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Strokecast: The Stroke Podcast for Survivors, Clinicians, Care Partners, and all our Brain Injury Colleagues - Ep 097 -- A Stroke in her 20s became a  stroke of luck for Maddi Niebanck

Ep 097 -- A Stroke in her 20s became a stroke of luck for Maddi Niebanck

02/11/20 • 39 min

Strokecast: The Stroke Podcast for Survivors, Clinicians, Care Partners, and all our Brain Injury Colleagues

I love the stroke survivor community on Instagram. So many survivors share their victories, their struggles, and their lives there, it really shows we are not alone.

It’s also where I met Maddi Niebanck (@MaddiStrokeOfLuck). She regularly does live broadcasts there and includes guests from time-to-time. After one of those broadcasts, I knew I wanted to talk with her on the show.

Maddi had her stroke a few days before I had mine. We were both going through rehab thousands of miles away from each other at the same time.

And now she has a new book coming out. We talk about that and more in this episode.

Bio

Madeline Niebanck graduated from Georgetown University in Washington, DC, in May of 2017. A few days later she went to the hospital for a planned surgery to treat an Arteriovenous Malformation (AVM). An untreated AVM can result in a serious stroke. During a pre-surgery procedure, though, that AVM gave way and Maddi suffered a stroke.

While going through recovery, Maddi wrote her first book, Fashion Fwd: How Today’s Culture Shapes Tomorrow’s Fashion. Readers loved the book, but especially connected with Maddi’s story of stroke recovery.

That response inspired her to write her second book, Fast Fwd: The Fully Recovered Mindset. It will be available in April, 2020.

Trailer for Fast Fwd Hack of the Week

Try an ice bath to deal with tone and spasticity. Plunging your and or arm into a pitcher of ice water may relax the tone or spasticity you are experiencing and allow you to get more out of the exercises you do to recover function.

Of course, it’s always a good idea to check with your therapist or doctor before trying something like this, but it may be just the thing to open that hand.

Links

Maddi on Instagram

https://www.instagram.com/maddistrokeofluck/

Maddi’s Website

https://MaddiStrokeofLuck.com

Maddi on Medium

https://medium.com/@maddiniebanck

Maddi on LinkedIn

https://www.linkedin.com/in/madeline-niebanck-b909a695/

Fashion Fwd: How Today’s Culture Shapes Tomorrows Fashion

https://www.amazon.com/gp/product/164137134X /ref=dbs_a_def_rwt_hsch_vapi_taft_p1_i0

Fast Fwd: The Fully Recovered Mindset on indiGoGo

https://www.indiegogo.com/projects/fast-fwd-by-madeline-niebanck#/

New Degree Press

https://www.newdegreepress.com/

Where do we go from here?

Strokecast is the stroke podcast where a Gen X stroke survivor explores rehab, recovery, the frontiers of neuroscience and one-handed banana peeling by helping stroke survivors, caregivers, medical providers and stroke industry affiliates connect and share their stories.

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I love the stroke survivor community on Instagram. So many survivors share their victories, their struggles, and their lives there, it really shows we are not alone.

It’s also where I met Maddi Niebanck (@MaddiStrokeOfLuck). She regularly does live broadcasts there and includes guests from time-to-time. After one of those broadcasts, I knew I wanted to talk with her on the show.

Maddi had her stroke a few days before I had mine. We were both going through rehab thousands of miles away from each other at the same time.

And now she has a new book coming out. We talk about that and more in this episode.

Bio

Madeline Niebanck graduated from Georgetown University in Washington, DC, in May of 2017. A few days later she went to the hospital for a planned surgery to treat an Arteriovenous Malformation (AVM). An untreated AVM can result in a serious stroke. During a pre-surgery procedure, though, that AVM gave way and Maddi suffered a stroke.

While going through recovery, Maddi wrote her first book, Fashion Fwd: How Today’s Culture Shapes Tomorrow’s Fashion. Readers loved the book, but especially connected with Maddi’s story of stroke recovery.

That response inspired her to write her second book, Fast Fwd: The Fully Recovered Mindset. It will be available in April, 2020.

