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Gluten Free RN

Gluten Free RN

Nadine Grzeskowiak, RN BSN CEN

Gluten Free RN, Nadine Grzeskowiak, RN BSN CEN, discusses gluten intolerance, celiac disease, the Paleo lifestyle and health.
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Top 10 Gluten Free RN Episodes

Goodpods has curated a list of the 10 best Gluten Free RN episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to Gluten Free RN for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite Gluten Free RN episode by adding your comments to the episode page.

Gluten Free RN - Type 1 Diabetes and Celiac Disease EP027
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06/09/17 • 31 min

Struggling to maintain control of your blood sugar? A gluten-free diet may be the answer! If you have one autoimmune disorder, you have a 30-50% greater risk of developing another, and both type 1 diabetes and celiac disease fall into that category.

As more and more research points to an enormous overlap between type 1 diabetes and celiac disease, it is in our best interests to mitigate additional risk by getting screened and/or adopting a gluten-free or Paleo diet to mitigate further risk. Today Nadine discusses the prevalence of diabetes, several research studies that explore the connection between type 1 diabetes and celiac disease, and the potential risks for type 1 diabetics who are undiagnosed celiac patients.

Listen and learn how your diet may be affecting your blood sugar and why going gluten-free could improve your health and quality of life!

What’s Discussed:

The prevalence of diabetes

  • By 2050, half the population will have diabetes
  • According to CDC, 29.1 million have diabetes
  • One out of four don’t know they are diabetic
  • 18,000 young people diagnosed from 2008-2009

The difference between type 1 and type 2 diabetes

  • Minimize risk for type 2 through diet and exercise
  • Type 1 is autoimmune disorder, don’t produce enough insulin to break down sugar

Symptoms of type 1 diabetes

  • Extreme thirst
  • Urgency to urinate frequently
  • Fatigue
  • Weakness

The enormous genetic overlap between type 1 diabetes and celiac disease

  • Scottish study found 94% of type 1 diabetics were HLA-DQ2 or HLA-DQ8 gene carriers
  • 100% overlap if include HLA-DQ2.2
  • Prevalence of celiac disease among type 1 diabetics is 20% higher than general population

The importance of testing all type 1 diabetics for celiac disease annually

  • Can develop celiac disease at any age

The consequences of undiagnosed celiac disease in children with type 1 diabetes

  • Short stature
  • Failure to thrive
  • Early onset osteopenia, osteoporosis
  • Easily broken or rubbery bones
  • Difficulty maintaining glycemic control (low blood sugar, spikes)
  • Anemia

The decreased quality of life for type 1 diabetics who are undiagnosed celiac

  • Development of infections
  • Difficulty with blood sugar maintenance

Research studies re: the percentages of type 1 diabetics who also have celiac disease

  • Iraq – 11.2%
  • Mexican participants – 5.9%
  • Denmark – 12.3%

Nadine’s anecdotal evidence of the overlap

  • Volunteers at community outreach clinic
  • Young man struggling to control blood sugar
  • Nadine recommended gluten-free diet
  • Improved health and quality of life

Health risks associated with an inability to control blood sugar

  • Blindness
  • Kidney failure
  • Amputation of extremities
  • Difficulty healing wounds
  • Heart attacks
  • Strokes

Why carb counting doesn’t control blood sugar

  • Carbs with little/no nutrient value cause spikes in blood sugar

The diet Nadine recommends for type 1 diabetics

  • Variation of Paleo diet
  • Nutrient dense foods
  • Meat and fish
  • Eggs
  • Fruits and vegetables
  • Nuts and seeds

The benefits of a gluten-free diet for type 1 diabetics

  • Weight easier to control
  • Immune system works better
  • Tighter control on blood sugar

The lack of uniformity in screening guidelines

Additional autoimmune diseases that may be avoided with a gluten-free diet

  • Multiple sclerosis
  • Lupus
  • Sjögren’s
  • Scleroderma
  • Autoimmune thyroiditis
  • Graves’ disease
  • Hashimoto’s
  • Vitiligo
  • Raynaud’s

