any suggestions to help, that would be great! I have considered an implant but haven’t found enough information to know how helpful it would be. “
“I have the implant in. I’ll be honest I never put two and two together. But now I have the implant in my periods are a hit and miss. i’ve not had one since June when I had it put in but maybe this is something I can track and let you guys know”
“I’ve noticed a massive difference when I”m due my monthly all my symptoms are so much worse. I wasn’t like talk...
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FAQ
How many episodes does The FND Podcast have?
The FND Podcast currently has 171 episodes available.
What topics does The FND Podcast cover?
The podcast is about Health & Fitness, Alternative Health, Mental Health and Podcasts.
What is the most popular episode on The FND Podcast?
The episode title 'The FND Podcast| Inform the Doctors Campaign' is the most popular.
What is the average episode length on The FND Podcast?
The average episode length on The FND Podcast is 43 minutes.
How often are episodes of The FND Podcast released?
Episodes of The FND Podcast are typically released every 1 day, 7 hours.
When was the first episode of The FND Podcast?
The first episode of The FND Podcast was released on Feb 18, 2021.
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