Trailer for Fast Fwd Hack of the Week

Try an ice bath to deal with tone and spasticity. Plunging your and or arm into a pitcher of ice water may relax the tone or spasticity you are experiencing and allow you to get more out of the exercises you do to recover function.

Of course, it’s always a good idea to check with your therapist or doctor before trying something like this, but it may be just the thing to open that hand.

Links

Maddi on Instagram

https://www.instagram.com/maddistrokeofluck/

Maddi’s Website

https://MaddiStrokeofLuck.com

Maddi on Medium

https://medium.com/@maddiniebanck

Maddi on LinkedIn

https://www.linkedin.com/in/madeline-niebanck-b909a695/

Fashion Fwd: How Today’s Culture Shapes Tomorrows Fashion

https://www.amazon.com/gp/product/164137134X /ref=dbs_a_def_rwt_hsch_vapi_taft_p1_i0

Fast Fwd: The Fully Recovered Mindset on indiGoGo

https://www.indiegogo.com/projects/fast-fwd-by-madeline-niebanck#/

New Degree Press

https://www.newdegreepress.com/

Where do we go from here?

Strokecast is the stroke podcast where a Gen X stroke survivor explores rehab, recovery, the frontiers of neuroscience and one-handed banana peeling by helping stroke survivors, caregivers, medical providers and stroke industry affiliates connect and share their stories.

Previous Episode

undefined - Ep 096 -- Write a Memoir with Christine H. Lee

Ep 096 -- Write a Memoir with Christine H. Lee

I’m typing this on January 1, but whenever you read this, it is the first day of the next year of your life, and that’s a great time to start sharing your story.

As a stroke survivor, survivor of some other acute or chronic trauma, care giver, professional, or just someone who has lived some life, you have a story to tell. You have experiences to share. You’ve worked through some emotional stuff. Or you haven’ worked through it, but it’s sill there.

And maybe you’ve thought about writing a memoir.

Christine H. Lee joined us last year to talk about her memoir, Tell Me Everything You Don’t Remember. She is an author, teacher, and stroke survivor. Today, she’s back to help you start writing your own memoir.

7 Lessons in this Episode
  • An autobiography is about a person. A memoir is about a person’s experience.
  • Understand the roles of author, character, and narrator.
  • There is universality in the particular.
  • The Oxford Comma is awesome.
  • Get a cohort.
  • We are about more than stroke.
  • Keep writing.
Bio

Christine H. Lee is the author of a memoir (TELL ME EVERYTHING YOU DON’T REMEMBER), which was featured in Self magazine, Time, The New York Times, and NPR’s Weekend Edition with Scott Simon. Her short fiction and essays have appeared in ZYZZYVA, Guernica, The Rumpus, The New York Times, and BuzzFeed, among other publications. She also has an urban farm–you can read about her farm exploits at Backyard Politics. Her novel is forthcoming from Ecco / Harper Collins.

Born in New York City, Christine earned her undergraduate degree at UC Berkeley and her MFA at Mills College. She has been awarded a residency at Hedgebrook, and her pieces have been nominated for a Pushcart Prize and placed in competitions such as the Poets and Writers’ Magazine Writers Exchange Contest, Glimmer Train Fiction Open, and others. She is currently a Distinguished Visiting Writer at Saint Mary’s College of California’s MFA program and an Editor at The Rumpus.

If you would like to order a signed copy of TELL ME EVERYTHING YOU DON’T REMEMBER, you may order it from East Bay Booksellers and specify in the notes section that you would like a signed copy (or two or three) and any customization (if it should be addressed to a particular person). They will then fulfill it with signature. And you would be supporting a local bookstore, which warms Christine’s heart.

Trailer for Tell Me Everything You Don’t Remember Oxford Comma

Consider these two sentences:

  1. At the support group, we learned about the main causes of stroke, kittens, and Barb’s muffins.
  2. At the support group, we learned about the main causes of stroke, kittens and Barb’s muffins.

The first sentence says that we learned about 3 things:

  • The main causes of stroke
  • Kittens
  • Barb’s muffins

The second sentence says that we learned about the main causes of stroke. Those causes are:

  • Kittens
  • Barb’s muffins

The words are the same. The difference is that comma after kittens. That comma is called the Oxford Comma, and it’s somewhat controversial.

