Dementia Researcher - Behind the Approval: Research Ethics & Consent

Behind the Approval: Research Ethics & Consent

01/22/24 • 44 min

3 Listeners

Join PhD Student and Guest Host Rebecca Williams as she explores the often intricate and crucial world of research ethics approvals and participant consent in dementia research. Rebecca is joined by experts: Dr. Anna Volkmer, a Senior Research Fellow at University College London, Dr. Victoria Shepherd, Senior Fellow from Cardiff University, and Danielle Wilson, Head of Commercialisation and Ethics Chair from the UK Dementia Research Institute at Imperial College London. Our panelists bring a wealth of experience from various backgrounds, including speech and language therapy, nursing, research delivery, capacity evaluation, consent and health research ethics. They offer invaluable insights into the ethical, legal, and practical challenges of involving people with dementia and other conditions in research. The discussion covers a range of topics including the basics of research ethics, how to apply and manage participant consent, with tips for new applicants and goes further to explore the evolving landscape of research ethics in the age of emerging technologies like AI. This episode is a must-listen for anyone researchers involved in health and social care. Whether you're a seasoned researcher or new to the field, and making your first ethics application this show offers a unique opportunity to hear from experts who have led ethics panels and navigated these challenges themselves. -- Resources discussed in the show: HRA - Research Ethics Service and Research Ethics Committees https://bit.ly/3SnhNm8 HRA - What approvals and decisions do I need? https://bit.ly/3u6MtyF NIHR INCLUDE Impaired Capacity to Consent Framework https://bit.ly/3vJ39Nq -- Full biographies on all our guests and a transcript can be found on our website https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast on our website and YouTube Channel, with closed captions. https://youtu.be/lpcLXaBxpTE -- This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://bsky.app/profile/dementiaresearcher.bsky.social https://www.linkedin.com/company/dementia-researcher

Previous Episode

Crossing Borders: Exploring the Blood-Brain Barrier

2 Recommendations

Dr Fiona McLean, ARUK Research Fellow, University of Dundee is joined by fellow experts Dr Kate Harris and Dr Sophie Morse, to explore the intricacies of the blood-brain barrier and its pivotal role in dementia research. They discuss pioneering methods in overcoming the barrier for drug delivery, the significance of endothelial cells in barrier integrity, and novel approaches in treating neurodegenerative diseases. The conversation also touches on the collaborative nature of neuroscience, offering invaluable insights for newcomers to the field. Don't miss this deep dive into the forefront of dementia research. -- Meet the guests: Dr Sophie Morse is a Research Fellow & UK DRI Emerging Leader at Imperial College London, within the UK Dementia Research Institute. Sophie is a biomedical engineer who leads a research group exploring the use of Therapeutic Ultrasound for Brain Diseases. Dr Kate Harris is an Academic Track Alzheimer’s Research UK Fellow in Drug Discovery at Newcastle University. Kate is working on finding new drug targets for neurodegenerative disease in neuroinflammation. -- Links mentioned in the show: Rapid short-pulses of focused ultrasound and microbubbles deliver a range of agent sizes to the brain - https://bit.ly/41PFvuh -- Full biographies on all our guests and a transcript can be found on our website https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast on our website and YouTube Channel, with closed captions. https://youtu.be/1x_6ij9N6pU -- This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://bsky.app/profile/dementiaresearcher.bsky.social https://www.linkedin.com/company/dementia-researcher

Next Episode

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In this episode of the Dementia Researcher Podcast, Dr Sam Moxon and accredited dietitian Amber Sewell-Green discuss the potential of diet and nutrition and it's role in motor neuron disease (MDN) / Amyotrophic lateral sclerosis (ALS). Amber, a researcher and PhD candidate, shares her insights on the importance of dietary choices for brain health, the role of plant-based nutrition, and the impact of lifestyle changes on neurological diseases. This conversation explores the intricate relationship between diet, genetics, and MND / ALS, offering a hopeful perspective on prevention and quality of life improvements through nutrition. Join us as we uncover the power of food in supporting brain health and fighting neurodegenerative diseases. -- For more information on Amber's research into diet, metabolism and MND at The University of Queensland (UQ) Brisbane, Australia visit: https://biomedical-sciences.uq.edu.au/research/groups/heterogeneity-in-neurodegenerative-disease If you would like to hearing more, get involved or supporting their vital work do get in touch with Amber or her colleagues Associate Professor Derik Steyn. Email: [email protected] / [email protected] Derik and his partner Associate Professor Shyuan Ngo are world experts on the topic of nutrition & metabolism in MND and have been driving this research and the research clinics here in Brisbane the past 8 years. Find out more about them and their work at: https://researchers.uq.edu.au/researcher/2027 https://biomedical-sciences.uq.edu.au/research/groups/heterogeneity-in-neurodegenerative-disease -- Full biographies on all our guests and a transcript can be found on our website https://www.dementiaresearcher.nihr.ac.uk Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast on our website & YouTube channel, with captions https://youtu.be/HWKArqDPGYQ -- This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://bsky.app/profile/dementiaresearcher.bsky.social https://www.linkedin.com/company/dementia-researcher