Potential triggers for autoimmune disorders

  • Gluten
  • Change in microbiome
  • Stress to body (i.e.: cold, food poisoning, travel)

Treatments for small intestinal bacterial overgrowth

  • Low FODMAPs or specific carb diet
  • Rifaximin (antibiotic)

The dangers of maintaining high blood sugar

  • Damage to kidneys, eyes, capillaries, fingers and toes
  • Neuropathy
  • Gastroparesis

The long history of a connection between type 1 diabetes and celiac disease

The need for information re: the connection in diabetic education services

Resources:

“Type 1 Diabetes and Celiac Disease: The Effects of Gluten Free Diet on Metabolic Control” in the World Journal of Diabetes

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Forget everything you thought you knew about obesity.

68% of the population of the US is overweight, and we know that there are a number of health risks associated with the issue. But did you know that people are overweight because their bodies are actually starving?

Today the Gluten Free RN is challenging your assumptions about weight gain and celiac disease, revealing the surprising way your body compensates for malnourishment, the necessity of fat in nutrient absorption, and the healing power of a whole food gluten-free diet.

Listen and learn why more people are overweight when diagnosed with celiac disease than underweight, more have constipation than diarrhea, and more have neurological disorders than gastrointestinal issues. Nadine is prepared to shake up your idea of what it means to have celiac disease and offer guidance regarding the food we should be eating in order to heal, and lose – or gain – weight in the process!

What’s Discussed:

The classic symptoms of celiac disease

  • Used to be identified by weight loss and chronic diarrhea
  • We now know there are well over 300 signs and symptoms

The obesity epidemic in the US

  • 68% of the population is overweight
  • Obesity increases morbidity and mortality
  • The majority of celiac patients are overweight

Why celiac patients are overweight

  • Damage to intestines prevents absorption of nutrients
  • Body is starving, so it compensates by storing fat as cheap energy

The health risks associated with obesity

The failings of fast food

  • Little to no nutritional value
  • ‘Bad’ fat
  • Little use as energy

The whole food diet Nadine recommends for celiac and gluten sensitive patients

The rapid weight loss of overweight celiac patients once they adopt a gluten-free diet

Why wounds may not heal appropriately in celiac patients

  • Body is malnourished and cannot absorb nutrients
  • Nutrients are necessary to heal tissue

How to heal your body with food

  • Choose fermented foods
  • Regenerate villi in intestines
  • Build diverse microbiome

Nadine’s patient with tunneling wound in sacral area

  • Wound would not heal, required daily dressing changes
  • Patient was HLA-DQ2 gene carrier
  • Wound healed after 10 days on a gluten-free diet

How a gluten-free diet affects underweight celiac patients

  • Muscle and tissue build appropriately
  • Weight increases as nutrients are absorbed

The necessity of a high-fat diet for celiac patients

  • Vitamins A, D, E and K are fat-soluble
  • The brain is made of fat

‘Good’ fats that Nadine recommends incorporating into your diet

  • Listen in for the full list!!
Connect with Nadine:

Instagram

Facebook

Contact via Email

Books by Nadine:

Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Nadine covers the neurological symptoms associated with celiac disease and non-celiac gluten sensitivity. Celiac disease is primarily a neurological disorder, but the neurological symptoms are often misdiagnosed.

Nadine shares her own story as well as client anecdotes regarding the neurological issues faced by celiac patients and those with non-celiac gluten sensitivity. She outlines the common symptoms and discusses how to either slow their progression or eliminate them entirely.

Nadine explains the way gluten affects your neurological system and how a Paleo lifestyle can help you heal. Listen and understand how to get your brain back!

