
Every dot is a person
01/06/25 • 41 min
This episode takes a powerful and human-centered look at the stories behind cancer data. While researchers often work with spreadsheets full of numbers and categories, each data point represents a real person with a complex, emotional journey.
The episode features intimate conversations with three cancer survivors:
- Johanna Kenney, who was diagnosed with breast cancer at an unusually young age
- Christina Sisti, whose cancer journey intertwined with her husband's own battle against head and neck cancer
- Grace Waller, who fought osteosarcoma as a teenager and participated in a clinical trial that later became standard treatment
Through their stories, listeners learn how cancer statistics and medical records often fail to capture the full depth of the patient experience - from the shock of diagnosis, through the challenges of treatment, to the ongoing reality of life after being declared cancer-free. The episode also explores the vital role of patient advocates in helping bridge the gap between researchers and the people they're ultimately trying to help.
It's a moving reminder that behind every clinical trial, every survival rate, and every data point is a human being with hopes, fears, and a story that deserves to be heard.
This episode takes a powerful and human-centered look at the stories behind cancer data. While researchers often work with spreadsheets full of numbers and categories, each data point represents a real person with a complex, emotional journey.
The episode features intimate conversations with three cancer survivors:
- Johanna Kenney, who was diagnosed with breast cancer at an unusually young age
- Christina Sisti, whose cancer journey intertwined with her husband's own battle against head and neck cancer
- Grace Waller, who fought osteosarcoma as a teenager and participated in a clinical trial that later became standard treatment
Through their stories, listeners learn how cancer statistics and medical records often fail to capture the full depth of the patient experience - from the shock of diagnosis, through the challenges of treatment, to the ongoing reality of life after being declared cancer-free. The episode also explores the vital role of patient advocates in helping bridge the gap between researchers and the people they're ultimately trying to help.
It's a moving reminder that behind every clinical trial, every survival rate, and every data point is a human being with hopes, fears, and a story that deserves to be heard.
Previous Episode

The Business of Science
This episode focuses on the often-overlooked administrative side of scientific research, particularly in cancer research. We talk to Sandy Ormbrek and Dr Anna Green about the complex world of grant administration and funding.
Special thanks to Maleah O'Connor for all the work she does to support the grants we work on!
Also a special thanks to Allison Peters, Denise Albano, Maria Owens and Sana Hirata for all they do!
Next Episode

You can follow the rules but still be unethical
In this episode of Cracking the Cancer Code, we discuss critical role of ethics in cancer research data management. Dr. Jody Platt discusses with us how researchers navigate patient consent, data sharing, and privacy protection in an era of rapidly evolving technology. The episode highlights the importance of transparent communication, cultural competency, and the emerging concept of data sovereignty in building ethical research practices.
Note: There are laws to prevent discrimination based on genetic risk by employers and insurance companies, however advances in technology have created emerging potential concerns. See this article https://www.annualreviews.org/content/journals/10.1146/annurev-genom-111119-011436 for more information on the nuances involved.
If you like this episode you’ll love
Episode Comments
Generate a badge
Get a badge for your website that links back to this episode
<a href="https://goodpods.com/podcasts/cracking-the-cancer-code-603234/every-dot-is-a-person-81306738"> <img src="https://storage.googleapis.com/goodpods-images-bucket/badges/generic-badge-1.svg" alt="listen to every dot is a person on goodpods" style="width: 225px" /> </a>
Copy