Brain Surgery, Trigeminal Neuralgia, Firing My Doctor

02/22/24 • 25 min

In this episode, I'm letting you in on a journey that turned my world upside down. It's about my fight with trigeminal neuralgia, a term that was as foreign to me as the unimaginable pain it brought into my life. This isn't just a story about physical pain, though. It's about hitting roadblocks when you're desperately seeking help, making tough choices that feel like gambles, and finding light in the darkest of places. I've had moments of feeling utterly lost, battling not just the condition but the very people supposed to help me navigate it. Through all the turbulence, I discovered not just the power of self-advocacy but the deep resilience within me. So, come along as I share the raw, unfiltered chapters of this journey, with all its ups and downs, and how it's reshaped my outlook on life.
Additional Links on TN and Brain Surgery:
https://youtu.be/eOeTLcOskx0?si=OIqCizPu3n-twwtX
https://youtu.be/4GfpwU3meHE?si=nyVUzm6yFD12Rw5s

Follow me on Instagram @martis_mslife
Video Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sM
Send me a question and I will share it on the pod!: [email protected]
www.martihines.com
Produced by Natalie Byrdsong

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Happy V Day!, Dating with MS, Dating in Your 40s

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Navigating the dating world in 2024 with a chronic illness is like embarking on an unpredictable journey, where every interaction feels like stepping onto uncharted territory. Gone are the days of swiping right for me; now, it's about finding genuine connections in real-life encounters. Deciding when to reveal my illness is a delicate dance, akin to timing a pivotal scene in my own story. Yet, through this process, I've learned to embrace every facet of myself, seeing my condition not as a barrier but as part of my unique narrative. It's about finding someone who appreciates the full, unedited version of me.

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The Isolation of Pain

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In this episode, I open up about the silent battles with MS pain and its sneaky way of messing with friendships and daily life. I touch on the tricky bits of explaining what this pain feels like and the extra stuff you've got to juggle when you're living with a chronic illness. It's a bit about the loneliness and the guilt trips, too, and those hidden struggles that aren't always obvious. I challenge the idea that being good at handling pain means it doesn't hurt as much, stressing the need for more empathy and understanding. I wrap up by encouraging folks with MS to seek support and be easy on themselves, highlighting the unbeatable strength it takes to face chronic pain day in, day out.