Something Shiny: ADHD!

Why do we push ourselves so hard, hyperfocus, are ready to do 80 things at once, then crash and run out of steam before we ever move the needle? How much does this boom/bust cycle harm us, our relationships, and our wellbeing? David and Isabelle discuss how, as neurodivergent folx, we can't see our own energy bars and how this gets us into trouble. They also describe a game changing idea, of making their energy bars observable, that has helped them both actually see and attend to their needs well for the first time--and why they were compelled to build this into a Something Shiny toolkit (coming soon!).
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The things we use to help ourselves and reclaim our time doesn’t actually give us more resources, it can take resources away from us. David, for example, feels very successful when he avoids the YouTube video reel hole, scrolling from a sports ball thing to a weird deck someone built...he didn’t notice the spoons were going, he took up energy, he sat too long, he didn’t get something done. Sometimes the things and cycles we get into what we get into when we’re avoiding things, don’t help us. This connects to a big course launch coming soon from Something Shiny! A big aha between David and Isabelle has been recognizing that their energy bars are invisible to them, and with their shorter time horizons, Isabelle assumes that the energy she has is forever, and then halfway through taking on so many tasks sucks. She runs out of all her energy and momentum before she knows it, and it’s hyperfocus and intensity and crash. It hurts her relationships, her life, her health, so how can we actually see our energy bar? Especially in times like this where demands are many and slots are few. David points out that the way they check on their energy bar is odd; you see that your gas tank is full; “I got gas!” And half full “I got gas!” And quarter full “I got gas!” We ask if there’s gas, not if it’s enough, or if it matches what we’re trying to do. We push past this point without knowing it. David and Isabelle crisped themselves during recording this course without even knowing it. David lost the gas to eat, to observe the world. This is why David and Isabelle took time off this summer: a step by step guide to learn how to read and respond to your energy bar that makes it so your life gets easier. It’s fusing together what David and Isabelle know about how neurospicy brains work and then actually building the skills that help. It has deeply altered Isabelle’s sense of how she feels about herself on any given day. It’s the closest she’s coming to what she expects of herself day to day and responds to her needs. Picture the gas tank, but you’re in a car with your whole family, and your whole family has to get to the emergency room, she does not have time to get to the gas station and she needs to get the whole family there STAT. Isabelle’s self-neglect is real. The term “Burnout” is so interesting, coming from Industrial Revolution terms, that when a machine ran out of resources would run out of fuel, the machine destroys itself because it runs out of fuel. It’s not just that we’re running on fumes, it’s that when we’re running on fumes we have destroyed ourselves, our relationships. Isabelle, in her attempt to get to the emergency room, she gets angry, impatient, taking in any request, and then she is engaging in toxic behavior patterns, asking the world to STOP, but she’s hurting herself. David names that you’re not just hurting yourself, you’re hurting other people, you’re leaking out. When we’re done leaking, we don’t know what we’ve done to hurt other people and we’re hurting—both things are true. David thinks about his behavioral roots: the first thing you do to make change is you make your behavior observable. It’s really hard to actually observe energy, talking about the endings and beginnings we can't see, it makes different parts of back to school or our burnout observable. It’s observable so we can change some of these things: did you need a break? Would it have been better to be late to this? Where do we get those messages about what we’re supposed to do. Even as the term accountable (like “potential”) can make your spine curl, because it's been leveled at us anticipating mistakes we couldn’t, how can we be accountable for our own breaks because no one is going to give them to us. By the time Isabelle is running on fumes, that is not the time she has any bandwidth to think her way out of her feelings, and that's not a strength she has anyway, she can’t tell herself it’s going to be okay, by nervous system does not work this way, she has to take an action to change her internal state, but she’s so crispy to think that she needs a break—the idea of thinking she needs a break and then taking a break is 6 steps too ...

