Living with Crohn's Disease

In this episode, Joe talks about how his recovery is going after his month stay with 26 blood transfusions and 20 pound weight loss.  He talks about how it was hard for him to accept going for small walks and his day being done after that because of how tired he got.  Joe talks about going through the disability  to get payments to help with bills and rent.  

#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong

In this episode, Joe gives a little update on how he is doing since his hospital visit two weeks ago.  He talks about his first days with the Giants, working as part of the grounds crew, but also how something unexpected happen the day of 2nd training day with the Giants, that revealed to be a brain tumor.  Joe explains what it was like to go through that situation and not knowing if it was cancerous or not.  And unfriendly Crohn's was still making a guest appearence through this time too.  Joe talks about how hard it is to stay positive through obstacles like this.

#crohnslife  #purplestrong  #crohnsandcolitis #braintumor

Email: [email protected]

Joe talks about his symptoms leading up to being diagnosed with Crohn's Disease.  He talks about how he handled it and leading up to his first surgery and then days after getting out of the hospital taking his last final to graduate college.

#crohnslife  #crohnsandcolitis  #purplestrong  #livingwithcrohns  #crohnsdisease  

In this episode, Joe shares his experience about how Crohn's and his intestines are effecting his urinary tract.  He shares about the experience of going through his first surgery of getting the stint put into his urinary tract and the pain that soon followed.  This is what he is going through today and could lead to major kidney and urinary tract surgery soon.  

#crohnslife  #crohnsandcolitis #livingwithcrohns  #livingwithcrohnsdisease  #purplestrong  #urinarytract  #stintinurinarytract 
#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong

email: [email protected]

Joe talks about his visits to the hospital after seeing blood is his ostomy bag and how scary it was for him. He also talks about all the different doctors that see him in the hospital and how to communicate with them and yet making sure that the Crohn's doctor and/or surgeon is still in charge of everything going on and not just the doctor's who show up at your bedside. Communication with nurses and doctors are very important and Joe discusses how to make sure you know what is going on and who is the leader of your care. 108 days in the hospital and 74 blood transfusions this year.
#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter #crohnsandcolitis #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong #colonscopy