Unsung Heroes: Charities and Family Support Groups

Do you know the purpose of family support groups and charities, particularly in the context of rare diseases? Believe it or not, their role tends to be poorly recognised.
We have the immense honour to have Bhavna Tailor, founder and CEO of Stargardt’s Connected, to help us set the record straight.
Do check Stargardt’s Connected website, stargardtsconnected.org.uk, and feel free to reach out to them via [email protected].

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