Living Well With Dementia 10 plus Years on Dementia Chats Part of the Alzheimer's Speaks Family
04/18/24 • 61 min
Our Panel today consists of Craig Hanke, Ginger Smith, Harry Urban, Laurie Scherrer, Jennifer Bute, and Truthful Loving Kindness who are living with dementia. You will hear about when they got diagnosed, how their diagnosis changed over the years, and how they are living life well with a form of dementia.
Some of our panelists have been living 15 to 20 plus years with dementia!
Join us as we listen and learn from their lived experiences! Dementia ChatsTM
You can also watch the program on YouTube at
https://youtu.be/ulSIssz8-W0?si=ubOoi7UsLEQ1cG1u
Educational Panel – Videos Raising Voices of Those Living with Dementia Dementia ChatsTM was created in 2012, to educate people living with dementia, and their care partners including family, friends, professionals, and advocates. Dementia ChatsTM positions our panelists to be the true experts. They are those diagnosed with some form of dementia.
Our panelists vary from program to program, depending on their schedules. New voices are always welcome to join us. Lori La Bey, the founder of Alzheimer’s Speaks facilitates Dementia Chats. She learned how essential it was to listen to those diagnosed. Her mother lived for 30 years with dementia. Lori found that people living with dementia had great insights and creative ideas for care, and felt their voices needed to be lifted. Those diagnosed show us how to be inclusive in new ways.
Our Panelists become spokespersons for themselves and others living with dementia positioning them as advocates, and many say it gives them a new sense of purpose and pride which allows them to continue to live a dignified and purpose-filled life. Learn
More About Dementia Chats Here: https://alzheimersspeaks.com/dementia... Are You Interested In Joining The Dementia ChatsTM Panel?
Contact Lori La Bey at [email protected]
You can always go to our main website for more information
Or Visit Alzheimer's Speaks Radio at
https://alzheimersspeaks.com/alzheimers-speaks-radio/
Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/
Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.
Alzheimer's Speaks is part of the Senior Resource Podcast Network.
Support this Show: https://alzheimersspeaks.com/donate-now/
See omnystudio.com/listener for privacy information.
Our Panel today consists of Craig Hanke, Ginger Smith, Harry Urban, Laurie Scherrer, Jennifer Bute, and Truthful Loving Kindness who are living with dementia. You will hear about when they got diagnosed, how their diagnosis changed over the years, and how they are living life well with a form of dementia.
Some of our panelists have been living 15 to 20 plus years with dementia!
Join us as we listen and learn from their lived experiences! Dementia ChatsTM
You can also watch the program on YouTube at
https://youtu.be/ulSIssz8-W0?si=ubOoi7UsLEQ1cG1u
Educational Panel – Videos Raising Voices of Those Living with Dementia Dementia ChatsTM was created in 2012, to educate people living with dementia, and their care partners including family, friends, professionals, and advocates. Dementia ChatsTM positions our panelists to be the true experts. They are those diagnosed with some form of dementia.
Our panelists vary from program to program, depending on their schedules. New voices are always welcome to join us. Lori La Bey, the founder of Alzheimer’s Speaks facilitates Dementia Chats. She learned how essential it was to listen to those diagnosed. Her mother lived for 30 years with dementia. Lori found that people living with dementia had great insights and creative ideas for care, and felt their voices needed to be lifted. Those diagnosed show us how to be inclusive in new ways.
Our Panelists become spokespersons for themselves and others living with dementia positioning them as advocates, and many say it gives them a new sense of purpose and pride which allows them to continue to live a dignified and purpose-filled life. Learn
More About Dementia Chats Here: https://alzheimersspeaks.com/dementia... Are You Interested In Joining The Dementia ChatsTM Panel?
Contact Lori La Bey at [email protected]
You can always go to our main website for more information
Or Visit Alzheimer's Speaks Radio at
https://alzheimersspeaks.com/alzheimers-speaks-radio/
Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/
Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.
Alzheimer's Speaks is part of the Senior Resource Podcast Network.
Support this Show: https://alzheimersspeaks.com/donate-now/
See omnystudio.com/listener for privacy information.
