Mom to an Adult Heart Warrior in India
01/19/21 • 30 min
What is the situation like for people with congenital heart defects in India? What happens to our Heart Warriors as they grow up? What does the Heart Community need to do in order to have a sense of justice for those born with broken hearts?
Sajani Nair lives in Calicut, India, and is the mother of Yadhu Krishna, a young man living with congenitally corrected transposition of the great arteries (CCTGA). Since he was diagnosed, Sajani and her family faced an uphill battle for her son as they struggled to find care. At three and a half years of age, he had a pulmonary artery banding procedure at Narayana Health in Bangalore. He currently needs the arterial switch procedure. Obtaining medical care is difficult in India, as there is no insurance for congenital conditions, forcing families to rely on private hospitals. To help other families affected by CHD, Sajani started a support group in India and a letter-writing campaign to urge the health minister in the central government to address CHD. Her efforts have attracted the attention of doctors and others, who are now working together to support her cause, a life of dignity for people born with CHD.
Facebook Link to Justice for Children with Congenital Heart Defects
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If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
Sheri Turner is our newest Defender Patron and she also serves as a HUG Volunteer. Thank you so much for your generosity and all you do, Sheri!
Anna's Buzzsprout Affiliate Link
Baby Blue Sound Collective
Social Media Pages:
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MeWe
Twitter
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What is the situation like for people with congenital heart defects in India? What happens to our Heart Warriors as they grow up? What does the Heart Community need to do in order to have a sense of justice for those born with broken hearts?
Sajani Nair lives in Calicut, India, and is the mother of Yadhu Krishna, a young man living with congenitally corrected transposition of the great arteries (CCTGA). Since he was diagnosed, Sajani and her family faced an uphill battle for her son as they struggled to find care. At three and a half years of age, he had a pulmonary artery banding procedure at Narayana Health in Bangalore. He currently needs the arterial switch procedure. Obtaining medical care is difficult in India, as there is no insurance for congenital conditions, forcing families to rely on private hospitals. To help other families affected by CHD, Sajani started a support group in India and a letter-writing campaign to urge the health minister in the central government to address CHD. Her efforts have attracted the attention of doctors and others, who are now working together to support her cause, a life of dignity for people born with CHD.
Facebook Link to Justice for Children with Congenital Heart Defects
Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts
Facebook
YouTube
Instagram
Website
If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
Sheri Turner is our newest Defender Patron and she also serves as a HUG Volunteer. Thank you so much for your generosity and all you do, Sheri!
Anna's Buzzsprout Affiliate Link
Baby Blue Sound Collective
Social Media Pages:
Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website
Previous Episode
Still Waiting for a Heart
What is it like to be an adult with a congenital heart defect whose heart has given out? What does a typical journey on the road to transplant like? Does it look anything like what we see portrayed on television or in movies?
Lorrie Hill grew up in Texas, mostly Houston and Dallas. She was born with a single ventricle heart and has had three open-heart surgeries in her 24 years, including a pulmonary artery band and bidirectional Glenn shunt. She was listed for a heart transplant on February 24th, 2020. Since then, she graduated with honors from her undergraduate university and moved to Houston to be closer to Texas Children's Hospital where she will receive her transplant. She has even begun her Master of Public Health epidemiology graduate program. She talks to Anna about life now and her hope of receiving a new heart.
This is a follow-up episode to the one Lorrie did in March 2020. There is also a transcript of the program available.
Here are the links to the websites Lorrie mentioned in this episode:
Donate Life
UNOS Transplant Living
Organ Procurement and Transplantation Network
Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts
Facebook
YouTube
Instagram
Website
If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
Sheri Turner is our newest Defender Patron and she also serves as a HUG Volunteer. Thank you so much for your generosity and all you do, Sheri!
Anna's Buzzsprout Affiliate Link
Baby Blue Sound Collective
Social Media Pages:
Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website
Next Episode
A Heart Mom’s Journey While Choosing Joy
Do Heart Moms who have babies with heart defects have an easier time of things? Why would a Heart Mom write a book? What might entice a Heart Mom to start a podcast? Answers to these questions and more are in this week's episode of "Heart to Heart with Anna."
Nicole Groenewald is a Heart Mom to Henry who has HLHS. At the time that Nicole found out about Henry's diagnosis, she felt like she might never be happy again. Her husband had been ill, and the Groenwalds had already filed for bankruptcy due to mounting medical bills. Then one day, she read that babies can feel their mother's emotions before they're born. This set her on a path of changing her emotions and choosing joy. At first, she started with simple things like music and self-care. As her challenges grew in life, she became more determined to pursue a joyful life. Today, she works to inspire and encourage others to pursue joy with intentionality, and has started a website and podcast called "Moms of Heart!" Today, Nicole joins us to talk about her and Henry's journey and the benefits of choosing joy.
Links mentioned in this podcast:
Nicole's podcast -- Mom's of Heart: http://momsofheart.com/podcast/?fbclid=IwAR0RnRYa4S3boRRr5FCu18M9sEqFXhf0BxpnGqjR0XSKS6dl5pPpRbh9SwM
Nicole's podcast -- Chase Joy 100 Ways: https://podcasts.apple.com/us/podcast/chase-joy-100-ways/id1506207814
Nicole's Hospital Journal: https://momsofheart.com/shop/hospital-journal/
Anna Buzzsprout Affiliate Link: https://www.buzzsprout.com/?referrer_id=16817
Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Instagram: https://www.instagram.com/hearttoheartwithanna/
Website: https://www.hug-podcastnetwork.com/
If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
Sheri Turner is our newest Defender Patron and she also serves as a HUG Volunteer. Thank you so much for your generosity and all you do, Sheri!
Anna's Buzzsprout Affiliate Link
Baby Blue Sound Collective
Social Media Pages:
Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website
Heart to Heart with Anna - Mom to an Adult Heart Warrior in India
Transcript
I feel like I can stand and shout and say that, "Come on! I'm here. I'm a Heart Mom! I need to be heard!"
Anna JaworskiWelcome to "Heart to Heart with Anna." I am Anna Jaworski and your host. I'm also the mother of a son with a complex congenital heart defct. My son was born in 1994 and has had three open-heart surgeries. It is because of Alexander that I am the advocate for the CHD community that I
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