Many folks feel you should only use it if it clarifies the sentence. Otherwise you should leave it out.

I’m of the school of thought that we should always use it when writing a sentence with three or more things in a list like that.

There have even been lawsuits where the decision came down to whether the comma was in the written law or not.

Here is the Wikipedia article with more informati...

Next Episode

undefined - Ep 098 -- COVID-19 and Stroke

Ep 098 -- COVID-19 and Stroke

This situation the world is facing with COVID-19 (novel coronavirus) is unlike anything we’ve seen for a 100 years. In just a few months, it has put the entire world economy on pause as hundreds of thousands of people test positive for this deadly disease.

What does this mean for stroke survivors? Are we at higher risk?

Neuro-Physiatrist Dr. Kim Middleton joins us to answer that question and more in this episode of Strokecast.

Bio

Dr. Kimberly Middleton completed medical school at the University of California, Los Angeles David Geffen School of Medicine before doing her residency at the University of Washington.

She is a member of the American Academy of Physical Medicine and Rehabilitation (AAPMR).

Dr. Middleton was one of the doctors who cared for me during the month I lived at the hospital following my stroke. I continue to see her on a regular basis for my Botox/Dysport injections to treat my tone and spasticity.

You can learn more about Dr. Middleton’s background here: https://www.swedish.org/swedish-physicians/profile.aspx?name=kimberley+w+middleton&id=160439

10 Tips to Protect Yourself From COVID-19
  1. Wash your hands again. Yes, again.
  2. Don’t touch your face.
  3. Continue taking your meds.
  4. Practice physical social distancing, but continue to connect online.
  5. Disinfect your home and deliveries you receive. Cleaning is good home OT.
  6. Eat healthful meals to keep your nutrition up.
  7. Consider taking supplements like vitamin C.
  8. Keep your body strong with exercise.
  9. Prioritize sleep.
  10. Go deep into that home exercise program your PT or OT gave you.
Handwashing One Handed

Washing our hands is the cheapest and probably most effective way to minimize the chances of catching COVID-19 and hundreds of other conditions. But how do you do it effectively when hemiparesis leaves you with one functional hand?

One way is to use your unaffected hand to wash your affected one. Sure, that one’s probably not as dirty since it’s mainly been hanging around as just a fist, but the act of washing it will wash and scrub the washer. Plus it’s a great opportunity to get some more finger stretches in.

Here are some examples of other techniques.

Links Dr. Kimberly Middleton at Swedish https://www.swedish.org/swedish-physicians/profile.aspx?name=kimberley+w+middleton&id=160439 COVID-19 Info from Swedish Medical Center https://www.swedish.org/patient-visitor-info/coronavirus-advisory WHO on the COVID-19 Pandemic https://www.who.int/emergencies/diseases/novel-coronavirus-2019 NIH on the COVID-19 Pandemic https://www.nih.gov/health-information/coronavirus CDC on the COVID-19 Pandemic https://www.cdc.gov/coronavirus/2019-nCoV/index.html Stroke.org home exercises https://www.stroke.org/en/help-and-support/resource-library/post-stroke-exercise-videos COVID-19 on the AHA https://www.stroke.org/en/about-us/coronavirus-covid-19-resources Stroke.Org Interview with Dr. Eduardo Sanchez https://www.youtube.com/watch?v=VW7zNAz9gA0&feature=emb_logo Home Exercise from Disability Horizons https://disabilityhorizons.com/2016/10/top-10-exercises-disabled-people/ Home Exercises from silver Sneakers https://www.silversneakers.com/blog/total-body-chair-workout-for-older-adults/ Sitting Exercises from Britain’s NHS https://www.nhs.uk/live-well/exercise/sitting-exercises/ Where do we go from here?
  • Share this episode with others or post about it to Facebook, LinkedIn, Twitter, or Instagram with the link http://Strokecast.com/covid-19
  • Check out the links above to keep your exercise going.
  • Stay safe.
  • Don’t get best...get better

Strokecast is the stroke podcast where a Gen X stroke survivor explores rehab, re...

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