Care, Hope, Discover 2019 Conference: A Congenital Heart Defect Conference
10/15/19 • 29 min
In this episode of Heart to Heart with Anna, returning Guest, Mary Kay Klein talks with Anna about an upcoming conference for the congenital heart defect community. Care, Hope, Discover 2019: A Congenital Heart Defect Conference will occur on October 26, 2019, in Waltham, Massachusetts at the Hilton Garden Inn in Waltham (near Boston).
This one-day educational conference is for CHD patients, family, friends, and caregivers. There will be an amazing group of speakers, medical providers and an inspiring panel of adults who are either living with CHD or a parent of a CHD patient. The conference begins at 9:00 a.m. (registration opens at 8 a.m.) and runs until 4:30 p.m. A Saturday Post-Conference Networking event is included with registration and begins at 5:00 p.m.
Featured speakers include Drs. Ram Emani, Mike Landzberg, Doug Mah, Fred Wu, Boston Children's Hospital; Ami Bhatt, Mass General; Mark Zilberman, Tufts Medical Center; and Paul Thayer, Boston University.
Use this link for more information and registration.
ACHA is a co-sponsor of this event along with It's My Heart New England, Adults Living with CHD of MA and The Children's Heart Foundation - New England Chapter.
Please take a moment to follow us on your preferred social media platforms:
iTunes
Facebook
YouTube
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If you enjoy this program and would like to be a Patron, please check out our Patreon page!
Sheri Turner is our newest Defender Patron and she also serves as a HUG Volunteer. Thank you so much for your generosity and all you do, Sheri!
Anna's Buzzsprout Affiliate Link
Baby Blue Sound Collective
Social Media Pages:
Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website
In this episode of Heart to Heart with Anna, returning Guest, Mary Kay Klein talks with Anna about an upcoming conference for the congenital heart defect community. Care, Hope, Discover 2019: A Congenital Heart Defect Conference will occur on October 26, 2019, in Waltham, Massachusetts at the Hilton Garden Inn in Waltham (near Boston).
This one-day educational conference is for CHD patients, family, friends, and caregivers. There will be an amazing group of speakers, medical providers and an inspiring panel of adults who are either living with CHD or a parent of a CHD patient. The conference begins at 9:00 a.m. (registration opens at 8 a.m.) and runs until 4:30 p.m. A Saturday Post-Conference Networking event is included with registration and begins at 5:00 p.m.
Featured speakers include Drs. Ram Emani, Mike Landzberg, Doug Mah, Fred Wu, Boston Children's Hospital; Ami Bhatt, Mass General; Mark Zilberman, Tufts Medical Center; and Paul Thayer, Boston University.
Use this link for more information and registration.
ACHA is a co-sponsor of this event along with It's My Heart New England, Adults Living with CHD of MA and The Children's Heart Foundation - New England Chapter.
Please take a moment to follow us on your preferred social media platforms:
iTunes
Facebook
YouTube
Instagram
If you enjoy this program and would like to be a Patron, please check out our Patreon page!
Sheri Turner is our newest Defender Patron and she also serves as a HUG Volunteer. Thank you so much for your generosity and all you do, Sheri!
Anna's Buzzsprout Affiliate Link
Baby Blue Sound Collective
Social Media Pages:
Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website
Previous Episode
Raising Awareness of Ivemark Syndrome
If you've ever wondered what Ivemark Syndrome is, you need to listen to this program! Ivemark Syndrome is a very rare constellation of birth defects which typically include malformations of the heart.
Julia Mayfield is and adult born with a rare genetic condition called Ivemark Syndrome. According to the National Organization for Rare Disorders, Ivemark Syndrome is comprised of: 1) an absent or underdeveloped spleen, 2) cardiovascular anomalies and 3) abnormal placement of the organs in the chest and or abdomen. Julia’s heart is on the right side of her chest and she is missing her spleen. By the time she was nine, she had been through four open-heart surgeries, the final of which caused a massive stroke post-op. She also developed severe scoliosis and required surgery. She is joining us today to raise awareness of Ivemark Syndrome and share her experiences of growing up and adulthood with this condition.
Please take a moment to follow us on your preferred social media platforms:
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Instagram: https://www.instagram.com/hugpodcastnetwork/
If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
Sheri Turner is our newest Defender Patron and she also serves as a HUG Volunteer. Thank you so much for your generosity and all you do, Sheri!
Anna's Buzzsprout Affiliate Link
Baby Blue Sound Collective
Social Media Pages:
Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website
Next Episode
Texas Heart Mom and Daniel’s Lion Heart Founder – Staci Geiger!
Texas Heart Mom, Staci Geiger, has experienced the trauma of handing her son over to surgeons far too many times. This experience left her grateful for the amazing care her son received and feeling blessed for his resilience and fortitude but it also left her wondering how people without the support she had could possibly go through the same journey she went through with her son's medical problems.
A mother, teacher and friend in the heart community, Staci decided to start a nonprofit organization to assist Christians facing the same trauma she experienced. Armed with compassion and a strong faith in God, she is working to provide support and comfort to others in the congenital heart defect community.
Tune in to this new podcast to hear Staci share her story about her son's medical journey, why and how she started a nonprofit organization and what her vision for the future is.
To visit Daniel's Lion Heart Foundation, go to: www.danielslionheart.com
Please take a moment to follow us on your preferred social media platforms:
iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Instagram: https://www.instagram.com/hugpodcastnetwork/
If you enjoy this program and would like to be a Patron, please check out our Patreon page:
Sheri Turner is our newest Defender Patron and she also serves as a HUG Volunteer. Thank you so much for your generosity and all you do, Sheri!
Anna's Buzzsprout Affiliate Link
Baby Blue Sound Collective
Social Media Pages:
Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website
Heart to Heart with Anna - Care, Hope, Discover 2019 Conference: A Congenital Heart Defect Conference
Transcript
Mary Kay Klein : 0:00
I think, based on feedback we've had in the past, and my own experience, the most important thing is to know that we're not alone and that there is a magnificent, supportive community that we can become part of and network with that will help us get through whatever trials and tribulations there are.
Anna Jaworski: 0:26
Welcome to "Heart to Heart with Anna," I am Anna Jaworski and the host of your program. We are in our 14th seas
If you like this episode you’ll love
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