Episode 50: Jen Cueva - Pulmonary Hypertension

11/20/24 • 31 min

Jen shares her journey with pulmonary arterial hypertension (PAH), a condition marked by high blood pressure in the lungs, which severely affects her daily life. She recounts her initial symptoms, eventual diagnosis, and the physical and mental challenges that followed. As a former hospice nurse and caregiver, Jen reflects on her transition to patient, detailing the emotional impact of her increasing dependence on others. She is now an advocate for those with PAH and rare diseases, working to raise awareness and connect people to clinical trials and support networks.

The song that Jen selected is The Climb by Miley Cyrus.

The song that Jen selected is The Climb by Miley Cyrus.

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Episode 49: Kerri Mauer - Myasthenia Gravis

Kerri lives with Myasthenia Gravis (MG), a rare autoimmune condition that has turned her life upside down. Through profound reflections, she shares the multifaceted impact of MG on her life, touching on themes of resilience, loss, and gratitude. Kerri describes the strength required to live with an “invisible disability” and the journey to reframe her life around moments of beauty and simplicity. This discussion with Kerri feels like a journey in itself, filled with wisdom and warmth.

The song that Kerri chose is Both Sides Now by Joni Mitchell.

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Episode 51: Andrea Sinclair - Polyglandular Autoimmune Syndrome

Andrea shares her journey with Polyglandular Autoimmune Syndrome (PAS) and its complex challenges. Her story spans a life shaped by resilience and a relentless pursuit of better health outcomes, offering invaluable insights into living with rare, chronic conditions. Andrea speaks candidly about her experience, including her battles with diabetes, adrenal complications, and the transformative impact of receiving islet cell transplants. Her optimism and strength shine as she recounts triumphs over immense challenges.

The song that Andrea chose is Higher Ground by Stevie Wonder.