What’s it Like to Truly Partner with Your Doctor? The Power of Shared Decision Making, with Dr Liana Fraenkel

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08/24/24 • 51 min

In this episode, Cheryl Crow and Dr. Liana Fraenkel dive into the crucial concept of "Shared Decision Making" (SDM) in rheumatoid arthritis care. SDM is a collaborative approach where patients and doctors work together to develop a treatment plan. It empowers patients to express their preferences and values, while doctors listen actively and consider these when recommending treatments.

The discussion also touches on the role of education in SDM, especially when it comes to understanding the pros and cons of different medications. Cheryl and Dr. Fraenkel address medication hesitancy, highlighting research that shows how patients benefit from hearing not only from their doctors but also from others who have firsthand experience with rheumatic disease medications.

Finally, Dr. Fraenkel and Cheryl emphasize the importance of ongoing research in rheumatology and the need to strengthen the rheumatology workforce, given the current shortage. They explore the efforts of the Rheumatology Research Foundation and discuss ways for patients to get involved in supporting these vital initiatives.

Medical disclaimer:

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

For full episode details including a video and transcript:

Go to the episode page on the Arthritis Life Website.

Medical disclaimer:

Episode Sponsors

For full episode details including a video and transcript:

Go to the episode page on the Arthritis Life Website.

Previous Episode

“It’s Like Managing a Circus”: How Maggie Thrives with Multiple Chronic Illnesses

In this episode, Maggie shares valuable insights from life with axial spondyloarthritis, sjogren’s, osteoarthritis, hypermobility, migraine, and POTS. She also shares her treatment journey which she divides into a “discovery phase, treatment phase, and tinkering phase.”

Maggie and Cheryl discuss practical advice for managing multiple chronic illnesses, including the importance of social support and finding joy in daily experiences. They also discuss their best coping skills for times when managing your health feels like “orchestrating a circus.” Ultimately, Maggie and Cheryl discuss the importance of savoring life's moments and adapting to new ways of living, rather than trying solely to return to a pre-illness lifestyle.

Medical disclaimer:

Episode Sponsors

For full episode details including a video and transcript:

Go to the episode page on the Arthritis Life Website.

Next Episode

“Healing is a Messy Process:” Sonia’s RA and Graves’ Disease Journey

Sonia talks about how daily gratitude, yoga, medications, and the support of groups like Rheum to THRIVE have helped her pursue joy amidst the challenges of rheumatoid arthritis (RA), Graves’ disease and other chronic conditions.

Sonia shares how the Rheum to THRIVE support group provided her with the courage to be vulnerable and set boundaries. Cheryl and Sonia reflect on how these groups become sacred spaces where individuals can fully engage with their emotions, be witnessed without judgment, and sometimes find unexpected moments of humor and joy amidst the challenges.

The discussion offers valuable tips and relatable moments for anyone living with RA, with gentle reminders to take things one day at a time. Overall, Cheryl and Sonia encourage you to embrace acceptance and community so you can live a more empowered and fulfilling life with chronic illness.

Themes of the Episode

Self-Acceptance and Grace: Sonia emphasizes the importance of self-compassion, practicing grace, and ease with oneself, especially in dealing with the uncertainties and challenges of life with RA.
The Power of Social Media and Community Support: Cheryl talks about using social media as a tool for patient education and support, while Sonia highlights the significance of connecting with others, particularly through the Rheum to THRIVE support group, to share experiences and support one another.
Yoga, Mindfulness and Embracing the Present: Sonia shares the pivotal role yoga had in transforming her relationship to her body and helping her embrace th represent moment.
Coping with Rheumatoid Arthritis (RA) Through Humor: Both Cheryl and Sonia discuss the role of humor in coping with the challenges of RA, acknowledging that while it may not resonate with everyone, it provides them with a sense of normalcy and relief.
Daily Tools and Adaptations for Living with RA: The conversation touches on practical tools like ring splints, compression gloves, and supportive pillows that help manage the physical challenges of RA.
Sharing Personal Mantras and Wisdom: Both Cheryl and Sonia share how gratitude practices and self-forgiveness help them live more peacefully with rheumatoid arthritis.
The Impact of RA on Daily Life and Relationships: The conversation also explores how RA affects daily activities, relationships, and the emotional aspects of living with a chronic illness.