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SCI Care: What Really Matters

SCI Care: What Really Matters

International Spinal Cord Society (ISCoS)

A podcast series brought to you by the International Spinal Cord Society (ISCoS). With each episode, we will speak with experts from all over the world to discuss various aspects of spinal cord injury including etiology, prevention and care, providing valuable insights regarding the most up to date information for those providing care for the spinal cord injured. Collaboration is the key and at the heart of what ISCoS does. The podcast series will be an extension of ISCoS, philosophy to make “Life after a spinal cord injury happy, meaningful and worth living..”
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Top 10 SCI Care: What Really Matters Episodes

Goodpods has curated a list of the 10 best SCI Care: What Really Matters episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to SCI Care: What Really Matters for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite SCI Care: What Really Matters episode by adding your comments to the episode page.

SCI Care: What Really Matters - The Future of the Journal: Spinal Cord

The Future of the Journal: Spinal Cord

SCI Care: What Really Matters

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06/17/24 • 9 min

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Welcome to the future of Spinal Cord.

In this episode, our hosts Dr. Fehlings and Professor Anthony S. Burns welcome us to a new era of ISCoS’s flagship journal, Spinal Cord.

Conceptualised in 1963, Spinal Cord is a specialised, international journal that publishes peer-reviewed manuscripts, to showcase powerful medicinal insights and support those within the SCI community.

Appearing monthly, both online and in print, Spinal Cord invites contributions on spinal cord anatomy, physiology, injury and associated disease management, and importantly, improving the quality of life for those living with a spinal cord injury.

As this unique, interdisciplinary journal progresses into its next chapter, Dr. Fehlings and Professor Anthony S. Burns have initiated an open call for Associate Editors to join their team of esteemed doctors, researchers and practitioners in bringing this journal to life.

To apply for this role, please visit: Call for Application: Associate Editors of Spinal Cord | Spinal Cord (nature.com)

Or to learn more about Spinal Cord, please visit: Journal Information | Spinal Cord (nature.com)

SCI Care Guidelines

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.
This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn
The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".
Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.
We invite you to:
ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 20

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.

If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.

This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn

The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".

Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.
We invite you to:
ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024

Contact us directly with any questions or comments at [email protected]

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In this episode, guest host Dr Kimberley Monden explores the world of SCI clinical research and rehabilitation medicine, exploring patient perspectives and life before, during, and after participation in SCI clinical research with Dr Trumbower, an associate professor in the Department of Physical Medicine and Rehabilitation at Harvard Medical School and Director of the spinal cord injury division at Spalding Rehab Hospital, and the director of the Inspire Lab at Spaulding Rehab Hospital.
We also have a participant, Arthur Holt, who will share his experience with Dr Trumbower of the ANEUVO Exostim trial that took place at Spalding Rehabilitation Hospital.

Listen as Arthur shares his first-hand account of his journey at Spaulding Rehab Hospital, where he reclaimed vital hand functions, as well as the importance of having the right mindset when it comes to rehabilitation.

Dr. Trumbower concludes their conversation by sharing how much potential this study, and others like it, have for the spinal cord injury community whilst also emphasising how much more work there is to be done.
We hope you enjoy this enlightening episode of the podcast!

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.

If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.

This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn

The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".

Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.
We invite you to:
ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024

Contact us directly with any questions or comments at [email protected]

bookmark
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share episode

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This webinar, in partnership with Wellspect, aims to raise awareness of these issues. Originally recorded as a webinar, we decided to release it as a podcast as well. We hope you enjoy listening.
This episode will cover bladder and bowel management during the different stages of a woman's life, overcoming barriers to break the taboo in discussing such issues, the challenges and risks of becoming a mother with a spinal cord injury and the importance of a good bladder and bowel routine will have on your self-confidence all leading to empowerment and a better quality of life.