What’s Discussed:

How an immobile patient misdiagnosed with MS was able to walk again

  • Inspired by Dr. Terry Wahls book, The Wahls Protocol, she adopted a Paleo diet
  • Food can be medicine or poison

Misdiagnoses given to people who actually suffered from gluten ataxia

  • Parkinson’s
  • ALS
  • MS
  • Psychosomatic disorder

Why experts advocate for including an AGA in celiac testing

  • It provides a biomarker for non-celiac gluten sensitivity

Why the neurological component of celiac disease and non-celiac gluten sensitivity is so significant

  • The entire enteric nervous system is located in the bowels
  • Constipation and diarrhea occur when peristalsis is paralyzed due to gluten

The neurological symptoms of celiac disease and non-celiac gluten sensitivity

Why patients diagnosed with Alzheimer’s or dementia could be restored by a Paleo diet

  • An autopsy is the only way to definitively diagnose Alzheimer’s
  • Many patients have improved significantly after removing gluten from their diets

The components of a Paleo diet

  • Meats and fish
  • Nuts and seeds
  • Fruits and vegetables

How a Paleo lifestyle cleared Nadine’s neurological issues

  • Her balance issues went away
  • She no longer suffered frequent falls

The standard nutritional panels for a celiac patient

How glyphosates can cause leaky gut even in the absence of celiac disease or non-celiac gluten sensitivity

The health benefits Nadine has witnessed in patients who adopt a Paleo diet

  • No longer take prescription medication
  • Normal blood pressure
  • Desirable cholesterol level
  • Absorb nutrients appropriately
  • Body heals
Resources Mentioned:

The Wahls Protocol by Dr. Terry Wahls

Discovery Health: Celiac Disease

Connect with Nadine:

Instagram

Facebook

Contact via Email

Books by Nadine:

Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Gluten Free RN - The History of Celiac Disease EP041
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09/15/17 • 36 min

Perhaps the most intriguing thing about the history of celiac disease in the US is its absence—from medical textbooks, the vast majority of research studies, and the news—from 1952 through the 1990’s. Why did celiac disease disappear from the healthcare consciousness as well as the public eye?

Today the Gluten Free RN takes a closer look at the story of celiac disease, starting with the first doctor to understand it as a dietary issue back in 1888. She highlights the important progress made by pediatricians Willem Dicke who is credited with identifying gluten as the issue and Sidney Haas who honed the gluten-free diet to exclude specific carbohydrates. Nadine explores the period of time when celiac disease seemingly ‘went dark’ in the United States, discussing the handful of renegade authors and researchers who continued to study the disease despite its absence from health education.

Nadine also explains the resurgence of gluten sensitivity to the public consciousness in the 1990’s, when medical professionals from abroad questioned the claim that there was no celiac disease in the US. She covers our evolving understanding of the symptoms of celiac disease and the woefully inadequate training around gluten in medical and nursing schools. Listen in to find out why the mass screening proposed by the National Institute of Health never materialized and how the for-profit healthcare system impacts celiac patients. Let’s honor the practitioners who dedicated their careers to understanding celiac disease and write our own history through celiac advocacy!

What’s Discussed:

The first doctor to identify celiac disease

  • Samuel Gee, 1888
  • Established dietary approach to treatment

The role of Dr. Sidney V. Haas in advancing celiac treatment

  • All carbs and fats had been eliminated from celiac diet
  • Haas discovered that kind of carbs made difference
  • Experimented with fats, learned that could be absorbed
  • 370 celiac cases studied at Bellevue, only 2.2% not cured

The conclusions of a New York Times article from May of 1950

  • Late 1800’s, celiac disease ‘incurable and often fatal’
  • By 1950, 90% cured and deaths rare
  • Cause still unknown

The grains that contain gluten

  • Wheat
  • Barley
  • Rye
  • Oats (cross-contamination)

How Dr. Willem Dicke developed the gluten-free diet

  • Dutch pediatrician during WWII
  • No access to grains during famine, previously sick children improved
  • Mothers realized that when grains returned to diet, sickness returned
  • Dicke credited with determining that gluten causes damage

The myth that celiac is a childhood disease

  • Patients do not ‘grow out of it’
  • When gluten is reintroduced, disease returns (along with other disorders)

Elaine Gottschall’s work in developing the Specific Carbohydrate Diet

  • Grains containing proteins other than gluten have negative effect on digestive tract
  • Gottschall’s model removes all grains
  • Paleo/whole food diet considered ideal

