Sharing Data for the Common Good
10/21/24 • 20 min
This episode of "Cracking the Cancer Code" explores the critical role of data sharing in cancer research, particularly in pediatric oncology. Featuring interviews with experts from the "Data for the Common Good" initiative at the University of Chicago, the podcast highlights how collaborative data sharing is essential for meaningful research in rare diseases. The initiative focuses on building community, creating data standards, and developing governance structures to facilitate effective data sharing across institutions and countries.
The episode discusses the challenges of changing academic culture from data hoarding to sharing, and proposes various incentives to encourage researchers to participate. These efforts have already led to improvements in disease treatment and patient outcomes. The podcast emphasizes that proper data sharing requires specific skills and training, and that data science and management are as crucial as clinical research in advancing cancer treatment. Overall, the episode underscores the transformative potential of data sharing in accelerating progress in cancer research and improving patient care.
This episode of "Cracking the Cancer Code" explores the critical role of data sharing in cancer research, particularly in pediatric oncology. Featuring interviews with experts from the "Data for the Common Good" initiative at the University of Chicago, the podcast highlights how collaborative data sharing is essential for meaningful research in rare diseases. The initiative focuses on building community, creating data standards, and developing governance structures to facilitate effective data sharing across institutions and countries.
The episode discusses the challenges of changing academic culture from data hoarding to sharing, and proposes various incentives to encourage researchers to participate. These efforts have already led to improvements in disease treatment and patient outcomes. The podcast emphasizes that proper data sharing requires specific skills and training, and that data science and management are as crucial as clinical research in advancing cancer treatment. Overall, the episode underscores the transformative potential of data sharing in accelerating progress in cancer research and improving patient care.
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More than numbers
This episode of "Cracking the Cancer Code" focuses on the challenges and advancements in working with different types of cancer data, particularly free text clinical data and imaging data. The hosts, Dr. Carrie Wright and Candace Savonen, interview experts in these fields to discuss the current state of cancer informatics and the tools being developed to improve data analysis.
A special thanks to Dr David Hanauer and Dr. Gordon Harris for taking the time out of their busy schedules to talk with us for this episode.
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