CURE FOUND MSU EXPANDS TO UM
10/07/24 • 39 min
I always tell this group of undergrad students that they are our future, and that makes the future look bright.
Atef Choudhury and Naim Mashni are incredible people and students. They're both Seniors at Lyman Briggs College -- majoring in Human Biology. They're minor is in business and they're on the pre- med track. Atef and Naim are the co-founders and Co-Presidents of Cure Found MSU .
Atef's connection to CF is his nephew. He was born with the disease in 2017. Watching his nephew grow up with CF, seeing him do treatments, it inspired him to become a doctor. His passion for making a difference in the CF world Brought him to creating, with Naim, Cure Found MSU. The Bonnell Foundation is very lucky because Cure Found MSU continues to raise funds for our non profit.
You’re going to meet Bhumika Kale too. She’s the University of Michigan, where she is a sophomore pursuing a major in Public Health while following the pre-medical track. As the Co-President of the University’s chapter of Cure Found, a club dedicated to raising awareness and support for Cystic Fibrosis patients.
Her journey into the medical field began in high school, where she actively participated in various pre-med clubs and volunteered in healthcare settings. This hands-on experience, along with a year of working as a medical assistant, solidified her desire to pursue a career in medicine.
To get a hold of either of these organizations reach out here:
Atef Choudhury, Cure Found MSU: [email protected]
Naim Mashni, Cure Found MSU: [email protected]
Bhumika Kale, Cure Found UM: [email protected]
Please like, subscribe, and comment on our podcasts!
Please consider making a donation: https://thebonnellfoundation.org/donate/
The Bonnell Foundation website:https://thebonnellfoundation.org
Email us at: [email protected]
Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured
Thanks to our sponsors:
Vertex: https://www.vrtx.com
Viatris: https://www.viatris.com/en
I always tell this group of undergrad students that they are our future, and that makes the future look bright.
Atef Choudhury and Naim Mashni are incredible people and students. They're both Seniors at Lyman Briggs College -- majoring in Human Biology. They're minor is in business and they're on the pre- med track. Atef and Naim are the co-founders and Co-Presidents of Cure Found MSU .
Atef's connection to CF is his nephew. He was born with the disease in 2017. Watching his nephew grow up with CF, seeing him do treatments, it inspired him to become a doctor. His passion for making a difference in the CF world Brought him to creating, with Naim, Cure Found MSU. The Bonnell Foundation is very lucky because Cure Found MSU continues to raise funds for our non profit.
You’re going to meet Bhumika Kale too. She’s the University of Michigan, where she is a sophomore pursuing a major in Public Health while following the pre-medical track. As the Co-President of the University’s chapter of Cure Found, a club dedicated to raising awareness and support for Cystic Fibrosis patients.
Her journey into the medical field began in high school, where she actively participated in various pre-med clubs and volunteered in healthcare settings. This hands-on experience, along with a year of working as a medical assistant, solidified her desire to pursue a career in medicine.
To get a hold of either of these organizations reach out here:
Atef Choudhury, Cure Found MSU: [email protected]
Naim Mashni, Cure Found MSU: [email protected]
Bhumika Kale, Cure Found UM: [email protected]
Please like, subscribe, and comment on our podcasts!
Please consider making a donation: https://thebonnellfoundation.org/donate/
The Bonnell Foundation website:https://thebonnellfoundation.org
Email us at: [email protected]
Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured
Thanks to our sponsors:
Vertex: https://www.vrtx.com
Viatris: https://www.viatris.com/en
Previous Episode
Laura Bonnell - From news reporting, to CF and beyond.
From news reporting, to CF and beyond. Laura talks about her journey.
The Bonnell Foundation: Living with cystic fibrosis is 14 years old. "I was so hopeful all those years ago, that my Foundation would take off, and now look at it! We have helped CF families from Michigan to California with financial assistance, lung transplant grants and Education Scholarships. Our programs have also grown, with more on the way. We're so glad you're a part of it".
To reach Laura: thebonnellfoundation.org
Or follow us on social media (see below)
Please like, subscribe, and comment on our podcasts!
Please consider making a donation: https://thebonnellfoundation.org/donate/
The Bonnell Foundation website:https://thebonnellfoundation.org
Email us at: [email protected]
Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured
Thanks to our sponsors:
Vertex: https://www.vrtx.com
Viatris: https://www.viatris.com/en
Next Episode
Touraj Manshadi falling through the gaps in health policy
We’re in Canada for this podcast. Canadian Advocate Beth Vanstone has two daughters, one with CF and she’s hosting this podcast with Laura Bonnell.
Beth is introducing us to 32-year-old To Touraj Dehghan Manshadi who has a CF mutation that is common to Iran, but rare in Canada where he lives. You may be surprised to learn Canada does not have a rare disease strategy. We know American’s thinking that medically everything is better in Canada, but that’s not true. Many countries around the globe are struggling with the high cost of drugs for Rare Diseases, Canada is no exception. However, while we see industrialized countries around world looking at solutions to get rare therapies to patients quickly in an effort to maintain, improve and save lives, Canada remains stuck relying on a drug system designed to handle aspirin. Canada is the only country in the G7 without a national approach to rare diseases.
In February 2023 the Federal government announced a Rare Disease Drug Strategy with a 1.4 billion budget over three yrs to support it. The expectation was that drugs for rare diseases would have a quicker pathway and that it would address the specific challenges of the rare community and fill some of the many gaps to access. Sadly, that has not been the case thus far.
Beth says, “There are a lot of challenges for patients, it’s very timely, there are a lot of gaps that will potentially harm patients.” Touraj is one of the patients falling through the gaps.
Touraj says his FEV1 is 35 percent, which means he is potentially looking at a double lung transplant. “It is shocking that in the next two to three years I might be getting to the point of needing a transplant. We’re sad about it. My girlfriend is sadder about it than I am right now. I think of it as more of a reality.” The hope would be access to a drug, despite his rare mutation, but the ability to try it.
To connect with Touraj
Instagram: https://www.instagram.com/tojyla/
Facebook: https://www.facebook.com/touraj.dehghan/
Linkedin: https://www.linkedin.com/in/touraj-manshadi
Please like, subscribe, and comment on our podcasts!
Please consider making a donation: https://thebonnellfoundation.org/donate/
The Bonnell Foundation website:https://thebonnellfoundation.org
Email us at: [email protected]
Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured
Thanks to our sponsors:
Vertex: https://www.vrtx.com
Viatris: https://www.viatris.com/en
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