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Dementia Dialogue

Dementia Dialogue

dementiadialogue

Check out www.dementiadialogue.ca Our podcasts feature people with dementia, their care/life partners, and supporters sharing experiences. They demonstrate their capacity to live fully and enable peer listeners to understand and gain insight and strengthen their adaptive skills. Episodes also enhance understanding within the broader community of what it means to live with dementia.
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Top 10 Dementia Dialogue Episodes

Goodpods has curated a list of the 10 best Dementia Dialogue episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to Dementia Dialogue for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite Dementia Dialogue episode by adding your comments to the episode page.

The Solidarity of Sisterhood: Women Living with Dementia

Three inspiring women living with dementia—Brenda, Clara, and Myrna, talk with Dr. Elaine Wiersma about what a diagnosis means to them. Through a “kitchen table” conversation about the challenges and joys of being women living with dementia, you will walk away inspired by their courage and resilience.

Women are more likely to be impacted by dementia, both as people living with a diagnosis and as care partners. While gender has largely been ignored in dementia research and supports, these women’s stories illustrate the importance of understanding how dementia impacts various groups of people.

Since Brenda Hounam was diagnosed in 2000, she has been an active advocate for people living with dementia. She is the founder of the By Us For Us (BUFU) guides, a series of booklets for people with dementia by people with dementia. Brenda was a guest in Episode # 21.

Clara Mersereau is one of the most kind, and loving spirits anyone could know. She’s always the first to find the bright side if you are having a hard time seeing it. Clara was diagnosed with Alzheimer’s just over 4 yrs ago. Clara and her family will be/are featured in Episode 33.

After being diagnosed 12 years ago with frontal temporal dementia, and after several years of despair and questioning, Myrna Norman began to educate herself about dementia. She was 59 at the time. Since then, Myrna has become an Advocate for all Persons Living With Dementia and their family and friends. Norma talks more about her life and her writings in Episode 23.

Dr. Elaine Wiersma, PhD, Associate Professor, Department of Health Sciences, and Associate Director, Centre for Education and Research on Aging & Health (CERAH), Lakehead University, Thunder Bay, Ontario, Canada.

If you are a woman living with dementia and would like to join an online bi-weekly Sisterhood group for women living with dementia, please contact Elaine at [email protected] .

For further information, please see the following resources:

A short video called “Women with Dementia Living Strong”

https://www.youtube.com/watch?v=aG8BKSyFUK0

Bamford, S. (2011). Women and dementia—not forgotten. https://ilcuk.org.uk/wp-content/uploads/2019/01/Women_and_dementia.pdf

Alzheimer Society of Canada

https://alzheimer.ca/on/sites/on/files/documents/2015%20Media%20Releases-.pdf

Alzheimer Society UK—Why is dementia different for women?

https://www.alzheimers.org.uk/blog/why-dementia-different-women

Alzheimer Disease International—Women and Dementia: A Global Research Review

https://www.alzint.org/resource/women-and-dementia-a-global-research-review/

Academic articles:

Broders, K.1, & Wiersma, E.C. (2020 online first). Creating change: The experiences of women living with young-onset dementia. Disability & Society. https://doi.org/10.1080/09687599.2020.1848801

Bartlett, R., Gjernes, T., Lotherington, A-T., Obstefelder, A. (2018). Gender, citizenship and dementia care: a scoping review of studies to inform policy and future research. Health and Social Care in the Community, 26(1), 14-26. https://doi.org/10.1111/hsc.12340

Sandberg, L.J. (2018). Dementia and the gender trouble? Theorizing dementia, gendered subjectivity and embodiment. Journal of Aging Studies, 45, 25-31. https://doi.org/10.1016/j.jaging.2018.01.004

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Jill Czuczman a care partner to her husband David, living with Frontotemporal Dementia talks about some of the unique challenges associated with young-onset dementia from the long road to getting a diagnosis, to leaving the workforce early, the lack of understanding and stigma, to the struggles to find supports that meet the unique needs of those living with or caring for someone with dementia in mid-life. Facing these challenges head-on, Jill shares how she and David have made the choice to find the positive every day and the steps they have taken to live well with dementia, including getting involved in research and becoming advocates.

Resources

Frontotemporal Dementia (FTD) Durham Support Group - https://m.facebook.com/groups/221301621683010

The Association for Frontotemporal Dementia - https://www.theaftd.org

brainXchange, Frontotemporal Dementia Resource Page - https://brainxchange.ca/Public/Resource-Centre-Topics-A-to-Z/Dementias-Rare-forms-of-/Frontotemporal-Dementia

Alzheimer Society of Canada, Young Onset Dementia - https://alzheimer.ca/en/about-dementia/other-types-dementia/young-onset-dementia

brainXchange, Young Onset Dementia Resource Page - https://brainxchange.ca/Public/Resource-Centre-Topics-A-to-Z/Young-Onset-Dementia

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Pour ce dernier épisode de notre deuxième saison, nous avons eu une conversation fascinante sur les nouveaux modèles de résidences pour aînés vivant avec un trouble neurocognitif majeur avec le professeur Philippe Voyer.