The elimination of celiac disease from medical training

  • Stopped teaching in 1952
  • Debate over carbs vs. proteins
  • Same paragraph appears in medical textbooks from 1952-2008
  • Still taught incorrectly (if at all) in medical, nursing schools
  • Should be part of every differential diagnosis

The Paleo diet Nadine suggests for celiac and gluten-sensitive patients

  • Gluten-, dairy-free
  • Whole food
  • Low carb, super-good high fat
  • Appropriate supplements to remedy deficiencies

Hilda Cherry Hill’s 1976 book Good Food, Gluten Free

  • Hill cured invalid husband with gluten-free diet
  • Whole food, no grain derivatives

The classical symptoms of celiac disease

  • Fatty stool
  • Malabsorption
  • Short stature
  • Low energy
  • Infirm

The expanded picture of how celiac disease may present

  • Osteoporosis
  • Short stature
  • Delayed puberty
  • Iron deficiency anemia
  • Hepatitis
  • Recurrent canker sores
  • Elevated liver enzymes
  • Dental enamel defects
  • Peripheral neuropathy
  • Celiac cerebellar ataxia
  • Seizure disorders
  • Migraine headaches

The genes that indicate a predisposition to celiac disease

  • HLA-DQ2
  • HLA-DQ8
  • Occur in 30-50% of the population

How recognition of celiac disease resurfaced in the 1990’s

  • Gastroenterologists from abroad asking questions

The 2004 NIH Consensus Statement ...

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Gluten Free RN - Celiac Disease and the Media EP026
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06/02/17 • 38 min

The gluten-free movement is often dismissed in the media as a fad. Even so-called experts actively discredit the gluten-free diet and apply a negative connotation to terms like PWAG. Have you ever wondered why there is so much misinformation about celiac disease and non-celiac gluten sensitivity in the media? And who sponsors the coverage that dissuades people from going gluten-free?

Today, Nadine explains how the big business of wheat affects which voices we hear in media treatment of the gluten-free movement. In addition, she covers how the for-profit healthcare system in the US affects the timely diagnosis of celiac disease and non-celiac gluten sensitivity.

Celiac disease is a medical, social and economic issue with political implications. Listen and learn how to choose high quality, nutrient dense foods, and leverage your power as a gluten-free consumer!

What’s Discussed:

Misinformation in the media

  • Some coverage dissuades from adopting a gluten-free diet
  • Program/print sponsors may be corporations that depend on people eating wheat
  • Wheat/grain industry threatened by rise of gluten-free diet (33% of people in US and Canada on variation of gluten free diet)

The illusion of options in the area of food production

  • 8-10 corporations own nearly every food company
  • Nadine patronizes farmer’s markets, co-ops and local companies

Nadine’s rules for buying food products

  • Label must be clear, easy to read
  • Five or fewer ingredients
  • Must be able to picture each ingredient

The importance of reading labels

  • May be gluten in products that are typically gluten-free (i.e.: pesto, kombucha)
  • Companies are given six months to update labels after making changes
  • Barley and rye are not on list of allergens

Nadine’s story

  • Multi-system organ failure
  • Negative test for celiac disease despite being homozygous gene carrier
  • Healed quickly on a Paleo diet

Why countries with universal healthcare take celiac disease seriously

  • Early diagnosis saves money
  • Finland: 70% of people w/ celiac disease have been diagnosed
  • Italy, UK and Canada: 30-40% have been diagnosed
  • US: Less than 1% of those with celiac disease have been diagnosed

How long it takes to be diagnosed with celiac disease (for-profit vs. universal systems)

  • US: 9-15 years
  • Italy: 2-3 weeks

How doctors/experts discredit gluten-free as a fad

  • Use PWAG as derogatory term
  • Placebo effect
  • Nocebo effect (expect to feel poorly)

The inaccuracy of blood tests for celiac disease

  • 70% false negative

How companies profit from undiagnosed celiac patients

  • Products geared toward people with health issues (i.e.: compression socks, hypoallergenic sheets)

