AVM Alliance: A Pediatric Stroke Podcast

In Brain News we go over two published studies from Stanford University involving Stem Cell treatment for Stroke survivors. Our guest today is Jonathan Slifka who was born with spina bifida who discusses the importance of working together to make positive changes in what you want to see happen in life. We end with a discussion on redefining failure in Ch. 6 of our focus book, Suffer Strong, where Jay points out how great people are at projecting an image to the public that is often completely different from how they actually feel.
Research Study 1
Research Study 2
Guest: Jonathan Slifka
Twitter: @JonathanSlifka
Insta: Inspireujs
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In Brain News: Survivor, Malori Rodgers, just released her book “A Stroke a Heaven” which talks about her personal journey after a traumatic brain injury. Our guest today is Heather Golladay, who talks about the importance for looking at the bright side of things. Her husband suffered an ischemic stroke and she is the graphic arts designer for AVM Alliance and the creator of our butterfly pig and each week's art work. We end today with Chapter 5 of our focus book Suffer Strong with a discussion on redefining loss and opening our hands to the future.
Information: KCBD News Article on Malori Rodgers
Book: A Stroke of Heaven

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Twitter: https://twitter.com/avmawareness
YouTube: https://www.youtube.com/@cureforKyler
Personal Blog: https://www.caringbridge.org/visit/kylerlewis
TIKTOK: https://www.tiktok.com/@avmsurvivor

Today's episode includes a discussion on yesterday's MSN published article: “Doctors dismissed these 3 young people's symptoms as migraines or drug-related — but they were really having strokes.” We welcome guest Dina Chon with the Aneurysm and AVM Foundation and end with a short discussion on pain, perspective and PTSD as we finish chapter 4 of our focus book "Suffer Strong" by Kathrine and Jay Wolf.
PSA Find Your Lifeline with TAAF: https://youtu.be/v0yhpua-078
The Aneurysm and AVM Foundation: https://taafonline.org/

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Twitter: https://twitter.com/avmawareness
YouTube: https://www.youtube.com/@cureforKyler
Personal Blog: https://www.caringbridge.org/visit/kylerlewis
TIKTOK: https://www.tiktok.com/@avmsurvivor

This week, the short film Time Bomb was released to showcase the real life challenges of a rare disease diagnosis and was created with the help of The Aneurysm and AVM Foundation. With the holiday’s approaching, decadent treats and delicious food on the horizon it is no wonder heath and weight loss become added priorities on many a new year resolution list. How to put in place something that sticks and works can be very elusive. Sometimes when parents are in survival mode, health and fitness is at the bottom of all lists— even new years resolutions. To help with a few tricks to get us started for the holidays and new year, I have health & fitness coach Elizabeth visiting with us today. And in Chapter 4 of our focus book, Suffer Strong we discuss the philosophy Japanese Kintsugi pottery.
Time Bomb: https://youtu.be/KwaLIsfNsSo
Insta: https://www.instagram.com/wannabefitnessforever/

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Twitter: https://twitter.com/avmawareness
YouTube: https://www.youtube.com/@cureforKyler
Personal Blog: https://www.caringbridge.org/visit/kylerlewis
TIKTOK: https://www.tiktok.com/@avmsurvivor

In today’s news we will talking about a new youth medial clinic that just opened this past November for children suffering from Cerebral Palsy, Traumatic Brain injury and stroke based on published journal findings on Hyperbaric medicine for brain injuries in children. We will be visiting with Tim Siegal who started Team Luke, Hope for Minds after his son’s tragic golf cart accident. We will end with a short discussion on rebellion and need for celebrations even when suffering from Chapter 3 our current focus book “Suffer Strong” by Katherine and Jay Wolf.
Guest's Info: https://www.teamlukehopeforminds.org/

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Webpage: : https://www.avmalliancepodcast.com
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YouTube: https://www.youtube.com/@cureforKyler
Personal Blog: https://www.caringbridge.org/visit/kylerlewis
TIKTOK: https://www.tiktok.com/@avmsurvivor