Comment est-ce qu’on peut repenser nos modèles de résidences pour les rendre plus accueillantes pour les aînés atteints de trouble de mémoire et leurs familles? Quels sont les détails auxquels il faut penser lors de la planification des différentes pièces qui composent une résidence pour aînés vivant avec un trouble neurocognitifs majeur? Quelle est la satisfaction du personnel soignant qui travaille dans ces nouveaux milieux?

C’est ce que nous apprenons dans le balado qui suit!

Philippe Voyer, inf., Ph.D. est professeur titulaire et Vice-doyen aux études de premier cycle et à la formation continue de la Faculté des sciences infirmières de l’Université Laval. Dans le cadre de ses fonctions, monsieur Voyer s’implique dans l’enseignement et la formation continue, la recherche et la pratique clinique. Il est l’auteur de plusieurs livres utilisés au Québec et en Europe qui se sont mérités de prestigieux prix dont le Prix du ministre de l’Éducation. Il est le chercheur principal ayant créé l’outil RADAR permettant de détecter les signes du delirium (outil maintenant disponible en 7 langues (https://www.philippevoyer.org/radar-international). Il a aussi été l’expert mandaté par le ministère de la Santé et des services sociaux dans un projet vitrine visant à transformer des CHSLD classiques en CHSLD Alzheimer. Il était aussi membre du comité mandaté par le MSSS pour produire le Plan Alzheimer et a co-présidé la création des lignes directrices québécoises sur la prise en charge des SCPD. Il est conseiller aussi pour le ministère des Aînés et des proches aidants pour la réalisation des Maisons des aînés. Enfin, il a participé à la création des Maisons l’étincelle et Humanitae qui sont des milieux de vie pour la clientèle vivant avec la malade d'Alzheimer. Ces milieux novateurs ont permis de tester diverses technologies visant le bien-être et la sécurité des résidents. Pour plus de détails : https://www.philippevoyer.org/biographie

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In this second of 2 episodes which marks The National Day of Truth and Reconciliation, Lisa Loiselle talks with Laura Alfaro and Danielle Alcock who both work in Indigenous health and were involved in the Circle of Care, which is a project that addresses the needs of Indigenous caregivers of people living with dementia. Laura was the project officer at the Native Women’s Association of Canada leading the project and Danielle facilitated the talking circles during the program. Danielle has also been a caregiver to her father for the past ten years.

In part 1, Laura and Danielle laid the groundwork for understanding dementia and the caregiving role from an Indigenous perspective.

In part 2, Lisa speaks with Laura and Danielle more specifically about the Circle of Care project, the process, purpose, outcomes and challenges.

Please go to nwac.ca/assets-knowledge-centre/30-March-CIRCLE_OF_CARE_TOOLKIT.pdf to view and download the toolkit. You may also be interested in reading other material on dementia on the NWAC website such as nwac.ca/assets-knowledge-centre/NWAC.Eng.Bk.Dementia.Stigma.pdf

Laura Alfaro was the project lead for the Native Women’s Association of Canada’s Circle of Care project. She is a researcher with extensive experience in post-secondary, community-based, non-profit, and cross-cultural settings.

Danielle Alcock spirit name is 'Shining Water') is a member of Mnjikaning First Nation whosePhD at focused on storytelling of Indigenous female caregivers for a loved one with memory loss. Danielle was a front line provider in Indigenous health working with clients across the lifespan. and continues to work in Indigenous health focused on improving culturally safe care and supporting primary care in Southwestern Ontario.
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Dementia Dialogue - Demystifying Dying: Stories from a Death Doula
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10/14/23 • 37 min

In this episode, the first in a new series on Dying and Dementia, guest host Jillian McConnell, Knowledge Translation Specialist with the brainXchange, sits down with Anne Marie Stoneburgh a Death Doula. Many people avoid this topic in our death-averse society and yet we are all “living while we are dying”. Annie explains what a Death Doula, or End-of-Life Care Facilitator is and the role they might play in supporting individuals and families through the dying process. The stories she shares highlight the importance of having conversations early and often about dying. By talking about our wishes with the people in our lives we can demystify dying and support death experiences that honour those wishes.

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Dementia Dialogue - Dying & Dementia: Let’s Talk About It
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11/22/23 • 19 min

We continue our series on Dying and Dementia, with Ron Posno. Ron lives with Alzheimer’s Disease and Vascular dementia. He shares his experience of living with dementia, why he thinks having conversations about our own death is important and what this means for him as someone living with dementia. Ron has been an advocate of access to Medical Assistance in Dying (MAID) for people living with dementia. We talk about what a highly personal decision this is and why, for Ron, his wish is to access MAID when his disease progresses, if it is available to him.

