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Hidden Diagnoses Impact: Unveiling EDS, CCI, and other undiagnosed or underdiagnosed conditions - Part 2 Aella's Story Continues: Advocacy and Challenges in Chronic Illness

Part 2 Aella's Story Continues: Advocacy and Challenges in Chronic Illness

Hidden Diagnoses Impact: Unveiling EDS, CCI, and other undiagnosed or underdiagnosed conditions

05/25/24 • 85 min

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In this episode of the "Occult Awareness" podcast, host Amy dives deeper into Aella's journey, exploring the complex and often frustrating realities of living with a chronic illness. From misdiagnoses and systemic healthcare issues to the everyday challenges faced by those with Ehlers-Danlos Syndrome (EDS) and other connective tissue disorders, Aella shares her experiences with raw honesty and courage.

Join us as we discuss:

  • The impact of stigmatization and misdiagnosis in the healthcare system
  • The importance of advocacy and self-advocacy for chronic illness patients
  • Aella's personal experiences with various medical professionals and therapies
  • The struggle for accessible housing and adequate support programs
  • The necessity for better understanding and care for chronic illnesses

This episode not only sheds light on the systemic issues within healthcare but also highlights the resilience and determination of individuals like Aella. Tune in for an insightful conversation that aims to inspire and inform both patients and healthcare professionals alike.

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05/25/24 • 85 min

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Hidden Diagnoses Impact: Unveiling EDS, CCI, and other undiagnosed or underdiagnosed conditions - Part 2 Aella's Story Continues: Advocacy and Challenges in Chronic Illness

Transcript

00:00:05:20 - 00:00:43:21

Unknown

You don't be a high functioning individual. I mean, like high functioning. I hung from freakin trapeze. Like I had six packs up until 2018. You know, go from hanging fat trapeze and driving tent stakes to a wheelchair with a functional body. Do you know what they say with me? It's anxiety or everything. They blame everything on trauma, everything on anxiety.

00:00:43:23 - 00:01:15:06

Unknown

I end up in the hospital for malnutrit

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