Why do some of us minimize and reduce the number of choices while others seek excitement and novelty? Why do some of us need everything listed out while others need to just try something blindly? The secret? Different types of ADHD and different ways our ADHD shows up in different environments! David and Isabelle are joined by Bobby and Noah, who also have ADHD, and talk about things like trying to leave the house, deciding what to eat, and why their accommodations all look so different.
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Transitions and choices are hard. Isabelle and David are joined by Isabelle’s husband, Bobby, and David’s friend and fellow clinician, Noah, both of whom also have ADHD to talk about different types of ADHD. We don’t remember all the stuff we have to do to leave the house. Isabelle describes a detailed whiteboard and just how long it took to get into the habit of not forgetting things like lip balm. David puts everything into his bag at night. Isabelle has to do a one-touch rule. Noah’s and Bobby’s work bag are empty. Bobby’s really into minimizing things, which David points out is a wonderful intervention, especially for inattentive type— decision fatigue. Noah does this for going out, always ordering a blackened chicken sandwich. How exhausting it is to make decisions all the time. Noah’s experience in a blind restaurant. Bobby’s picky eating is connected to something ADHD-related—hypersensitivity around texture. David’s experience of this is big after decades of vegetarianism, experiencing the texture of meat for the first time (bacon and hot dogs are great. Other meat for him? Not so much). Isabelle references the Paradox of Choice book (TLDR) and describes the phenomena of randomly remembering facts she’s read, but struggling to remember what she read on command. Recognizing that when there is an overabundance of choice, we think we made the wrong one (or are left more disatisfied) because we always think we could’ve picked better. This relates to Isabelle’s reaction to Tinder as something that makes her nauseous thinking about it: too many choices. Same with old school diner menus. Or Cheesecake Factory menus. David agrees. Isabelle describes novelty seeking with food, whereas Bobby wants the same thing. David went to Superdawg and got everything on the menu he wanted because he couldn’t make a decision. Noah would go there, deliberate what to get for 20 minutes, and leave with nothing. Why do we all sound so different and yet similar? We’re talking about the distinctions between inattentive and impulsive ADHD types. What about combined type? Depends on the mastery of the environment: the more mastery, the more impulsive we can be, the less mastery, the more inattentive.

What is Superdawg? If you’re in and around Chicago, you’re welcome to check it out. If you’re not, it’s still a fun place to look into. From the bottom of our pure beefy hearts.

Paradox of Choice - book by Barry Schwartz (TLDR for Isabelle but an interesting summary appears on wikipedia).

DEFINITIONS

ADHD types explained through how we order at a restaurant:

• inattentive type: struggles to figure out what to order, stares at menu (accommodations: always orders the same thing or same type of thing, asking the server for their choice/having the chef or someone else choose for you)
• impulsive type: orders three different entrees (to try them all), or the novel/strange seeming thing on the menu (accommodations: finding new places to eat or food bars where you can throw on whatever you want in that moment)
• combination type: see above and experience BOTH, often depending on your level of mastery/comfort (more mastery in the environment, the more your impulsivity shows up).

Decision fatigue: the more decisions we make, the more our quality of decisions (or ability to do so well) deteriorates. Too many decisions can lead to an overwhelming feeling, burnout and poor decisions. Avoiding the complexity of decisions, can be an adaptive tool for individuals to preserve brain power for more important decisions, especially when the inattentive-type ADHD experience is loud. Here's an article on how to notice when it's happening to you.

Hypersensitivity around texture: some textures are going to make people feel more yucky inside than you would think they could. Often times it can be really helpful to honor these sensitivities, and not tr...

David and Isabelle navigated the treacherous landscape of surviving and being the lucky ones; are we trash? Are we seahorses? From defeating the enemy that is loose glitter, to brain regions resembling animals, to why it hurts when we beat up on ourselves, tackling the pain and looking at ourselves with intention.

