
From The Heart: The HeartKids Podcast
HeartKids
Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease.
We'll tackle the big issues - what it's like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us living with CoHD.
Your hosts are Rachael Knowles, a young adult with CoHD, and Sami Glastonbury, a mother of two children with CoHD.
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for all people impacted by CoHD.
All episodes
Best episodes
Seasons
Top 10 From The Heart: The HeartKids Podcast Episodes
Goodpods has curated a list of the 10 best From The Heart: The HeartKids Podcast episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to From The Heart: The HeartKids Podcast for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite From The Heart: The HeartKids Podcast episode by adding your comments to the episode page.

Supporting a Heart Kid, to a Heart Teen... Amy Heafield's Story
From The Heart: The HeartKids Podcast
10/29/24 • 30 min
In this episode of "From the Heart," join our host, Sami, for a conversation with Amy Heafield.
Many families who have spent time at the Royal Children's Hospital in Melbourne will have crossed paths with Amy; Amy is a Support Coordinator with HeartKids, and a parent to a heart teen.
Amy and Sami chat about what HeartKids Support looks like, the joys of supporting teens on teen camp, and considerations in supporting a heart kid, as they transition through childhood, to their teen years, and beyond.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.
For support, information or guidance on your CoHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au
CREDITS
Host: Sami Glastonbury
Guest: Amy Heafield
Producer: Melissa Clarke

HeartKids Dads: A Support Group For Fathers Of Children With CHD... Ben Taylor
From The Heart: The HeartKids Podcast
03/04/23 • 24 min
Ben Taylor runs HeartKids Dads, a national support group for fathers of children with heart conditions. In this episode he talks about his own family's journey with CHD, as well as all the different ways the HeartKids Dads group provides support to the community. The group has been running for 9.5 years and has grown from 6 members to over 250 today.
LINKS
Join the HeartKids Dads group: HeartKids Dads Facebook Support Group
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au
CREDITS
Host: Sami Glastonbury
Guest: Ben Taylor
Producer: Isobel Pritchard-Davies

1800 Helpline: How Can I Be the Support You Need? ... Mel Clarke's Story
From The Heart: The HeartKids Podcast
07/08/23 • 26 min
Mel is a project coordinator at HeartKids, as part of the National Action Plan, implemented to reduce the impact of childhood heart disease in Australia and achieve the goal that people with childhood-onset heart disease live longer, healthier and more productive lives.
In this episode, Mel chats about the projects she runs at HeartKids, focusing on increasing support for families online, and over the phone.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au
CREDITS
Host: Sami Glastonbury
Guest: Melissa Clarke
Producer: Melissa Clarke, Becky Oakley

What is Genetic Counselling? Laura Yeates
From The Heart: The HeartKids Podcast
06/10/23 • 29 min
Laura is a cardiac genetic counsellor and current PhD candidate with research projects focusing on inherited cardiomyopathy and arrhythmia. In this episode, Laura talks about what genetic counselling is, who can access it, and how genetic counselling is used to understand more about health conditions, and accessing the right supports around those conditions.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au
CREDITS
Host: Sami Glastonbury
Guest: Laura Yeates
Producer: Melissa Clarke, Becky Oakley

My Daughter's Heart Transplant... Ebony's Story
From The Heart: The HeartKids Podcast
05/21/22 • 22 min
Ebony had no idea her two-year-old daughter Milly even had a heart condition when she became unwell and was rushed to hospital one night.
The doctors thought it might be Milly's kidneys, but soon discovered it was her heart. Ebony was told Milly was in heart failure and urgently needed a heart transplant.
Milly is now six years post-transplant and is a happy and healthy nine-year-old thanks to what she calls her 'angel heart'.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au
LINKS
HeartKids Support Group: https://www.facebook.com/groups/heartkidssupport
CREDITS
Host: Rachael Knowles
Guest: Ebony Mallinson
Producer: Isobel Pritchard-Davies

Navigating a New Diagnosis Pathway, for Heart Kid # 2... Sami Glastonbury's Life Updates
From The Heart: The HeartKids Podcast
11/12/24 • 30 min
In this episode of "From the Heart," join our host, Sami, for a catch-up conversation with podcast producer, Mel.
Mel and Sami chat about Sami's current pathway to seeking a diagnosis for her daughter, as well as updates from all the incredible events and outcomes from HeartKids for the year.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.
For support, information or guidance on your CoHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au
CREDITS
Host: Sami Glastonbury
Producer: Melissa Clarke

