MS Living Well: Key Info from Multiple Sclerosis Experts
Barry Singer, MD
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Goodpods has curated a list of the 10 best MS Living Well: Key Info from Multiple Sclerosis Experts episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to MS Living Well: Key Info from Multiple Sclerosis Experts for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite MS Living Well: Key Info from Multiple Sclerosis Experts episode by adding your comments to the episode page.
MS Care Equity: Empowering Underserved Communities
MS Living Well: Key Info from Multiple Sclerosis Experts
09/12/23 • 35 min
Health equity represents the pursuit of the highest level of well-being for all individuals, ensuring that every person, regardless of their background, enjoys a fair and just opportunity to achieve their optimal health.
Disparities exist within the multiple sclerosis community. It's a stark reality that Black individuals with MS face an increased risk of disability, while Black women are disproportionately affected by this condition compared to their White counterparts based on a Kaiser study. Additionally, Hispanic patients often contend with an earlier onset of MS, occurring 3-5 years before it typically manifests in White individuals. Both social determinants of health and genetic factors play significant roles in shaping outcomes for these communities. Strategies to enhance MS care in underserved communities include increasing the availability of healthcare providers, providing crucial translation services, and addressing biases both within the healthcare team and the communities they serve.
Rural MS patients experience unique challenges, often encountering barriers in accessing specialized care. Connecting lower-income patients to vital resources, including medications and MRI scans, is essential. Innovative approaches like telehealth and improved transportation options can bridge the gap for those with higher levels of disability. As an MS community, we can all advocate to ensure that everyone regardless of their circumstances receives the comprehensive care that they deserve.
Barrry Singer MD, Director of The MS Center for Innovations in Care, interviews:
Lilyana Amezcua MD, Associate Professor of Neurology, University of Southern California. She spearheaded the collaborative research consortium Alliance for Research in Hispanic MS (ARHMS) and serves as principal investigator. Dr. Amezcua serves on numerous national and international committees including as an elected member to the NMSS National Medical Advisory Committee and NIH NINDS Health Disparities Strategic Steering Committee.
Jacqueline Rosenthal MD, MS neurologist at the Shepherd Center's Andrew C. Carlos Multiple Sclerosis Institute in Atlanta. Dr. Rosenthal completed her medical degree from Morehouse School of Medicine in Atlanta, neurology residency at Madigan Army Medical Center in Tacoma and neuroimmunology fellowship at Emory University School of Medicine.
Inside Angle: Partnering with your Neurologist
MS Living Well: Key Info from Multiple Sclerosis Experts
10/24/19 • 34 min
Barry Singer MD, Director of The MS Center of Innovations in Care at Missouri Baptist Medical Center interviews:
Flavia Nelson MD, Associate Professor of Neurology, Director Multiple Sclerosis Division at the University of Minnesota in Minneapolis. She completed her residency and multiple sclerosis fellowship at the University of Texas Health Science Center in Houston, Texas. Dr. Nelson has served as Chair of the Department of Defense Panel for Multiple Sclerosis Research Program, committee member on Consortium of MS Centers MRI Guidelines Committee and Chair of International Advisory Board on Brain Atrophy and MS (2016).
Timothy West MD, MS Neurologist, Rocky Mountain Multiple Sclerosis Clinic in Salt Lake City, Utah. Dr. West completed medical school at the University of California-San Francisco (UCSF) and fulfilled his residency in neurology at UCSF. He has had extensive experience and research in the area of MS, including at the Cleveland Clinic Lou Ruvo Center for Brain Health in Nevada, the Sansum Clinic in California, and the UCSF MS Center in California.
Visit: mslivingwell.org & ICanWithMS.org
Pregnancy and Multiple Sclerosis
MS Living Well: Key Info from Multiple Sclerosis Experts
11/07/19 • 32 min
Multiple sclerosis experts share valuable information about pregnancy and multiple sclerosis. The podcast covers pregnancy planning for a healthy baby while minimizing risk of multiple sclerosis disease activity. Topics of unplanned pregnancies, birth control and role of high-risk obstetricians addressed. Infertility and the role of in vitro fertilization in woman with MS covered. Genetic risks to child and pros and cons of nursing addressed. Information for men who want to father children reviewed.
