My Story: LIving with an Undiagnosed Rare Disease and Winning The Genetic Lottery

Explicit content warning

04/20/24 • 88 min

Introducing the inaugural episode of Rare Matters Podcast, where host Mikey Stone courageously delves into his personal odyssey living with an undiagnosed rare disease. In this groundbreaking debut, Mikey offers an intimate glimpse into his profound medical journey, unraveling the complexities of his diagnosis quest like never before. Through candid storytelling and heartfelt introspection, Mikey lays the foundation for what promises to be a compelling exploration of the rare disease landscape. Join us as we embark on a journey of resilience, advocacy, and unwavering determination, setting the stage for future episodes where we'll delve deeper into the lives of those navigating the rarities of existence.

Next Episode

Exploring Medical Gaslighting and Self Advocacy

Join us for the second episode of Rare Matters, where we delve into the crucial yet often overlooked topic of medical gaslighting. In this episode, we uncover what medical gaslighting entails, shed light on its subtle manifestations, and equip you with the tools to identify and combat it. Through insightful discussion and a compelling personal narrative, we explore the journey of self-advocacy, empowering listeners to navigate the healthcare system with confidence and resilience. Tune in to discover the power of advocacy and reclaim your voice in your healthcare journey.