Greek Sweets and Good Will: How I Support The CHD Community... Arthur Iliopoulous' Story
From The Heart: The HeartKids Podcast
04/29/23 • 33 min
Arthur is a dad to a daughter with CHD, and a passionate fundraiser for HeartKids through his workplace. In this episode, Arthur talks about his family’s grassroots fundraising efforts, Greek sweets, and the joy of supporting the heart kids community with scholarships via his workplace, Drake’s Supermarkets.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au
CREDITS
Host: Sami Glastonbury
Guest: Arthur Iliopolous
Producer: Isobel Pritchard-Davies, Melissa Clarke

Creativity, optimism, and community: CJ's journey with bicuspid aortic valve
From The Heart: The HeartKids Podcast
04/07/24 • 15 min
In this episode, meet CJ , a 17-year-old from Melbourne, Victoria, who shares his experiences of growing up with bicuspid aortic valve. Tune in to hear CJ's story, how he managed his surgeries, and finds positivity through art and support through friends and community.
CREDITS
Host: Rachael Knowles
Guest: CJ Gagliardi
Producer: Becky Oakley
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by Childhood-onset Heart Disease. For support, information or guidance on your CoHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au

What Pregnancy Is Like When You Have A Congenital Heart Condition... Tegan's Story
From The Heart: The HeartKids Podcast
12/20/21 • 21 min
What is pregnancy like when you have a congenital heart condition?
Tegan had a Fontan procedure as a child. She's now 34 years old and a mother of three. Her experience of pregnancy has been different each time, and not always smooth, but each time it's been made possible through the support and careful guidance of her cardiology and health care team.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au
LINKS
CHD and Pregnancy podcast with A/Prof Dominica Zentner: https://www.buzzsprout.com/1900105/10308023-pregnancy-contraception-and-family-planning-a-prof-dominica-zentner
Pregnancy, Contraception and Family Planning (Fact Sheet): https://hkheartkids.blob.core.windows.net/assets/pages/11HKFSexualHealthandPregnancy_v2.pdf
Listen to host Rachael's story: https://www.buzzsprout.com/1900105/10031016-the-grief-at-the-heart-of-it-rachael-knowles-story
CREDITS
Host: Rachael Knowles
Guest: Tegan Le Breton
Producer: Isobel Pritchard-Davies

My heart kid dad journey: From childhood to adulthood - Matt's Story
From The Heart: The HeartKids Podcast
03/02/24 • 26 min
In this episode of "From the Heart," join our host, Sami, for a conversation with Matt Tognini. Matt is the father of a heart kid, Alessandra, who was born with a complex congenital heart condition.
Sami and Matt chat about the impacts of flying across the country for heart surgery, the parent perspective of the process of transition from paediatric care to adult care, and supporting his heart kid adult as she prepares for upcoming surgery.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.
For support, information or guidance on your CoHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au
CREDITS
Host: Sami Glastonbury
Guest: Matt Tognini
Producer: Melissa Clarke
Show more best episodes

Show more best episodes
FAQ
How many episodes does From The Heart: The HeartKids Podcast have?
From The Heart: The HeartKids Podcast currently has 85 episodes available.
What topics does From The Heart: The HeartKids Podcast cover?
The podcast is about Stories, Health & Fitness, Parenting, Kids & Family, Heart, Podcasts and Health.
What is the most popular episode on From The Heart: The HeartKids Podcast?
The episode title 'Supporting the Sibling... Chloe Peck's Heart Sibling Journey.' is the most popular.
What is the average episode length on From The Heart: The HeartKids Podcast?
The average episode length on From The Heart: The HeartKids Podcast is 31 minutes.
How often are episodes of From The Heart: The HeartKids Podcast released?
Episodes of From The Heart: The HeartKids Podcast are typically released every 14 days.
When was the first episode of From The Heart: The HeartKids Podcast?
The first episode of From The Heart: The HeartKids Podcast was released on Dec 8, 2021.
Show more FAQ

Show more FAQ