The prominence of wheat as a publicly traded commodity

  • Top export of US/Canada

The health risk associated with genetically modified wheat

The benefits of a gluten-free diet

  • Symptoms resolve
  • No longer need medicine, surgery

Nadine’s advice re: selecting gluten-free products

  • Avoid nutrient deficient gluten-free options (cheap fillers, empty carbs)
  • Focus on high quality, nutrient dense foods

How to leverage your power as a gluten-free consumer

  • Hold food producers accountable (standards, production methods)
  • ‘Vote carefully with your dollar’
  • Speak up when you see inaccurate media coverage

Why you cannot assume that gluten-free menu items are truly free of gluten

  • Uneducated restaurant staff
  • Possibility of contamination, cross-contamination

What a ‘gluten free’ designation means in labeling

  • GIG certification indicates less than ten parts per million
  • Standard in US/Europe is less than 20 parts per million

The Gluten Free RN mission

  • Educate people globally about celiac disease and non-celiac gluten sensitivity
  • Empower people to improve their health and quality of life with food
Resources:

Food Company Infographic

Gluten Intolerance Group

Connect with Nadine:

Instagram

Facebook

Contact via Email

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Gluten Free RN - Gluten Free Products EP048
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11/03/17 • 34 min

The increasing number of gluten-free products on the market can be both a blessing and a curse. Yes, it gives us more options, but are those options truly safe and healthy?

Today the Gluten Free RN goes over the important questions to ask about the products you consume, explaining how the foods promoted by some gluten-free groups may be influenced by their corporate sponsors. She reminds us why we can’t simply trust the products labeled ‘gluten-free’ or ‘gluten removed,’ discussing the lack of oversight and standardization around classification and the cumulative effect of consuming a number of products that are just under the 20 ppm cutoff.

Nadine also shares a list of companies she trusts to consistently produce gluten-free products and offers suggestions around new food options we might explore. Listen in and learn to choose the nutrient-dense foods that will help your body heal!

What’s Discussed:

The importance of questioning the source of your information

  • Gluten-free groups take money from sponsors (corporations, pharmaceutical companies)

Why Nadine avoids the ‘gluten removed’ label

The questions to ask about gluten-free products

  • Is it manufactured in a designated facility?
  • From where do they source the ingredients?
  • Do they batch test those ingredients?

The cumulative effect of eating many products just under 20 ppm

Reliable companies that consistently produce truly gluten-free products

The challenges faced by newly diagnosed celiac patients

  • Feeling different
  • Loss of convenience

Why Nadine avoids gluten-free breads

New food options to explore as a celiac patient

Why Nadine recommends reevaluating the foods you consume

  • Ensure they are nutrient dense, don’t cause inflammation

Why you can’t trust product labels

  • Corporations given six months to update after ingredients change
  • Not required to test products labeled gluten-free (no oversight, standardization)

Nadine’s rules around choosing products

  • Five ingredients or less
  • Must be able to picture ingredients
Resources:

Canadian Celiac Association

The Gluten Dude on Facebook

Ground Breaker Brewing

The Gluten Intolerance Group of North America

Enjoy Life Foods

Glutino

Namaste Foods

Pamela’s Products

Jilz Crackers

Lundberg Family Farms

Mary’s Gone Crackers

Casabi Crackers & Flatbread

Jackson’s Honest

Kettle Brand

Nima Sensor

EZ Gluten Test Strips

Applegate

Beeler’s Pure Pork

Hempler’s

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

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Gluten Free RN - Celiac Disease for Health Care Providers EP031
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07/07/17 • 48 min

Celiac disease is grossly underdiagnosed in the United States in large part because the medical community is operating on outdated information about the condition. And despite the recommendations of the National Institute of Health back in 2004, we have yet to implement a mass screening for celiac disease, and health care providers remain alarmingly uninformed.

The Gluten Free RN is taking steps to remedy the situation by sharing the basics for medical professionals. Today she covers the WHO’s definition of celiac disease, how our understanding of the condition has change over time, and some common misconceptions about celiac disease. She also explains the top symptoms, recommended testing for celiac disease and gluten sensitivity, and the neurological nature of the disorder.

