Rare Horizons
Share4Rare - Fundación Weber
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Top 10 Rare Horizons Episodes
Goodpods has curated a list of the 10 best Rare Horizons episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to Rare Horizons for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite Rare Horizons episode by adding your comments to the episode page.
The path to diagnosis | Rare Horizons
Rare Horizons
03/12/24 • 19 min
Unlike more recurrent diseases, most rare diseases do not exhibit clearly defined clinical manifestations, making it difficult to obtain an accurate diagnosis. About 80% of these diseases are of genetic origin, underscoring the importance of identifying the specific gene or genes that may be mutated. In this episode, we discuss how technology and professional networks can help improve and speed up the diagnosis of rare diseases, and the efforts being made to ensure early and equal diagnosis for everyone.
If you have a rare disease or are caring for someone affected by one, consider getting registered in Share4Rare: https://www.share4rare.org/registration/s4r
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Undiagnosed: navigating uncertainty | Rare Horizons
Rare Horizons
05/14/24 • 25 min
Not having a diagnosis delays the possibility of receiving appropriate and effective treatments. It also causes uncertainty and fear, which negatively influences the mental health of patients and families. Luckily, new scientific disciplines, techniques, networks and tools are emerging that shorten the waiting times more and more. Let's explore this further in today's episode.
If you have a rare disease or are a caregiver, consider getting registered in Share4Rare: https://www.share4rare.org/registration/s4r
Hosted on Acast. See acast.com/privacy for more information.
Biobanks: Research allies | Rare Horizons
Rare Horizons
11/22/24 • 35 min
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FAQ
How many episodes does Rare Horizons have?
Rare Horizons currently has 3 episodes available.
What topics does Rare Horizons cover?
The podcast is about Health & Fitness, Research, Medicine, Podcasts, Science, Disease and Health.
What is the most popular episode on Rare Horizons?
The episode title 'Undiagnosed: navigating uncertainty | Rare Horizons' is the most popular.
What is the average episode length on Rare Horizons?
The average episode length on Rare Horizons is 27 minutes.
How often are episodes of Rare Horizons released?
Episodes of Rare Horizons are typically released every 192 days.
When was the first episode of Rare Horizons?
The first episode of Rare Horizons was released on Mar 12, 2024.
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