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Isabelle was told she’s a talker, but she’s also a listener. There’s this thing Isabelle borrows from mindfulness practices and therapy ideas: what you resist persists, what you go with flows, go for the ride. She had this moment the other day, at what point is it going to be bore her? She is easily bored, she is initially excited about and then she loses interest in it, she can be hyper fixated on the thing and then it passes, and then why is it that she’s never been bored in a session—it’s never happened: when will it not be exciting or curious? It’s not the same thing as it being easy or effortless, challenge does not mean something isn’t fun, and maybe it’s one of her favorite things to do. David names: it’s amazing to be put into an environment where it’s dangerous if you don’t pay attention to listening, attending to the patterns and themes in the group—it’s almost what I’ve done in my entire life. Find ways to honor ourselves. I want someone to be able to look at me and respectfully out himself more often, and we don’t see the models are dysfunction. “This kid having ADHD and being in jail” is part of the story. Until everything is shiny! Glitter! Except loose glitter which is Isabelle’s worst nightmare. She learned, the hard way, that loose glitter found it’s way into her world, the moment you try to clean it up, it’s “this glitter will be here always.” The glitter’s arch nemesis is tape—you’re welcome everybody. You still have to sit there for hours, but it makes the cleanup satisfying. David has had the thought of rooms with too much glitter and thought: burn this room. Isabelle names that this is different when there is epoxy style glitter in a floor or a tile, or in a shoe—she loves how there’s a lot of glittery shoes, but the glitter is contained in a plastic shell. And there’s something amazing about the shiny but it needs to stay shiny and not be embedded in anyone’s skin. Isabelle's friend pointed this out: David has a pleasant voice, and Isabelle, back in high school, was on speech team, and she competed in radio speaking, where you essentially you get to be in a room separate from everybody and record into a microphone. That got her over her fear of public speaking, only they used tapes and tape recorders. Who knew? These little things, not exactly fate v. Free will—isn’t it interesting the things that had to come into play were miraculous or exponentially improbable. David thinks his survival in life is pretty lucky. Like LeDerick said, we’re statistically survivors, how did we get there? David is sometimes looking at a river and it’s all pristine and there’s this piece of trash attached to a log not getting sucked down the river, and that's him, he’s a piece of trash, and he got saved. He was powerless being swept by the current—a lot of us were—whether we found partners, or friends, or jobs or something. The odds of David getting an advanced degree, being in a counseling practice, and having the same diagnosis. There was a moment in their office, it was Isabelle’s first or second month, and we were talking about structure and stuff, and it went brain-seahorse. And David went “maybe...maybe...” and everyone else just saw, it’s going to go somewhere else. To finish the thought: once seahorses have partnered, upon the first rays of sunlight entering the ocean, they will do a synchronized dance to each other. Speaking of seahorses: the hippocampus is the part of the brain is responsible for episodic memory, ability to time stamp when something has happened in our life, seal it with a declarative context—and to connect it to David's trash metaphor, how a seahorse gets around: it attaches to kelp or seaweed and it floats on the currents, and it mates for life, and takes care of it’s babies, and it does not make sense, and it exists nonetheless. Isabelle doesn’t think we’re trash on a river, we’re the seahorses. David names that 50% of people with ADHD don’t graduate on time. Isabelle names: a lot seahorses don’t survive, statistically there’s so many don’t make it. David names there’s a lot of compassion and meaning to what we see—Isabelle is doing a lot of shaming to the trash. David is not trying to say we’re mistakes, but he doesn’t think the system sees value in us, but we have to see value in ourselves. You see me, I see you, grab my hand, we’ll do things together, we are trying to survive. David is never going to judge survival. Isabelle quotes Carl Rogers, when the potato sprouts, it’s doesn’t matter if it’s in...

David asks: what about brushing your teeth and things that don’t have immediate gratification, necessarily, but you have to do them over and over again? How do you motivate yourself to do them? It’s preventative-you don’t see what you save, you don’t know what Past You did for Future You when you’ve brushed your teeth. David’s answer is to outsource a lot of decisions that he doesn’t want to make to ritual, and the world of pain is part of everything we have to do. He just does it because it’s the routine (like getting up) even though it is so hard, so very hard, to do the things we don’t want to do. The fact that we can feel this much pain helps us want to prevent other’s pain, makes us think creatively. David might be willing to bet that a lot of technology and innovation that makes things more efficient and helps us skip the boring tedious parts is perhaps invented by folx with ADHD. For folx with ADHD, you are tested in fire all the time, and it does things—there is negative stuff (sucks experiencing rejection, sucks making mistakes, sucks not being perfect, sucks being found out)—but our ability to think outside the box because we’ve had to struggle our whole life is something he doesn’t want to surrender. Isabelle names that it feels that David saying that expressed compassion to the part of her that didn’t get that before. She thinks about how in trauma work there’s this mythology around the trauma making you stronger, but also—you could’ve been great without the trauma, thank you. Isabelle didn’t really give herself credit for the strengths, and often assigns the strengths and things that she has achieved to good fortune or luck, while taking full ownership of the blame, shame, and mistake-making parts. It has taken her a long time to not just jump straight to “I got so lucky!” And recognize that maybe she had something to do it with—and wonders if she’s the only one? David names that this is so relatable—it is so hard to acknowledge that our strengths are coming from the same place our vulnerabilities are. It’s so easy to say we got lucky or it was chance, because we don’t get to refine the skills to know we did more than get away with something. We don’t fit in the Normal Rockwell image of how things appear and so we don’t think about doing things the same way others do, either. David names how a part of him would be ashamed about getting ready for a school presentation in ten minutes—instead of practicing every night for twenty minutes, like he thought he should. Never mind that he still got an A, was able to speak with great energy, that the fact his tone of voice was a little more engaging—all of those things are ADHD. David is just thinking he got away with it, because he’s not counting all the times he thought about doing the thing and then didn’t, because they were ‘dumb anxious thoughts,’ never mind that he got it done and got a good grade, he was still a fraud because he was different. Now he can look at it in a balanced way, it’s all ingredients to who we are. In the real world, you’re not in trouble if you get it done too fast. Isabelle convinced herself people would think she cheated if she was honest about how she did something. We encounter so much pain, we don’t need any help seeing the fault of our actions, David is really good at that—but we all need someone to remind us of what we’re really good at. Folx with ADHD are used to calling out ADHD behavior when something is not going right; getting use to calling out ADHD behavior when things that are happening that are excellent, and would not be happening if not for a person’s ADHD. There’s so much pain, let’s honor the great things. Isabelle thinks about how she was at the park with her kid on a playdate and had a snack bag and thermos with tea. She proceeded to leave this tea everywhere and put the tea everywhere, on slides, wherever, forgetting she had it, circling back, and meanwhile, her kid is playing and pushing their amazing boundaries. She always thinks someone has come in and moved something, like the realization in the film A Beautiful Mind that someone’s hallucinations are so real to them they feel like reality. David calls Isabelle on calling this a delusion: somebody did move it. It was you. And you don’t remember it because you didn’t make a memory because you were busy doing ten other things. The whole thing is accurate. Isabelle laughs so hard and thinks she might need to get that tattooed on her: “Somebody did move it, and it was you,” Memento-style (see below). Isabelle notices that over time she is much more open and discloses more quickly that she has ADHD, in an attempt to normalize it and make it a safe conversation for the other person, too. And she notices that in the past she would maybe make it more of an apology or an explanation—d...