Barry Singer MD, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center in St. Louis, interviews:
Claire Riley, MD is the Director of the Multiple Sclerosis Center at Columbia University Irving Medical Center and an Assistant Professor of Neurology.
Amy Perrin Ross, APN, MSN, CNRN, MSCN is a board certified neuroscience nurse and the Neuroscience Program Coordinator at Loyola University Medical Center. She is a former President of the International Organization of Multiple Sclerosis Nurses.
Visit MSLivingWell.org
Cannabis & Multiple Sclerosis
MS Living Well: Key Info from Multiple Sclerosis Experts
10/10/19 • 30 min
Barry Singer, MD, Director of The MS Center for Innovations in Care, interviews:
Allen Bowling, M.D., Ph.D. , MS neurologist at the Colorado Neurological Institute
Jacob Sosnoff, Ph.D., Associate Professor in Department of Kinesiology and Community Health, University of Illinois at Urbana-Champaign
To learn more, mslivingwell.org. To share your story, check out ICanWithMS.org.
Vision & Multiple Sclerosis
MS Living Well: Key Info from Multiple Sclerosis Experts
05/10/22 • 37 min
Multiple sclerosis frequently causes visual impairment. 70% of people living with the disease can develop optic neuritis at some point and often the first sign of MS. The symptoms, medical evaluation, treatment and prognosis of optic neuritis are conveyed. Besides multiple sclerosis, other causes are discussed including MOG antibody-associated disease (MOGAD) and neuromyelitis (NMO).
Double vision and shaky (or jumpy) vision are other concerning visual symptoms for people with MS. The reason for these eye movement abnormalities and detailed treatment options are covered. Experts share the latest advancements in vision research for those living with multiple sclerosis. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:
Dr. Anneke van der Walt is an Associate Professor of Neurology at Monash University in Melbourne, Australia. She is the head of the MS and Neuro-ophthalmology Research Group. She completed her undergraduate work in South Africa and completed her neurology training and PhD at the University of Melbourne. She is also the Chief Operating Officer of MSBase Foundation.
Dr. Tariq Bhatti is a neuro-ophthalmologist currently at Kaiser Permanente in Northern California. He completed his neuro-ophthalmology fellowship at Emory. Dr. Bhatti was most recently a Professor of Ophthalmology and Neurology at Mayo Clinic and previously Chief of Neuro-ophthalmology at Duke University.
Anxiety, Depression & Multiple Sclerosis
MS Living Well: Key Info from Multiple Sclerosis Experts
03/09/21 • 31 min
Therapy options explored including meditation (including mindfulness), stress reduction, cognitive behavioral therapy and virtual platforms. Prescription medication options for both anxiety and depression covered including benefits and risks including dependence. Experts share resources and hope for those living with MS with severe depression including suicidal thoughts.
Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:
Amy Sullivan PsyD, ABPP is a board-certified, staff clinical health psychologist and the Director of Behavioral Medicine at the Mellen Center for MS Treatment and Research at the Cleveland Clinic. Dr. Sullivan received her doctorate degree at Argosy University-Atlanta, her internship at the University of Cincinnati, and her fellowship at the Cleveland Clinic in Pain Medicine. She is also the principal investigator for several clinical trials at the Mellen Center, where her research interests are focused on MS, pain, exercise and behavioral medicine.
Adam Kaplin MD PhD is the Chief Scientific Officer of MyMD Pharmaceuticals Inc. since December 2020. He completed his undergraduate degree from Yale University, graduating magna cum laude, and obtained both his MD and PhD degrees at Johns Hopkins. Dr. Kaplin complete his residency in psychiatry at Johns Hopkins Hospital, where he served as the chief resident of psychiatry. He served as an Assistant Professor of Psychiatry and Behavioral Sciences at John Hopkins and the principal psychiatric consultant to the John Hopkins MS Center. He remains as adjunct faculty at John Hopkins.
Visit www.mslivingwell.org for more information.
Share your MS story on https://ICanWithMS.org
Multiple Sclerosis: Cause & Cure
MS Living Well: Key Info from Multiple Sclerosis Experts
01/25/22 • 31 min
The Epstein-Barr virus (EBV) causes multiple sclerosis based on a new monumental study in young adults serving on active duty in the US military. The study found that the risk of developing MS increased 32-fold after infection with the Epstein-Barr virus. EBV causes infectious mononucleosis, spreads through saliva and infects B immune cells.