Listen in to learn what health care providers need to know about this undiagnosed epidemic, the complex web of health issues that may result from undiagnosed celiac disease, and why it is important to have a high index of suspicion and include celiac testing on every differential diagnosis. Help your patients go gluten-free and collect something other than autoimmune disorders!

What’s Discussed:

The standard of care in the US

  • Providers should have diagnosed at least 1% of patients with celiac disease
  • Undiagnosed for 70 years, must overcome to prevent further pain and suffering

The goals of Nadine’s consulting business

  • Works with facilities to protect celiac patients
  • Ensure compliance with ADA

How the media portrays the gluten-free lifestyle

  • Dissuades people from adopting diet (program sponsors influence messaging)
  • Negative headlines

How our understanding of celiac disease has changed over time

The recommendations of the 2004 NIH consensus meeting regarding celiac disease

  • Mass screening (meets WHO criteria)
  • Education for health care providers

The World Health Organization criteria for mass screening

  • Early clinical detection essential
  • Condition is common
  • Screening tests highly sensitive and specific
  • Effective treatment available
  • Untreated condition leads to complications

The autoimmune disorders associated with undiagnosed celiac disease

  • MS
  • Type 1 diabetes
  • Lupus
  • Rheumatoid arthritis
  • Sjögren’s
  • Vitiligo

The WHO definition of celiac disease

  • Characterized by hypersensitivity to gluten
  • Prevalence currently estimated at 1:1,000 worldwide
  • Screening trials suggest prevalence of 1:100
  • Results in weight loss, diarrhea, nutritional deficiencies
  • Caused by villous atrophy
  • May present as extraintestinal manifestations or remain clinically silent

Why celiac disease can’t be ruled out with a single test

  • Can be triggered at any point
  • HLA-DQ2 and HLA-DQ8 genes indicate genetic predisposition

Misconceptions about celiac disease in the US medical community

  • Thought to be digestive disorder, but really neurological
  • Can present with seizures, numbness, constipation, balance issues, celiac cerebellar ataxia

How skin issues are a reflection of what is going on internally

  • Epithelial skin is same tissue as inside

How damage to the small intestine leads to multiple health issues

  • Increased permeability of intestinal wall
  • Leaky blood brain barrier
  • Leaky blood vessels
  • Leaky lungs and skin

The classic symptoms of celiac disease

  • Chronic diarrhea
  • Malabsorption
  • Extreme weight loss
  • Malnutrition

What celiac disease looks like in children

  • Diarrhea, constipation
  • General abdominal pain
  • Failure to thrive
  • Falling off growth chart
  • Short stature
  • Learning disabilities
  • ADD, ADHD, ODD
  • Autism
  • Skin issues (eczema, cirrhosis, acne)
  • Delayed puberty
  • Dental problems
  • Anorexia, obesity
  • Bed wetting

The prevalence of celiac disease in older adults

  • 30% of people diagnosed with celiac disease are over 60

Potential signs of celiac disease in the aging population

  • Dementia
  • Alzheimer’s
  • Vision, hearing loss
  • Urinary problems
  • Cancer diagnosis (especially bowel cancer)
  • Ataxia
  • Arthritis
  • Hair loss
  • Fatigue
  • Osteoporosis
  • Anemia

The elements that get into your blood stream as a result of villous atrophy

  • Toxins
  • Heavy metals
  • Undigested food particles
  • Yeast, fungus
  • Parasites, other harmful bacteria
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When faced with new information, it’s important to consider the source. Stop for a moment and examine whether the material is coming from someone with YOUR best interests at heart. The Gluten Free RN has just returned from the Colombia University Celiac Disease Conference, and she is breaking down the information presented to determine what’s useful—and what might be tainted by the pharmaceutical or food industry agenda.

Nadine begins with a workshop led by General Mills that offered some questionable information about how grains are processed at their factories and a talk led by University of Chicago faculty on the topic of a gluten challenge. She also speaks to the differences between celiac management in the US and countries with universal healthcare like Italy and Australia.