David mentions that he is sitting on the floor, because he still hasn’t gotten a desk. Isabelle supports the floor sitting and prefers it herself for her sessions, or standing. The two agree on swivel chairs and some of the squeaky and smooth qualities of swinging or rocking, and Isabelle mentions that 5 S’s, or the hacks that are supposed to help lull an infant to sleep (5 S’s) —what is it about water that Isabelle finds so soothing on a sensory level? Isabelle’s theory is that it provides a deep consistent pressure, and a lot of sensation and stimulation, the almost-weightless feeling— a set of physical sensations. David validates this: cold water is a neurological stimulant, and the sense of buoyancy may not be comforting for everyone, but soothing for you. David mentions Wim Hof and his method that uses very cold water/showers and breathing methods to give a bit of a reset. David points out that water may also be helpful because it provides bilateral stimulation and an element of risk taking (you have to keep swimming or moving or you’ll drown), and Isabelle confirms that for her that pressure and buoyancy and the sensation of being pulled down (like Twilight Zone Tower of Terror). Bilateral stimulation is when you stimulate first one side of the brain, then the other. It has been known to help with trauma processing (for example, what’s used in a method called EMDR, or Eye Movement Desensitization and Reprocessing), and added stimulation can be comforting alongside cognitive processing. Owning the idea that it might be comforting for you, not for everyone. There is a spectrum, for example, some people love a weighted blanket, some people cannot tolerate it. Make sure it’s a weighted blanket that is right for your age and weight range (because there are limits)—David almost threw his arm out throwing a weighted blanket. David tried it for three nights and then got too hot. Isabelle and Bobby’s blanket doubles up when one of them tosses their large blanket onto the other during the night. Isabelle talks about all the sensory rooms she wishes existed, and how awesome certain sensory toys are, and they agree about ball pits and how it feels. She mentions the City Museum of St. Louis (see below) which is filled with incredible sensory experiences—Isabelle had an experience where (as a six foot tall person) in a ball pit, she thought there might not be a bottom. David helped prompt Isabelle to remember what she was talking about by repeating back what her tangents were. Isabelle names that she has not idea where she learned something but can also picture it—David names that there are anchor memories. Isabelle notes that conversations with neurotypical friends—she slows down, tries to stay on topic, tries not to interrupt, which she notices she does not do with her neurodivergent friends. David never understood what masking was until he met David Flink and became involved with Project Eye to Eye. David learned through the trainings and collaborations with that organization that masking (pretending to be neurotypical) was chipping away at his authenticity. His usual rate of talking is 1.5x—and it takes energy to slow down, both Isabelle and David agree it’s exhausting to slow down. David describes how when everyone was talking, this awesome guy named Grady was throwing a ball against the wall, and then he shared this racquetball experience with each other. No one in that room dared to challenge someone to say they weren’t paying attention, regardless of what they were doing—it was such an empowering and incredible space. Isabelle remarks on how amazing this sounds and names that throughout this whole conversation, she has been fidgeting with a My Little Pony plastic tail—and how it would feel to hold up that fidget toy with pride. The importance of explaining to people why we need our sensory toys and fidgets and just how much it matters to unmask and set new models for people.

5 S’s (for soothing babies, developed by Dr. Harvey Karp who wrote the book The Happiest Baby on the Block) but as David and Isabelle name, these can be great sensory ideas for folx in any age or stage)

-swaddle (think of a weighted vest/tight shirt/weighted blanket/body sack/body sock)

-holding baby on their side or stomach (lying down in that position)

-shush (imitating white noise) (noise machine or ambient music)

-swing (or rock)

-suck (pacifier or thumb)

Twilight Zone Tower of Terror

City ...