If We Knew Then - Down Syndrome Podcast

Stephen and Lori Saux

1 Creator

We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.

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Top 10 If We Knew Then - Down Syndrome Podcast Episodes

Goodpods has curated a list of the 10 best If We Knew Then - Down Syndrome Podcast episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to If We Knew Then - Down Syndrome Podcast for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite If We Knew Then - Down Syndrome Podcast episode by adding your comments to the episode page.

69. Uncertainties About the Return to School? You’re Not Alone.

If We Knew Then - Down Syndrome Podcast

09/02/21 • 19 min

As we return to school to find a new unknown, we may find ourselves facing familiar challenges and feelings. In this episode we discuss the importance of a support system that reminds us we are never alone.

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/09/02/69-uncertainties-about-the-return-to-school-youre-not-alone/2/

Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

84. Happy Everything To Everyone: A Holiday Message

If We Knew Then - Down Syndrome Podcast

12/24/21 • 11 min

As the year comes to a close, we share a few thoughts on the gifts of the year.

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/12/23/84-happy-everything-to-everyone-a-holiday-message/2/

88. Healing Through Yoga: Transform Loss Into Empowerment with Paul Denniston

If We Knew Then - Down Syndrome Podcast

01/28/22 • 53 min

We have the privilege of speaking again with our friend Paul Denniston. In this episode we discuss Paul’s new book where he breaks down his practice of healing.

Buy the book: https://www.pauldennistontraining.com/healing-through-yoga

Paul’s Website: https://griefyoga.com

Episode 22 - Paul’s 30 Minute Yoga Nidra Meditation: https://ifweknewthen.podbean.com/e/22-a-meditation-gift-from-paul-denniston/

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/01/27/88-healing-through-yoga-transform-loss-into-empowerment-with-paul-denniston/2/

79. Reaching Our Advocation Milestones As Parents - with Julie Picot

If We Knew Then - Down Syndrome Podcast

11/19/21 • 57 min

In this episode we revisit Julie Picot and talk about what the past year has held for her family and their journey. We discuss the milestones reached on her advocacy path with her daughter Elyse and what she wish she would have known earlier.

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/11/18/reaching-our-advocation-milestones-as-parents-with-julie-picot/2/

104. Lena Dunham: A Champion For Diversity and Inclusion

If We Knew Then - Down Syndrome Podcast

06/11/22 • 54 min

This week we are honored to interview actress, writer, producer and director Lena Dunham. Lena cast our son, Liam, in her film SHARP STICK and it was one of the most supportive, inclusive and beautiful experiences we’ve had on this journey. Her set was a model environment for our society and we talk to her about how she developed her advocacy for so many marginalized groups and individuals, what she learned from working with Liam and her future family plans.

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/06/08/104-lena-dunham-a-champion-for-diversity-and-inclusion/2/

112. Seeing The Whole Child: Our Conversation with Licensed Child Psychologist Dr. Beverly Celotta

If We Knew Then - Down Syndrome Podcast

08/13/22 • 54 min

In this conversation we sit down with Dr. Beverly Celotta. Bev is a retired Licensed Child Psychologist who shares her knowledge about how to set all children up for success.

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/08/11/112-dr-beverly-celotta/2/

113. Student Led IEPs to Determine Ones Own Path of Self-Advocacy with Ellen Coulston

If We Knew Then - Down Syndrome Podcast

08/20/22 • 45 min

The discussion on Self Determination in episode 83, developed into an examination of the term “Self Determination” and what it means in the scope of determining ones self and ones path. In this episode with Ellen Coulston we discuss Self Determination as a tool to promote independence, confidence and participation by student led IEP planning, making that student a part of the dialogue instead of a 3rd person participant in a conversation about their life goals.

I’m Determined: https://www.imdetermined.org

LifeCourse: https://www.lifecoursetools.com/

Ellen’s Podcast: ieproadtofreedom.com

Ellen on Twitter: https://twitter.com/EllenRita220

CA Transition Alliance: http://www.catransitionalliance.org/catransitionalliance.aspx

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/08/18/113-student-led-ieps-to-determine-ones-own-path-of-self-advocacy-with-ellen-coulston/2/

120. The Secret Episode - Living For The Moments

If We Knew Then - Down Syndrome Podcast

10/22/22 • 22 min

Stephen recorded a solo episode this week, unbeknownst to the family, to express some things that have been on his mind and as a nice surprise to Lori and the kids whenever they come across it. It’s kind of a time capsule episode focused on this present moment and how there is nothing as important as right now.

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/10/21/120-the-secret-episode-living-for-the-moments/2/

135. Revisiting with Children’s Hospital Los Angeles Pediatrician Dr. Mona Patel Gera

If We Knew Then - Down Syndrome Podcast

03/12/23 • 78 min

Dr. Mona is an attending physician in the Department of General Pediatrics at Children’s Hospital Los Angeles and an Associate Professor in the Department of Pediatrics at the Keck School of Medicine of the University of Southern California. She sat down with us to challenge the many medical myths and stereotypes surrounding children with Down syndrome.

Health Supervision Guidelines: https://www.healthychildren.org/English/health-issues/conditions/developmental-disabilities/Documents/Health_Care_Information_for_Families_of_Children_with_Down_Syndrome.pdf

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/03/12/135-revisiting-with-childrens-hospital-los-angeles-pediatrician-dr-mona-patel-gera/2/

73. Down Syndrome Awareness Month: Acknowledging Those Who Came Before Us

If We Knew Then - Down Syndrome Podcast

10/01/21 • 21 min

October is Down Syndrome Awareness Month and in this episode we discuss the true meaning of awareness and advocacy. Many self advocates have blazed a trail for the new generation in our community and we name a few of them so that we know who to look up to when we need encouragement.

Frank Stevens’ speech to Congress (YouTube): https://youtu.be/vtS91Jd5mac

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/09/30/73-down-syndrome-awareness-month-acknowledging-those-who-came-before-us/2/

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FAQ

How many episodes does If We Knew Then - Down Syndrome Podcast have?

If We Knew Then - Down Syndrome Podcast currently has 177 episodes available.

What topics does If We Knew Then - Down Syndrome Podcast cover?

The podcast is about Parenting, Kids & Family, Podcasts and Education.

What is the most popular episode on If We Knew Then - Down Syndrome Podcast?

The episode title '150. Down Syndrome Research, Ableism and The Right To Just Be with Dr. Eric Rubenstein' is the most popular.

What is the average episode length on If We Knew Then - Down Syndrome Podcast?

The average episode length on If We Knew Then - Down Syndrome Podcast is 48 minutes.

How often are episodes of If We Knew Then - Down Syndrome Podcast released?

Episodes of If We Knew Then - Down Syndrome Podcast are typically released every 7 days.

When was the first episode of If We Knew Then - Down Syndrome Podcast?

The first episode of If We Knew Then - Down Syndrome Podcast was released on Apr 13, 2020.

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If We Knew Then - Down Syndrome Podcast

Stephen and Lori Saux

Top 10 If We Knew Then - Down Syndrome Podcast Episodes

Featured in these lists

FAQ

How many episodes does If We Knew Then - Down Syndrome Podcast have?

What topics does If We Knew Then - Down Syndrome Podcast cover?

What is the most popular episode on If We Knew Then - Down Syndrome Podcast?

What is the average episode length on If We Knew Then - Down Syndrome Podcast?

How often are episodes of If We Knew Then - Down Syndrome Podcast released?

When was the first episode of If We Knew Then - Down Syndrome Podcast?

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