Massively Disabled: A Long COVID Research Podcast

Welcome to the Massively Disabled base camp! We’re glad you’ve made it. This is where you’ll meet Élaina and get answers to the questions that keep you up at night. Questions like “What is a long COVID research podcast?” and “Why is a philosopher talking to me about long COVID?”. Don’t worry, we’re all learning together. Let the adventure begin!

Sources mentioned in this episode:

The MCAT flashcards

The British Medical Journal article: Long covid outcomes at one year after mild SARS-CoV-2 infection: nationwide cohort study

The Office of National Statistics March 2023 report

“The Future is Disabled: Prophecies, Love Notes, and Mourning Songs” by Leah Lakshmi Piepzan-Samarasinha

Full transcripts and references are available at www.massivelydisabled.com

Please rate and review Massively Disabled on Apple Podcasts and Spotify. This helps other people find the show.

You can follow the show on Instagram and Twitter @massdisabledpod

Hosting, producing, and editing is done by Élaina Gauthier-Mamaril

Music is by Morgan Kluck-Keil

This podcast is made with the support of the Centre for Biomedicine, Self and Society at the University of Edinburgh

“Long COVID” is the name masses of chronically ill people have claimed for themselves. But what is long COVID and what does it mean for us as a society? This is what my new podcast, Massively Disabled, explores.

My name is Élaina Gauthier-Mamaril and your mission, should you choose to accept it, is to journey with me for the next 6 episodes as we try to understand long COVID as a mass disabling event. I’ll introduce you to long-haulers, polio survivors, HIV and public health scholars, and so many more nerdy and disabled experts. I can’t promise to have all the answers, but I hope you’ll help me ask the important questions.

Subscribe now to Massively Disabled wherever podcasts are found and you won’t miss the first episode on the 18th of October!

Full transcripts and references are available at www.massivelydisabled.com

Please rate and review Massively Disabled on Apple Podcasts and Spotify. This helps other people find the show.

You can follow the show on Instagram and Twitter @massdisabledpod

Hosting, producing, and editing is done by Élaina Gauthier-Mamaril

Music is by Morgan Kluck-Keil

Step into the crip time warp with Élaina, Professor Felicity Callard, and Dr Mich Ciurria to discuss how we create knowledge of, about, and on illness. We discuss the “non-binary” category of illness, academic fantasies about research co-production, and why disabled people should be the ones who define disability. Everyone on this episode is a disabled academic with various levels of job security, all of whom made the gamble to be extremely vulnerable. I entrust them in your care.

Sources mentioned in this episode:

Very, very mild: Covid-19 symptoms and illness classification by Felicity Callard

“Extraordinary bodies: figuring physical disability in American culture and literature” by Rosemarie Garland-Thomson

Royal Free Epidemic of 1955: A Reconsideration by McEvedy and Beard
Disabled People Should Define Disability by Mich Ciurria

The Bloomsbury Guide to Philosophy of Disability, edited by Shelley Lynn Tremain

Full transcripts and references are available at www.massivelydisabled.com

Please rate and review Massively Disabled on Apple Podcasts and Spotify. This helps other people find the show.

You can follow the show on Instagram and Twitter @massdisabledpod

Hosting, producing, and editing is done by Élaina Gauthier-Mamaril

Music is by Morgan Kluck-Keil

This podcast is made with the support of the Centre for Biomedicine, Self and Society, Usher Institute, at the University of Edinburgh.

This one is for the kids. Long COVID can affect anyone at any age, but growing up with a chronic illness means you are learning who you are while realising who you will never be. This one is for the epidemic survivors who are still here, still around, even though the disease that changed your life is no longer the hot topic. This one is for the people living with post-polio who were told it was all in their heads. If that sounds familiar, this one is for you too. It’s for all of us. We need to talk to each other. CN: This episode contains discussions of medical disbelief and trauma. Texts mentioned in this episode: (Referenced by Katie Bourdeau): COVID Long-Haulers Canada, Statement from the Chief Public Health Officer of Canada on July 7, 2021, Prevalence of long-term effects in individuals diagnosed with COVID-19: a living systematic review Van Lier et al: Disease Burden of 32 Infectious Diseases in the Netherlands, 2007-2011 Ruth Bridgen’s thesis: Postpolio syndrome—“We aren't dead yet” The Office of National Statistics March 2023 report I would like to thank the British Polio Fellowship for connecting me with Frances and Ruth. Full transcripts and references are available at www.massivelydisabled.com Please rate and review Massively Disabled on Apple Podcasts and Spotify. This helps other people find the show. You can follow the show on Instagram and Twitter @massdisabledpod Hosting, producing, and editing is done by Élaina Gauthier-Mamaril Music is by Morgan Kluck-Keil This podcast is made with the support of the Centre for Biomedicine, Self and Society, Usher Institute, at the University of Edinburgh.

In this episode, Élaina talks to Jackie Baxter of the Long COVID Podcast and Peter Keogh, a professor of Health and Society at the Open University, about disabled knowledges of care. We trek through the history of HIV activism to better understand what is at stake when living with a chronic illness explodes the boundaries of what biomedicine can address. Oh, and this is the one where we talk about cripistemologies.

Texts mentioned in this episode:

Gays Against Genocide Pamphlet

Lisa Merri Johnson and Robert McRuer’s Cripistemologies: Introduction

Audre Lorde’s Cancer Journals

Leah Lakshmi Piepzna Samarasinha’s The Future is Disabled
J. Logan Smilges’ Crip Negativity

Full transcripts and references are available at www.massivelydisabled.com

Please rate and review Massively Disabled on Apple Podcasts and Spotify. This helps other people find the show.

You can follow the show on Instagram and Twitter @massdisabledpod

Hosting, producing, and editing is done by Élaina Gauthier-Mamaril

Music is by Morgan Kluck-Keil

This podcast is made with the support of the Centre for Biomedicine, Self and Society, Usher Institute, at the University of Edinburgh.