Hemophilia Caregiver 101

07/16/18 • 34 min

Host Becky talks with Melissa; both women have a child with hemophilia, and in this episode they share their experiences. They talk about some of their most important lessons from having raised children with hemophilia and how they learned to help advocate for, and teach advocacy to, their kids.

Previous Episode

Self-infusion and Camp

Host Becky talks with Matt and Melissa, both of whom have a son with hemophilia B who has learned to self-infuse. The trio talk about their experiences teaching self-infusion, how camp can play a part in that, and what it means to transition control to their children when their children begin to care for hemophilia on their own.

Next Episode

ER Visits and Hemophilia

Host Becky talks with Matt, the father of a son with hemophilia B, about his family’s experiences with the emergency room. Matt talks about the importance of being prepared to deal with unexpected emergencies and gives insight on what has helped his family to have more successful ER visits. Becky and Matt also discuss traveling as it relates to hemophilia and what they do to prepare in the event of out-of-town hospital visits.