Made Visible

This bonus episode of the Made Visible podcast features the exclusive readings of two powerful essays written by students of the Made Visible Writing Class.

Laura Frégeau's "Seeking Care" takes a humorous tongue-in-cheek approach to the task of finding a caregiver for her future needs, listing specific requirements for the ideal candidate. Lindsay Ellis's "Dis-ease done right" offers a raw and honest reflection on the challenges of living with an invisible illness, from navigating the healthcare system to coping with the emotional toll that comes with it. Both essays provide unique and insightful perspectives that you won’t want to miss!

For more information about Laura and Lindsay’s essays, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Join the next Made Visible Writing Class!

An 8-week writing class for people living with or affected by invisible illness. Write, share and connect with others in a safe and supportive space. This class will also include guest teachers who will share their experience with writing, sharing and publishing their invisible illness stories. Class begins March 29th! Click here to learn more!

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblestories

Instagram: @madevisiblestories

LinkedIn: madevisible

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Podcast Editor & Strategist: @episodeready

In this episode, Dr. Stella Safo, a board-certified HIV primary care physician and the founder of Just Equity For Health, talks about healthcare redesign and equity. She discusses her personal journey into healthcare and how her commitment to social justice led her to found her company. She also dives into the stigma surrounding HIV and chronic illnesses, and the work she's done to advocate for equitable care delivery across all sectors of medicine. Join us as we explore Dr. Safo's journey to becoming a healthcare advocate and her dedication to making healthcare accessible for all.

For more information about Dr. Stella Safo and Just Equity For Health, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Support for this episode comes from Credo. Credo was founded in 2015 in San Francisco. Credo currently operates a robust online business, along with 12 stores across the country. The company’s trailblazing brand standard, The Credo Clean Standard, is actively building a cleaner, more sustainable, more ethical beauty industry. Credo’s owned brand portfolio includes Exa Beauty, Follain and EleVen by Venus Williams SPF. Visit bit.ly/madevisiblecredo to start shopping.

This podcast aims to change the conversation around invisible illnesses and we need your help!

Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblestories

Instagram: @madevisiblestories

LinkedIn: madevisible

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Podcast Editor & Strategist: @episodeready

Click here to learn more and apply for the Made Visible Writing Class.

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Mira Mariah thinks tattoos are rock 'n' roll, and so are disabled people. As she says, disabled people have to be really “innovative and creative”--and what’s more rock 'n' roll than that? Though Mira didn’t always associate with the word “disabled,” that sense of herself shifted once she had amputation surgery and got a prosthetic leg. On today’s episode, I talk with Mira about fashion’s role in her life, the invisible challenges that amputees face, her career as a tattoo artist, and leaning in to joy.

Learn more about Mira Mariah and check out the show notes here.

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We want to learn more about you! Tell us about you and what got you listening to Made Visible here.

Support for this episode comes from Lily CBD. Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Click here to try Lily CBD for yourself and use code madevisible for 15% off your first purchase.

I moderated a panel discussion at ReelAbilities Film Festival on The Quiet Epidemic, an eye-opening film about Lyme disease that highlights the emotional toll of patients’ journeys with the illness and the scientific facts of the disease.

During the panel I spoke with the film’s Emmy-winning producer Chris Hegedus, who helped the directors bring this topic to light, 19-year-old Julia Bruzzese, a patient with Lyme disease featured in the film who bravely shared her story because she knew it could help other patients, and Julia’s dad, Enrico Bruzzese, who has been her caregiver and biggest supporter.

This episode also includes my recent conversation with past guest and the film’s executive producer, Ally Hilfiger, who talks about her own Lyme story and how important it was for the film to include both real, digestible science and a patient’s story for viewers to connect with.

The Quiet Epidemic reminds us how important it is to educate about a devastating tick-borne disease like Lyme, which is growing more and more common, yet still so difficult to test for and treat.

For more information about The Quiet Epidemic and ReelAbilities, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online! Website: madevisiblestories.com Facebook: madevisiblestories Instagram: @madevisiblestories LinkedIn: madevisible