AVM Alliance Podcast - Icing Smiles: Baking a Difference

Icing Smiles: Baking a Difference

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01/24/23 • 19 min

AVM Alliance Podcast

This morning we are starting with a Brain News medical study. A study with the University of Cincinnati will examine the effectiveness of a stroke treatment for patients with a pre-stroke disability, one of the first studies to focus on this population. Our guest today is a spokesman from the sweetest non-profit I know, Icing Smiles, an organization who is baking a difference for children dealing with a difficult medical diagnosis. We will end the podcast with a discussion on the need to redefine beauty from Ch 7, of our focus book, Suffer Strong.
New Stroke Study
Icing Smiles: Baking a Difference

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Previous Episode

Don't Dis My Ability

In Brain News we go over two published studies from Stanford University involving Stem Cell treatment for Stroke survivors. Our guest today is Jonathan Slifka who was born with spina bifida who discusses the importance of working together to make positive changes in what you want to see happen in life. We end with a discussion on redefining failure in Ch. 6 of our focus book, Suffer Strong, where Jay points out how great people are at projecting an image to the public that is often completely different from how they actually feel.
Research Study 1
Research Study 2
Guest: Jonathan Slifka
Twitter: @JonathanSlifka
Insta: Inspireujs
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Next Episode

It's Not All in My Head: An HHT Story

This podcast starts with a brief explanation of the genetic condition, Hereditary Hemorrhagic Telangiectasia (HHT) and tells the story of Stephany Zumerling who suffered for years without the correct diagnosis. Her medical journey offers lessons we can all learn from and highlights the importance of finding a doctor who takes the time to listen to their patient and investigate symptoms that don't make sense. The podcast ends with lessons learned from Chapter 9 of our current focus book Suffer Strong: written by Katherine and Jay Wolf.

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AVM Alliance Podcast - Icing Smiles: Baking a Difference

Transcript

Raylene Lewis: [00:00:00] Hi there, and thank you for joining us on AVM Alliance, a pediatric stroke podcast for families and friends whose lives have been affected by traumatic brain injury, brain vessel disease, or stroke. The purpose of this podcast is to focus on the kid's side of brain injury with honest Talk, News, Information, and discussion for our community. Being a parent of a medically

complex child is an extremely difficult path to suddenly find yourself on.