Why is Dementia Research Important?

12/08/22 • 31 min

Recorded at the Dementia Research Charity #Chatathon 2022 - Adam Smith interviews Chris Roberts & Jayne Goodrick.

Chris Roberts and Jayne Goodrick are from Wales. Chris was diagnosed with mixed dementia in early 2012 but has not let this diagnosis get in the way of leading a full life.

He and his amazing wife Jayne, spend most of their time promoting and providing education to others about dementia. Chris regularly give talks on what it’s like to live with dementia and how research plays an important role in unlocking new treatments and better care, supported by Jayne who provides unique insights as someone living with the disease in a different way. Together they believe in dementia rights, inclusion, co-production and the promotion of better services for everyone living with dementia.

Chris is an Ambassador for the UK Alzheimer’s Society, Join Dementia Research Champion, Affiliate member of Dementia Action Alliance UK, Honorary Lecturer, Bangor University, Wales and a Member of the NICE Dementia Clinical Guideline Review Committee.

The 2022 Dementia Research Charity Chatathon LIVE was held on Friday 2nd December - A non-stop 12.5 hours livestream hosted by Adam Smith interviewing 68 Dementia Researchers and Special Guests working across all areas of discovery to beat Alzheimer's disease and all forms of dementia.

Raising money for research and providing insights into the latest research taking place across the UK and Worldwide. This year we are raising money for four amazing charities who all fund research - Alzheimer's Research UK, Alzheimer's Society, Race Against Dementia and The Lewy Body Society.

For more information and to donate visit http://www.chatathon.uk

Recorded at the Dementia Research Charity #Chatathon 2022 - Adam Smith interviews Chris Roberts & Jayne Goodrick.

Chris Roberts and Jayne Goodrick are from Wales. Chris was diagnosed with mixed dementia in early 2012 but has not let this diagnosis get in the way of leading a full life.

For more information and to donate visit http://www.chatathon.uk

Previous Episode

Dementia Research Charity Chatathon

The 2022 Dementia Research Charity Chatathon LIVE was held on Friday 2nd December - A non-stop marathon 12.5 hour livestream with Adam Smith interviewing 68 Researchers and Special Guests working across all areas of discovery to beat Alzheimer's disease and all forms of dementia. The event had two aims 1. Raise money for four great research charities 2. Share insights into the latest research taking place across the UK and Worldwide.

Aimed at anyone with an interest in dementia (including healthcare professionals, clinicians, researchers, people living with dementia and their families), the chatathon revolved around interviewing researchers in small groups throughout the day, covering everything from prevention, diagnosis, the latest treatments, improvements in care and everything in between.

This year the event was to raise money for four amazing charities who all fund research - Alzheimer's Research UK, Alzheimer's Society, Race Against Dementia and The Lewy Body Society.

There is still time to donate and find out more information at http://www.chatathon.uk

Next Episode

Clinical Trials, Lewy Bodies & what Sleep can tell us

Recorded at the Dementia Research Charity #Chatathon 2022 - Adam Smith interviews Olga Borejko, Project Manager at King's College London and Victoria Grace Gabb, Research Associate at University of Bristol & Southmead Hospital

Olga Borejko - I manage a portfolio of clinical studies and commercial trials for patients with dementia with Lewy bodies (DLB) and Mild Cognitive Impairment (MCI) due to Alzheimer’s disease, at Old Age Psychiatry, King’s College London. I’m responsible for setting up the studies, recruitment and completing clinical/cognitive assessments with patients. My main research interest lies within understanding better how clinical and biological markers affect the disease trajectory in DLB patients. Specifically, how biomarkers associated with Alzheimer’s disease pathology affect the rate of cognitive decline in DLB patients (ENLIST-UK & EPND study, my PhD). At KCL, we are also involved in clinical trials looking at disease modifying treatments, which aim to reduce amyloid beta plaques in patients with prodromal AD (Abate study).

Victoria Gabb - I work at the Bristol Brain Centre in Southmead Hospital in sleep and dementia research, looking specifically at sleep and circadian rhythms in older adults during the early stages of Alzheimer's disease and Lewy body disease compared to older adults without cognitive impairment. A lot of the work we're doing at the moment is looking at how we can identify sleep and circadian changes in the home environment using technology such as actigraphy, EEG headbands, and mobile apps.

For more information and to donate visit http://www.chatathon.uk