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PSC Mami

PSC Mami

Monika Aldarondo

PSC Mami: Stories at the intersection of PSC and parenthood. You are diagnosed with a rare, incurable disease. You are young. You had a vision for your future. You wanted kids. But can you? As a parent you want the best for your kids, but then they are diagnosed with PSC, what does their future hold? People who have been there talk about how a diagnosis of Primary Sclerosing Cholangitis, a rare autoimmune disease, reshaped their vision of their lives and parenthood.
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Top 10 PSC Mami Episodes

Goodpods has curated a list of the 10 best PSC Mami episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to PSC Mami for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite PSC Mami episode by adding your comments to the episode page.

Serbrina and her husband survived a 10-year waitlist for her life saving transplant made necessary by the progression of Primary Sclerosing Cholangitis. While her feelings about motherhood at this stage in her life are complex, she holds possibility for that and all areas of her life. She discusses the shifting considerations, emotions, and frames of mind that PSC brought to her lived experience and how a successful transplant has transformed how she approaches time and living life.

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PSC Mami - Amanda

Amanda

PSC Mami

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10/29/19 • 32 min

Amanda was diagnosed with Primary Sclerosing Cholangitis at 23 and one-year into her marriage. A little over a year later, she received a living donor transplant. She shares how her diagnosis and transplant forced her to rethink what her expectations were as she has forged a new life path with flexibility, grief, gratitude, community, redemption and even a little anger. She shares what it’s like to be expecting her first child any day.

Contact PSC Mami Podcast to share your story at pscmami.com/stories

Amanda mentions the Transplant Pregnancy Registry

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Jessica’s early and intense introduction to life saving procedures means many discussions about IVF, surrogacy, and adoption with her husband, family and friends. She listens to herself and her body and chooses a path, that while not easy, lives up to her goal of living life without regrets.

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PSC Mami - Bill

Bill

PSC Mami

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02/12/20 • 35 min

Bill discusses going through the process of getting his young son’s Ulcerative Colitis and Primary Sclerosing Cholangitis diagnosis, a diagnosis that is incredibly rare in young children. He speaks to what it meant to find a fellow parent of a young PSCer to support him through the emotional challenges and navigating the medical world of pediatric PSC.

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PSC Mami - Stuart

Stuart

PSC Mami

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01/23/22 • 31 min

Stuart makes life changes after PSC diagnosis to spend more time with his family Stuart made a conscious decision to make time for his children and spouse when his Primary Sclerosing Cholangitis diagnosis focused him on what was important in his life. He shares about what it’s like to be the financial provider for his family, the essential role his wife plays as his support and how he chooses to take advantage of life experiences and keep positive for his three children.
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PSC Mami - Laura

Laura

PSC Mami

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12/09/21 • 57 min

Laura realigned her life after her diagnosis of Primary Sclerosing Cholangitis. She refocused on family, friends, fun and her dream of becoming an author. Her writing served many purposes at different times, including as long letters to her three daughters, to escape from illness and as a tool for healing. Post-liver transplant, she and her family have focused on healing from the journey to and through transplant and intentionally creating new joyful memories together. You can find Laura’s memoirs, fiction and cookbook at her website: www.laurabradbury.com

Share your story at the intersection of PSC and parenthood at pscmami.com/stories

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PSC Mami - Jennifer

Jennifer

PSC Mami

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11/15/21 • 59 min

Jennifer’s experience with organ transplantation comes full circle from agreeing to donate a loved ones organs to being the recipient of part of her husband’s liver through a living donor transplant. She shares her struggles with end-stage autoimmune

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PSC Mami - Nicola

Nicola

PSC Mami

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10/25/21 • 55 min

Nicola finds meaning in advocacy after her transplant, post-transplant pregnancy, and surrogacy journey. Family is central to Nicola’s journey. Her younger brother was her donor for her life saving transplant in her 20s. She now focuses on raising her two young sons and creating joyful memories with them. She also works to instill empathy and generosity in them through her personal and family advocacy in the Primary Sclerosing Cholangitis and organ transplant communities.

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PSC Mami - Alicia

Alicia

PSC Mami

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11/18/20 • 36 min

Alicia finds purpose in her toddler as her PSC progresses Alicia was diagnosed with PSC almost 20 years ago. Her PSC has been relatively quiet until this last year. Alicia shares how she deals with this new reality and cares for her 22-month old daughter.

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PSC Mami - Nika and Roberto
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07/09/20 • 50 min

Nika and Roberto share what it was like to discuss the risks and benefits of different options for becoming parents. Her diagnoses of Primary Sclerosing Cholangitis and Crohn's caused them to think carefully about pregnancy and parenting. They then share

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FAQ

How many episodes does PSC Mami have?

PSC Mami currently has 18 episodes available.

What topics does PSC Mami cover?

The podcast is about Mom, Stories, Health & Fitness, Autoimmune, Interview, Motherhood, Medicine, Podcasts, Disease, Health and Parenthood.

What is the most popular episode on PSC Mami?

The episode title 'Stuart' is the most popular.

What is the average episode length on PSC Mami?

The average episode length on PSC Mami is 42 minutes.

How often are episodes of PSC Mami released?

Episodes of PSC Mami are typically released every 36 days, 14 hours.

When was the first episode of PSC Mami?

The first episode of PSC Mami was released on Nov 16, 2017.

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