Tannine Montgomery - saving Indie-Rose

02/03/21 • 53 min

Tannine Montgomery is one of those special breeds of super mums you only find in the medical cannabis world.
When her first child Indie-Rose developed Dravet syndrome, a rare and untreatable type of epilepsy as a baby, Tannine and her husband decided to do everything within their power to give her the best chance of a happy and healthy life.
Like most children with Dravet, pharmaceutical drugs failed to control Indie's seizures, and instead left her with a host of unpleasant side effects.
It was when Tannine saw Vera Twomey, speak about how cannabis had helped her daughter Ava who also has Dravet syndrome, that she decided to get Indie an appointment with pediatric neurologist in Holland so that she could legally be prescribed medicinal cannabis.
Thankfully, Indie responded well to the Bedrolite CBD rich cannabis oil, which has been so effective in countless other children with epilepsy.
However, the family couldn't afford to pay the expensive export costs to legally get her medicine back into the UK, choosing instead to travel themselves to Holland bring it back themselves.
Financing Indie's medicine has always been a struggle and is the reason Tannine has started her own CBD business Sweet Pink CBD, selling whole plant CBD products that come fully lab tested and with a personalised level of customer care that only someone like Tannine can provide.
This is a great episode for any parent or loved one of a child with Dravet Syndrome or intractable epilepsy as it would be hard to find a more knowledgeable person outside of the medical profession than Tannine.
Hers is very much a story of tenacity and determination triumphing over tragedy.
For more information about Sweet Pink and Indie Rose, head to the Sweet Pink website or Instagram.

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Previous Episode

Justin Clarke - cannabis, autism and me

In this fascinating interview, Justin Clarke gives a unique insight into how cannabis helps him cope with the sensory overload and anxiety commonly experienced by people with autism (ASD).
When we hear about cannabis and autism, it's often the experiences of parents caring for children with severe ASD that get shared. So it is refreshing to hear from Justin as he describes with great creativity the interior world of a neurodiverse mind.
Before trying cannabis, Justin was prescribed antidepressants to manage the depression and anxiety that often going alongside autism, leaving him feeling numb and fatigued.
In contrast, cannabis has enabled Justin to fully embrace life and trying new experiences such as stand up and public speaking, which previously would have filled him with horror and dread.
I really recommend listening to Justin's first ever stand up routine - and as Justin mentions - it includes a gag about cannabis.
Justin's stand up
Other resources:
Patient-Led Engagement for Access (PLEA)
Project Twenty21
Drug Science

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Next Episode

John Malanca - keeping Corinne's legacy alive

There are few voices more recognisable across the cannabis-curious world than John Malanca's.
With his wife and love of his life Corinne, John fronted the global docuseries, 'The Sacred Plant' that's been seen by over 600,000 people worldwide.
Their introduction to the healing powers of the cannabis plant came when Corinne's dad, given just months to live with terminal cancer, made a full recovery after he began taking cannabis oil.
The couple went on to start The United Patients Group, a go-to source for medical cannabis education for patients, care-givers and health professionals alike.
Tragically in 2017, Corinne herself was diagnosed with pancreatic cancer, and despite trying everything medicine had to offer, including cannabis, she sadly passed away just 4 months later.
Left without his life partner, John threw himself into the second series of the Sacred Plant, but has since stepped away and is now back concentrating on the United Patients Group once more.
John speaks honestly and openly about his struggles to deal with the grief following Corinne's death, and how continuing the work they started together has helped him find meaning in the darkest times.
John is happy to hear from anyone going through or supporting someone with terminal illness, particularly pancreatic cancer, and he can be contacted through the United Patients Group website or [email protected].

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