Previous Episode
GrandPad: Facilitating Connection and Engagement in Alzheimer's Care
GrandPad: Facilitating Connection and Engagement in Alzheimer's Care
Lori La Bey talks with Scott Lien who is GrandPad's Co-Founder and Chief Executive Officer. His role has been to lead the company as it builds an accessible platform that empowers seniors to connect with family, friends, and caregivers. With GrandPad, Scott’s vision is to create a world where no seniors are lonely or isolated.
Learn:
- How GrandPad was created by personal experience.
- Who are Grand Advisors and why is their insight so important to the design and service offered?
- How GrandPad promotes safety and security.
- What ways are available to communicate?
- Can you control who has access to communicate?
- Why is engagement critical for all users?
- The importance of promoting independence and inclusion.
- No WIFI is needed
- GrandPad supports 911
- GrandPad tech support always connects you with a real person!
Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast
https://podcasts.apple.com/us/podcast/grandpad-facilitating-connection-and-engagement-in/id986940432?i=1000652576146
Listen and Subscribe to Alzheimer’s Speaks on Spotify
https://open.spotify.com/episode/6AxU9wclZCcACKamg4pXtE
Other Podcasts
Contact GrandPad
Website: visit www.grandpad.net
Phone 24/7 1-800-704-9412
LinkedIn: GrandPad
Instagram: @grandpad_social
Facebook: GrandPad
Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/
Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.
Alzheimer's Speaks is part of the Senior Resource Podcast Network.
Support this Show: https://alzheimersspeaks.com/donate-now/
See omnystudio.com/listener for privacy information.
Next Episode
Open Mic Airs on Alzheimer's Speaks
Today we talked with Steven A. Barbieri and Truthful Loving Kindness, both living with dementia. It was a very interesting show with great insights. We covered a variety of topics listed below.
- The diagnostic process and the difficulty in getting an actual type of dementia pinned down.
- Like Cancer, Dementia is a category, not an official disease like Alzheimer’s disease, Lewy Body Dementia, Vascular, FTD, CTE...
- We also dive into the benefits of exercise.
- The importance of the Phrases – Nothing About Us Without Us and Nothing About Me Without Me
- Organizations that tout having a “Token” person living with dementia on the board... and the impact of that.
- Truthful’s Blog on dementia symptoms and strategies.
- Using a cell phone for strategies, pictures to help remember things or events, calendars, and reminder alerts.
- Quality of Life for people living with dementia. *Bidets, what a wonderful tool as the disease progresses.
Helpful Resources Discussed
- National Council of Dementia Minds also known as Dementia Minds
- Life 360 – The Family Locator APP
- Tru's Blog
https://alzheimersspeaks.com/blog/
- GrandPad – A Communication and Engagement Tool
Find Us At:
Website https://alzheimersspeaks.com/alzheimers-speaks-radio/
Youtube https://youtu.be/Nc7xW7H3NSU
Apple Podcast https://podcasts.apple.com/us/podcast/open-mic-airs-on-alzheimers-speaks/id986940432?i=1000653428716
Spotify https://open.spotify.com/episode/5CfOPWEv6nEGJususJGz88
Pod Links https://pod.link/986940432
Mark Your Calendars for our Next Open Mic on June 18th at 2 pm ET, 1 pm CT, 12 pm MT, 11 am PT
Share Your Story, Service, Product, or Tool on Alzheimer’s Speaks Open Mic
Join Alzheimer's Speaks Radio today on Open Mic as we shift dementia care from crisis to comfort around the world one episode at a time. We love raising all voices and delivering sound news, not just sound bites! So, we invite you to call in and tell us how you are improving dementia care. We just ask all parties to hold to have a respectful conversation.
Share your dementia or caregiving story. Tell us about your service, product, or tool you have that can help others dealing with dementia. Have you written a book, penned, or produced a song or film? If so, we want to hear from you. Maybe you are working on a research project or have a trial you are promoting.
Contact Us To Join Us On The Next Open Mic https://alzheimersspeaks.com/be-a-guest/
Contact Lori La Bey with Alzheimer’s Speaks
Website – https://www.alzheimersspeaks.com/
Contact Lori La Bey with questions or branding needs through www.AlzheimersSpeaks.com
Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.
Alzheimer's Speaks is part of the Senior Resource Podcast Network.
Support this Show: https://alzheimersspeaks.com/donate-now/
See omnystudio.com/listener for privacy information.
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