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Dementia Dialogue - Hearts and the Arts, Season 3, Episode #36
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10/05/21 • 32 min

This episode is the first in an 8-part series on the arts features a discussion on how the arts (in any form) can create a sense of community and belonging and builds relationships amongst participants. Host Lisa Loiselle talks with Lisa Meschino who has seen this first-hand during her work developing programs such as Gather at the Gallery and as an artist at the Dotsa Bitove Wellness Academy. Lisa holds a PhD in cognitive neuroscience and is a community-engaged visual artist and researcher living in Toronto. She has worked for many years creating art with people living with dementia and is developing an arts-based learning series in applied relational care at University Health Network (UHN), Toronto. She has unfortunately witnessed the stigma that continues to circulate in communities and discusses the importance of using the arts to help in the process of culture change.

Resources:

About Meet Me at MoMA Program:

  1. Meet Me at MoMA website – Program Guide for home and community programs:

https://www.moma.org/visit/accessibility/meetme/modules/

2. Meet Me at MoMA website - Pilot program and research document: https://www.moma.org/visit/accessibility/meetme/_assets/momaorg/shared/pdfs/docs/meetme/MeetMe_FULL.pdf

3. Rosenberg, Francesca (2009) 'The MoMA Alzheimer's Project: Programming and resources for making art accessible to people with Alzheimer's disease and their caregivers', Arts & Health, 1: 1, 93 — 97

About The Dotsa Bitove Wellness Academy:

  1. Mitchel, G.J., Dupuis, S.L., & Kontos, P.C. (2013). Dementia Discourse: From Imposed Suffering to Knowing Other-Wise. Journal of Applied Hermeneutics 2013 Article 5
  2. Mitchell, G.J., Jonas-Simpson, C., Richards, J., Brown, S., Bitove, V. (2019). Creating a relational arts-based academy for persons living with dementia. First Published December 24, 2019 Find in PubMed: https://doi.org/10.1177/1471301219895647
  3. Visual arts and transgenerational learning at the Bitove Academy: https://vimeo.com/540302311
  4. About the Bitove Academy: https://vimeo.com/50757222

Resources for this episode can be found under the following sections on our resource page:
-Arts & Dementia

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Dementia Dialogue - Les defis de la proche aidance a distance
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11/24/23 • 37 min

Comment aider un proche atteint d’un trouble neurocognitif majeur quand on habite à plus de 5,000 kilomètres dans une région éloignée des grands centres urbains? Pour en apprendre plus sur cette problématique, j’ai interviewé deux Yukonnais : Sandra St-Laurent et Paul Davis.

Sandra est Québécoise de naissance et Franco-yukonnaise d’adoption. Elle est arrivée au Yukon, il y a plus de 25 ans, et est tombée en amour avec la région et ses habitants. Sandra a été proche aidante à deux reprises. La première fois, c’était il y a environ 17 ans, lorsque son père a reçu un diagnostic de cancer, et plus récemment pour sa mère qui est décédée en juillet 2022 de la maladie d’Alzheimer.

Paul Davis, quant à lui, s’est établi au Yukon en 1995. Après plusieurs années dans la fonction publique et l’enseignement, il se dévoue maintenant à la réalisation de courts métrages. Son dernier film, Le Loon Ranger des huards, a été présenté récemment au Dawson City International Short Film Festival ainsi qu’au Festival international du Film francophone de Toronto. Bien qu’il ait grandi dans une famille anglophone, Paul porte un grand amour pour la langue française qu’il étudie depuis sa jeunesse. Malheureusement, Paul et moi avons eu quelques problèmes techniques lors de notre conversation qui ont grandement affecté la qualité sonore de l’entrevue.

Sandra St-Laurent est la Directrice du Partenariat communauté en santé au Yukon.

Gestionnaire et artiste en creation littéraire, elle aime mettre à profit ses connaissances dans des milieux dynamiques favorisant la créativité et se démarquant par l’excellence et le souci d'intégrer les meilleures pratiques et l'innovation.

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Episode 2 of the Changing and Adapting series features an interview with Guy Chadsey whose spouse Alison has dementia. Guy talks about some of the early indications of Alison’s condition, his changing relationship with Alison and his effort to live positively.

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Dementia Dialogue - Work, Life : Adapting to Change
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05/22/18 • 25 min

Episode 3: Roxanne Varey has dementia and has become an advocate for creating more opportunities for people with dementia in the workplace. Roxanne has written poetry to help her understand and express some of her inner experience.

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FAQ

How many episodes does Dementia Dialogue have?

Dementia Dialogue currently has 101 episodes available.

What topics does Dementia Dialogue cover?

The podcast is about Health & Fitness, Society & Culture, Mental Health, Podcasts and Relationships.

What is the most popular episode on Dementia Dialogue?

The episode title 'Reinventing Relationships: An Interview with Guy Chadsey' is the most popular.

What is the average episode length on Dementia Dialogue?

The average episode length on Dementia Dialogue is 27 minutes.

How often are episodes of Dementia Dialogue released?

Episodes of Dementia Dialogue are typically released every 13 days, 23 hours.

When was the first episode of Dementia Dialogue?

The first episode of Dementia Dialogue was released on May 22, 2018.

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