Behind the Approval: Research Ethics & Consent

Join PhD Student and Guest Host Rebecca Williams as she explores the often intricate and crucial world of research ethics approvals and participant consent in dementia research. Rebecca is joined by experts: Dr. Anna Volkmer, a Senior Research Fellow at University College London, Dr. Victoria Shepherd, Senior Fellow from Cardiff University, and Danielle Wilson, Head of Commercialisation and Ethics Chair from the UK Dementia Research Institute at Imperial College London. Our panelists bring a wealth of experience from various backgrounds, including speech and language therapy, nursing, research delivery, capacity evaluation, consent and health research ethics. They offer invaluable insights into the ethical, legal, and practical challenges of involving people with dementia and other conditions in research. The discussion covers a range of topics including the basics of research ethics, how to apply and manage participant consent, with tips for new applicants and goes further to explore the evolving landscape of research ethics in the age of emerging technologies like AI. This episode is a must-listen for anyone researchers involved in health and social care. Whether you're a seasoned researcher or new to the field, and making your first ethics application this show offers a unique opportunity to hear from experts who have led ethics panels and navigated these challenges themselves. -- Resources discussed in the show: HRA - Research Ethics Service and Research Ethics Committees https://bit.ly/3SnhNm8 HRA - What approvals and decisions do I need? https://bit.ly/3u6MtyF NIHR INCLUDE Impaired Capacity to Consent Framework https://bit.ly/3vJ39Nq -- Full biographies on all our guests and a transcript can be found on our website https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast on our website and YouTube Channel, with closed captions. https://youtu.be/lpcLXaBxpTE -- This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://twitter.com/demrescommunity https://bsky.app/profile/dementiaresearcher.bsky.social https://www.linkedin.com/company/dementia-researcher