Nadine covers new testing that detects gluten exposure in stool or urine and what that reveals about the systemic nature of gluten damage as well as her take on practitioners who perpetuate the myth that grains are necessary and nutritious. Listen in for the Gluten Free RN’s insight around pharmaceutical treatments for celiac disease and the danger in volunteering for studies backed by drug companies.

What’s Discussed:

The two programs available at Colombia’s 2018 conference

  • Clinical (nurses, RDs and laypeople)
  • International (doctors, scientists, industry and VC)

How celiac disease is managed in Italy

  • Presentation by Dr. Carolina Ciacci
  • Law mandates gluten-free options

Nadine’s frustration with the General Mills presentation

  • Major sponsor of conference
  • Claim to separate grains at factory

Nadine’s take on gluten-free Cheerios

  • Should be avoided, not truly gluten-free

Nadine’s confusion around Dr. Bana Jabri’s comments

  • Wouldn’t put ‘potential celiac patient’ on gluten-containing diet
  • Did not include patients with positive antibody test but negative biopsy

Why the biopsy for celiac disease is problematic

  • Only tests one foot into duodenum
  • GI tract is 30 feet in length

Nadine’s insight on a gluten-free challenge

  • No possible benefit for patient
  • Unnecessary, unethical

The systemic nature of gluten damage

  • New tests detect gluten exposure in stool, urine
  • Urine test indicates passage through every system

Nadine’s stance on pharmaceutical treatments for celiac disease

  • No pill or vaccine will treat or cure CD
  • Harmful to people in studies

The myth that grains are necessary and nutritious

  • Practitioners who perpetuate are ‘toeing company line’

Why it’s important to understand the source of your information

  • Should be untainted by pharmaceutical money, agenda

Australia’s requirements for gluten-free food

  • Standard of less than 3 ppm
Resources:

Celiac Symposium Program

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal

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Gluten Free RN - The Irish and Celiac Disease EP062
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03/02/18 • 26 min

The Irish are known for being lucky... But does that luck hold out when it comes to celiac disease?

The prevalence of celiac disease among the Iris is 1:100, about the same as the rest of the world. And if you are a redhead of Irish descent, there is a good chance that you are an HLA-DQ2 or HLA-DQ8 gene carrier.

Today, the Gluten Free RN explores Irish ancestry and celiac disease, discussing how the Potato Famine led to a change in diet for much of the surviving population. She walks us through a paper published by Irish College of General Practitioners explaining the clinical presentations and complications of celiac disease.

Nadine shares her experience running the Dublin marathon and the health consequences she suffered after touring the Guinness brewery. Listen in to understand the work of the Coeliac Society of Ireland and learn about the trends in celiac disease among the Irish.

What’s Discussed:

Why red hair is associated with celiac disease

  • Tend to be HLA-DQ2 and/or HLA-DQ8 gene carriers

The prevalence of celiac disease in Irish Setters

  • Do much better on a gluten-free/Paleo diet

The Irish Potato Famine

  • Potato-based diet, little access to grains
  • Famine from 1845-1849
  • One million died, many emigrated

The myth that celiac disease is more prevalent in Europe than the US

  • 30-50% of the population carries HLA-DQ2, HLA-DQ8 gene

The myth that women are more susceptible to celiac disease

  • Statistics don’t support this belief

The Irish College of General Practitioners paper on celiac disease

  • Clinical presentations, complications of celiac disease
  • Conditions associated with increased prevalence

The prevalence of celiac disease in Ireland

  • 1:100 (matches rest of world)

The appropriate testing for celiac disease and NCGS

  • Blood test for total IgA/IgG, DGP and AGA

Nadine’s experience running the Dublin marathon in 1998

  • Extreme edema in lower extremities

The information provided by the Coeliac Society of Ireland

  • Health ramifications of undiagnosed CD
  • Average duration from symptoms to diagnosis (nine months)
Resources:

‘Gluten-Sensitive Enteropathy in a Family of Irish Setters’ in The Canadian Veterinary Journal

‘Diagnosis and Management of Adult Coeliac Disease’ in ICGP

Coeliac Society of Ireland

‘Prevalence and Incidence of Celiac Disease in Edinburgh and the Lothian Region of Scotland’ in Gastroenterology