Alberto Ascherio MD DrPH shares his group's recent findings, published in Science. Epstein-Barr virus treatments in clinical trials reviewed including vaccination studies with the goals of stopping disease progression and preventing MS from ever occurring. The impact of vitamin D, smoking, and obesity on the risk of developing multiple sclerosis is reviewed.
Howard Weiner MD details the genetic risk factors for developing multiple sclerosis such as human leukocyte antigen (HLA) and risks of passing the disease onto children. The role of gut organisms, known as the microbiome, in both potentially causing multiple sclerosis and protecting people with the disease is explored. Strategies for a multiple sclerosis cure are highlighted.
Barry Singer MD, Director of the MS Center for Innovations in Care, interviews:
Howard Weiner MD is the Robert L. Kroc Professor of Neurology at the Harvard Medical School, where is has been on faculty since 1976. He is the Director and Founder of the Partners Multiple Sclerosis Center as well as the Co-Director of the Center for Neurologic Diseases at the Brigham & Women’s Hospital in Boston. He is also a film writer, director and author. Dr. Weiner is the author of “Curing MS.” His latest book is “The Brain Under Siege: Solving the Mystery of Brain Disease, and How Scientists are Following the Clues to a Cure.”
Alberto Ascherio MD DrPH is Professor of Epidemiology & Nutrition at the Harvard Chan School of Public Health. Dr. Ascherio obtained his medical degree at the University of Milan in 1978. His research group focuses on identifying causes, risk factors and biomarkers of susceptibility and early diagnosis of multiple sclerosis including key research on Epstein-Barr virus and vitamin D.
Visit www.mslivingwell.org for more information.
Wellness & Multiple Sclerosis
MS Living Well: Key Info from Multiple Sclerosis Experts
03/23/21 • 29 min
Successful exercise strategies presented for an array of MS disability levels. Information given on how to balance the need for increased muscle strength with concerns of overexertion and fatigue. The role of physical, occupational and speech therapy for people with MS reviewed. The latest and future technology explored including zero-gravity treadmills, electronic foot braces, robotic exoskeletons and implantable microstimulators.
Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:
Riley Bove MD is an Assistant Professor of Neurology at the University of California-San Francisco. Her multiple sclerosis research focuses on hormones and digital medicine. Dr. Bove started her studies in anthropology at Harvard and then global studies on a Fulbright scholarship. She returned to Harvard for medical school and then completed her residency at Massachusetts General Hospital and Brigham Women’s hospital in Boston. She completed a clinical research fellowship at the Partners MS Center and a Master’s Degree through Harvard Medical School’s Clinical Investigator Training Program.
Ben Thrower MD is the medical director of the Andrew C. Carlos MS Institute at Shepherd Center, a leading rehabilitation hospital in Atlanta. He completed his medical degree at University of Florida and neurology residency at the University of Texas in San Antonio. Dr. Thrower is a Clinical Instructor of Neurology at Emory University and participates actively in clinical research. He serves on the board of directors of the Georgia Chapter of the National MS Society and has served on the board for the Consortium of Multiple Sclerosis Centers. In 2005, he was the first physician inductee into the Georgia Chapter of the National MS Society Volunteer Hall of Fame.
Visit www.mslivingwell.org for more information.
Share your MS story on https://ICanWithMS.org
Multiple Sclerosis Clinical Trials
MS Living Well: Key Info from Multiple Sclerosis Experts
10/14/21 • 42 min
Interested in improving MS care? Participating in a clinical trial may have personal advantages and help others in the future. Trial design discussed including whether or not a placebo (no treatment) will be used. Criteria needed to enroll in a clinical study called inclusion and exclusion criteria explained. Key elements of clinical trials outlined including multiple safety measures and informed consent.
Current clinical trials in multiple sclerosis are covered including using highly effective treatment early for someone living with multiple sclerosis. Current studies in progressive MS and remyelination shared. Compounds highlighted include BTK inhibitors, masitinib, ibudilast, simvastatin and gold nanocrystals.
Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:
Jiwon Oh MD PhD is the Director of the BARLO MS Centre at St. Micheal’s Hospital in Toronto. She is an Associate Professor of Neurology University of Toronto. Dr. Oh’s research focuses on developing advanced imaging techniques of the spinal cord and brain for use in clinical settings. She is the principal investigator on local and collaborative, multi-center MRI studies. Dr. Oh is the lead of the Canadian National Progression Cohort, which is focused on better understanding progression in MS. She completed her undergraduate degree at the University of Toronto and medical school from Queen’s University. Dr. Oh completed her residency at the University of Toronto, PhD in Public Health at John Hopkins and neuroimmunology fellowship at John Hopkins.
Robert Bermel MD is a neurologist specializing in multiple sclerosis at the Mellen Center for Multiple Sclerosis at Cleveland Clinic. He received a medical degree with thesis honors from the State University of New York at Buffalo. Dr. Bermel completed his neurology residency training and served as Chief Resident at Cleveland Clinic. He was funded as a National MS Society postdoctoral fellow in clinical neuroimmunology and advanced imaging at Cleveland Clinic. Dr. Bermel cares for patients, conducts imaging research, and an investigator in multiple clinical trials at the Mellen Center. His current research interests focus on the identification of advanced imaging methods to evaluate and improve recovery from inflammatory demyelinating disease.
Visit www.mslivingwell.org for more information.
Being Diagnosed with Multiple Sclerosis
MS Living Well: Key Info from Multiple Sclerosis Experts
05/30/23 • 32 min
Trying to confirm if you have multiple sclerosis can be a frustrating process. Dealing with a new diagnosis a MS can be overwhelming. Julian Gamboa and Dr. Jakai Nolan shed light on a positive path forward living with multiple sclerosis.
Julian Gamboa shares his first symptoms of multiple sclerosis including spinning sensation and double vision. He had substantial obstacles and setbacks in being diagnosed including a prolonged hospitalization. After being in a very low place, Julian rallied with the support of others including his family. He conveys how he eventually obtained superb MS care and utilizing his social media guru skills to help others being diagnosed with MS.
Dr. Jakai Nolan opens up about her own unique insights on being diagnosed with multiple sclerosis since she is both a neurologist specializing in multiple sclerosis and a person living with MS. As she shares her own personal story, she reviews key symptoms suggestive of MS and the importance of advocating for prompt evaluation to prevent a delay in diagnosis and treatment. Dr. Nolan covers treatment selection, mental health concerns and lifestyle modifications for someone recently diagnosed.
Barry Singer MD, Director of The MS Center for Innovations in Care, interviews:
Julian Gamboa is the Social Media Director for Maximum Effort, supporting brands affiliated with Ryan Reynolds including Mint Mobile, Aviation Gin and Wrexham AFC. He was the former senior marketing and social media manager at Adweek. He serves on the Board of Directors of the Multiple Sclerosis Association of America.
Dr. Jakai Nolan is a neurologist specializing in multiple sclerosis in Villa Rica, Georgia and Endowed Neurology Chair for Tanner Medical Center. She received her undergraduate degree from Vanderbilt University, a Master's degree in Public Health at Emory University and her medical degree from Philadelphia College of Osteopathic Medicine, Georgia Campus. Dr. Nolan completed a MS fellowship at OhioHealth.
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FAQ
How many episodes does MS Living Well: Key Info from Multiple Sclerosis Experts have?
MS Living Well: Key Info from Multiple Sclerosis Experts currently has 45 episodes available.
What topics does MS Living Well: Key Info from Multiple Sclerosis Experts cover?
The podcast is about Health & Fitness, Dmt, Wellness, Treatment, Medicine, Podcasts, Brain, Diet, Health and Healthcare.
What is the most popular episode on MS Living Well: Key Info from Multiple Sclerosis Experts?
The episode title 'Digital Health & MS' is the most popular.
What is the average episode length on MS Living Well: Key Info from Multiple Sclerosis Experts?
The average episode length on MS Living Well: Key Info from Multiple Sclerosis Experts is 34 minutes.
How often are episodes of MS Living Well: Key Info from Multiple Sclerosis Experts released?
Episodes of MS Living Well: Key Info from Multiple Sclerosis Experts are typically released every 21 days.
When was the first episode of MS Living Well: Key Info from Multiple Sclerosis Experts?
The first episode of MS Living Well: Key Info from Multiple Sclerosis Experts was released on Aug 30, 2019.
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