To do this, host Ami Kivi, Global Product Manager Urology, Wellspect invites Dr Maria Gyhagen, Associate Professor in Obstetrics and Gynecology at Sahlgrenska University at Gothenburg University and Inge Eriks-Hoogland, head of the outpatient department of the Swiss Paraplegic Centre, to shed light on this pressing women's health issue. Their groundbreaking research and advocacy work reveal the widespread impact of these disorders and pioneer new paths in care and empowerment for affected individuals.

The prevalence of pelvic floor disorders, such as incontinence and genital prolapse, severely impacts quality of life. Dr Gyhagen's research focuses on the functional dynamics of the pelvic floor, especially post-childbirth, emphasising its multifaceted effects, including compromised self-esteem and sexual dysfunction. She stresses the importance of early diagnosis and targeted support, which are often overlooked in healthcare.

Obstetric Anal Sphincter Injury Calculator https://www.sphinctercalc.com/

UR-CHOICE Pelvic Floor Disorders Risk Calculator: https://riskcalc.org/UR_CHOICE/

Dr Eriks-Hoogland's expertise in spinal cord injuries highlights the unique challenges faced by spinal cord-injured women during pregnancy and childbirth. The podcast highlights heightened risks and the necessity for informed choices and collaborative clinical approaches, ensuring active participation in health decisions. Standardised guidelines in gynaecological care play a vital role in empowering patients and improving care protocols, advocating for a more predictive healthcare approach and addressing societal taboos surrounding pelvic floor disorders through greater awareness and dialogue.

SCI Care Guidelines http

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.

If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.

This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn

The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".

Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.
We invite you to:
ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024

Contact us directly with any questions or comments at [email protected]

bookmark
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share episode

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This episode follows on from our previous webinar "Exploring Sexual Dysfunction," hosted by Francescapaola Polli, Enterology Product Manager for Wellspect in Italy.

Returning guests Dr Marcalee Alexander and Dr Gianluca Sampogna provide invaluable guidance on overcoming sexual challenges and achieving fulfilling sexual lives after spinal cord injury.

From discussing the role of sex toys in enhancing pleasure to emphasising the importance of bladder and bowel management for sexual activity, Drs Alexander and Sampogna offer practical advice and explore misconceptions surrounding sexual function post-injury.

Listeners will gain insights into various aspects, including the impact of accidents during sexual activity, strategies for adolescents navigating sexuality, and fertility considerations for both men and women with spinal cord injuries.
Resources
Everlasting Love:
A series is brought to you by Sustain Our Abilities with funding from the Paralyzed Veterans of American Education and Training Foundation.https://vimeo.com/everlastinglove

Sexual Sustainability: A guide to having a great sex life with a spinal cord disorder by Dr Marcalee Alexander

https://www.amazon.co.uk/Sexual-Sustainability-having-spinal-disorder/dp/B08L4969TV
Italian Edition
https://www.amazon.c

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.

If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.

This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn

The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".

Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.
We invite you to:
ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024

Contact us directly with any questions or comments at [email protected]

bookmark
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share episode
SCI Care: What Really Matters - Little Leaks to Big Wins: Paediatric Bladder and Bowel Management
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12/19/23 • 26 min

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In this episode of the podcast, in partnership with Wellspect, host Lisa Beauchemin talks to her colleagues Katherine Fernandez and Dr Lawrence (Larry) Vogel about bladder and bowel management in paediatric spinal cord dysfunction.
They discuss physical health alongside social health and lifestyle factors that need to be considered, especially when working with children and teenagers. Being a teenager is challenging enough without the disruption of incontinence. Ultimately, the team aims to help their patients achieve a high quality of life and strive for independence as early as possible.
Dr Vogel also highlights the importance of anticipatory guidance, letting patients and their families know what will happen as their child ages and develops.
We hope you enjoy this episode of the podcast.

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.

If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.

This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn

The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".

Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.
We invite you to:
ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024

Contact us directly with any questions or comments at [email protected]

bookmark
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share episode

Send us a text

In this bonus episode, we talk to an SCI grant recipient, Kamrunnaher Koly, from Bangladesh, about her work as a researcher, the new work-care rehabilitation pathway for spinal cord patients in Bangladesh, and how she found her first experience at the ISCoS conference.

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.

If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.

This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn

The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".

Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.
We invite you to:
ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024

Contact us directly with any questions or comments at [email protected]

bookmark
plus icon
share episode

Send us a text

In this bonus episode, we sit down for a conversation with Kathy Zebracki, a clinical psychologist from Shriners Children's, Chicago, and Julian Taylor from Toledo's National Paraplegic Hospital in Spain to learn all about the first-ever paediatric spinal cord injury Special Interest Group (SIG) for ISCoS.
Kathy and Julian reveal their ambitions of gathering an international team of experts to focus on this niche medical field, emphasising the need for a multidisciplinary approach.

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.

If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.

This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn

The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".

Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.
We invite you to:
ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024

Contact us directly with any questions or comments at [email protected]

bookmark
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share episode
SCI Care: What Really Matters - In conversation with the Praxis team at ISCoS 2023
play

10/27/23 • 8 min

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In this bonus episode, we spoke with Bill Barrable, Vanessa Noonan, John Chernesky and Barry Monroe of Praxis as they discuss the 62nd ISCoS scientific meeting and the role of their organisation in setting best practices for managing spinal cord injury and rehabilitation.
They also discuss the challenges and strategies of involving those with lived experience in planning and participation programs, particularly in regions with prevalent SCI.
We hope you enjoy listening.

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.

If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.

This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn

The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".

Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.
We invite you to:
ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024

Contact us directly with any questions or comments at [email protected]

bookmark
plus icon
share episode

Send us a text

In this bonus episode, Eric Weertz and Geraldine Jacquemin discuss the work of the ISCOS Disaster Committee and the unique difficulties faced in conflict settings that they support, including developing the ISCoS SCI toolkit.

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.

If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.

This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn

The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".

Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.
We invite you to:
ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024

Contact us directly with any questions or comments at [email protected]

bookmark
plus icon
share episode
SCI Care: What Really Matters - The ISCoS 2024 Antwerp Annual Scientific Meeting
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07/08/24 • 4 min

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As anticipation builds for the 63rd Annual Meeting of the International Spinal Cord Society, Professor Micheal Fehlings shares his excitement with Dr Stolwijk-Swuste, a Rehabilitation specialist and Associate Professor at De Hoogstraat Revalidatie.

Our hosts invite the spinal cord community to this unique event, located in a charming and inspiring venue: A Room with a Zoo at Flanders Meeting & Convention Center, Antwerp.

This 3 day event unites leading experts in spinal cord injury care and research to share groundbreaking advancements and innovative solutions in the pursuit of bettering the lives of individuals living with, or caring for those with a spinal cord injury.

To learn more about our interactive programme and to register your place, please visit: https://iscosmeetings2024.org

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.

If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.

This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn

The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".

Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.
We invite you to:
ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024

Contact us directly with any questions or comments at [email protected]

bookmark
plus icon
share episode

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FAQ

How many episodes does SCI Care: What Really Matters have?

SCI Care: What Really Matters currently has 74 episodes available.

What topics does SCI Care: What Really Matters cover?

The podcast is about Health & Fitness, Physiotherapy, Occupational Therapy, Medicine and Podcasts.

What is the most popular episode on SCI Care: What Really Matters?

The episode title '2nd ISCoS International Regional Symposium : Sharing world knowledge for practical advancements' is the most popular.

What is the average episode length on SCI Care: What Really Matters?

The average episode length on SCI Care: What Really Matters is 25 minutes.

How often are episodes of SCI Care: What Really Matters released?

Episodes of SCI Care: What Really Matters are typically released every 3 days, 16 hours.

When was the first episode of SCI Care: What Really Matters?

The first episode of SCI Care: What Really Matters was released on Jun 23, 2020.

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