‘Prevalence and Diagnosis’ by the Coeliac Society of Ireland

‘Coeliac Disease in Europe’ in Alimentary Pharmacology & Therapeutics

‘Escalation in the Amount of Adults Diagnosed with Coeliac Disease’ in Lifestyle Health

‘Gluten-Free Foods’ by the Food Safety Authority of Ireland

‘How Irish Diets of the Past Affect the Present’ in The Irish Times

‘Changes in Presentation of Celiac Disease in Ireland from the 1960s to 2015’ in Clinical Gastroenterology and Hepatology

‘Coeliac Disease: A Personal Perspective’ in Irish Health

‘Coeliac Disease: More Common Than You Think in Irish Health

‘Pathology and Management of Coeliac Disease’ by the Dublin Academic Medical Centre & UCD

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Gluten Free RN - Gluten and Your Urinary Health - EP003
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12/19/16 • 26 min

In this episode of ‘Gluten Free RN,’ Nadine discusses the urinary system and urinary issues associated with the ingestion of gluten, gluten intolerance and/or celiac disease. If you are experiencing health problems related to the urinary system, it is possible that eliminating gluten and dairy will eliminate the problem.

Nadine utilizes anecdotes from her own experience and those of her friend and colleague Wendy Cohan, author of The Better Bladder Book, to illustrate the connection between diet and urinary health.

This episode explains how your urinary system works and outlines the difficulties you may be experiencing. Click and listen to learn how changing your diet could alleviate your pain!

What’s Discussed:

  • The symptoms of interstitial cystitis (IC)
  • The connection between gluten and IC
  • After adopting a gluten-free diet, colleague Wendy Cohan no longer has IC
  • Other urinary issues that may be caused by the ingestion of gluten
  • Kidney and brain stones
  • Repeat urinary tract infections
  • Bed wetting
  • The health problems specific to men that are caused by inflammation in the urinary system
  • Chronic prostatitis (CP)
  • Prostate cancer
  • Erectile dysfunction (ED)
  • When it is appropriate to treat urinary infection with antibiotics
  • Antibiotic stewardship means we use them judiciously
  • Why implementing a gluten-free diet may be better than taking medication for urinary issues
  • 95% of female IC patients and 77% of male CP patients reported food sensitivities
  • The ways in which other body systems are affected by urinary issues
  • It is rare for these difficulties to occur in isolation
  • Large numbers of IC and CP patients report having additional symptoms, i.e.: irritable bowel syndrome, fibromyalgia
  • The importance of addressing the underlying cause of your urinary issues
  • The components of the urinary system
  • What healthy urine looks like
  • The need for additional research to confirm the effects of gluten on urinary health

Resources Mentioned:

The Better Bladder Book: A Holistic Approach to Healing Interstitial Cystitis and Chronic Pelvic Pain by Wendy L. Cohan https://www.amazon.com/Better-Bladder-Book-Holistic-Interstitial/dp/0897935551/ref=sr_1_1?s=books&ie=UTF8&qid=1481754556&sr=1-1&keywords=wendy+cohan+the+better+bladder+book

Connect with Nadine:

Website http://glutenfreern.com/

Instagram https://www.instagram.com/glutenfreern/

Facebook https://www.facebook.com/GlutenFreeRN

Email [email protected]

Books by Nadine:

Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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FAQ

How many episodes does Gluten Free RN have?

Gluten Free RN currently has 74 episodes available.

What topics does Gluten Free RN cover?

The podcast is about Health & Fitness, Nurse, Medicine, Podcasts, Health and Paleo.

What is the most popular episode on Gluten Free RN?

The episode title 'Musings & Truths From the Gluten Free RN EP073' is the most popular.

What is the average episode length on Gluten Free RN?

The average episode length on Gluten Free RN is 29 minutes.

How often are episodes of Gluten Free RN released?

Episodes of Gluten Free RN are typically released every 7 days.

When was the first episode of Gluten Free RN?

The first episode of Gluten Free RN was released on Dec 12, 2016.

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