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The best podcasts for people with rare diseases.

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Who am I?

By day I run the BloodStream Media podcast network, the largest rare disease podcast network in the world. I also produce Marc Summers Unwraps, a celebrity interview show hosted by the former host of Nickelodeon's Double Dare. So many people suffer from rare diseases. No matter how rare, there is a community out there for you.

My Show

What is my podcast about and/or how does it relate to the playlist topic you chose?

My podcast has nothing to do with this. But it doesn't make the content of this playlist any less important! :)

What is my podcast playlist about?

This playlist is about rare diseases. I've highlighted shows about hemophilia, sickle cell disease and those with chronic pain.

The podcasts I picked and why

1. The Final Summit

Why this podcast?

In January of 2018, Chris Bombardier became the first person with severe hemophilia to complete The Seven Summits. It was the end of an adventure, and the start of a whole new chapter in Chris’s life. This podcast tells an important story utilizing a rich, immersive sound environment.

The Final Summit

The Final Summit

BloodStream Media

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What do you do when you’ve achieved your dreams only to realize- your work’s just begun? In January of 2018, Chris Bombardier became the first person with severe hemophilia to complete The Seven Summits. It was the end of an adventure, and the start of a whole new chapter in Chris’s life. From the team behind the documentary Bombardier Blood comes a podcast for adventurers, bleeders, and anyone who’s ever chased a dream. Join Chris for a brand new, seven-episode adventure launching on May 22, 2022, the five-year anniversary of Chris’s reaching the top of Mount Everest. Subscribe to BloodStream Media’s The Final Summit wherever you get your podcasts. The Final Summit is made possible thanks to our featured advertisers, Genentech and Tremeau Pharmaceuticals.

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2. Global Hemophilia Report

Why this podcast?

Led by science, curiosity, and storytelling, the Global Hemophilia Report is a once-monthly podcast featuring data insights and key commentary from opinion leaders, leading researchers, and expert clinicians- alongside untold stories from labs, clinics, and patient homes- that, together, guide listeners on an audio journey through the foundational and investigative science driving the hemophilia experience, globally, right now. It's a deep dive into the world of hemophilia with some of the globe's leading experts in the field.

Global Hemophilia Report

Global Hemophilia Report

BloodStream Media

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Led by science, curiosity, and storytelling, the Global Hemophilia Report from BloodStream Media is an entertaining monthly journey through the investigations and science driving hemophilia research around the world. Produced by: Believe Limited & BloodStream Media Hosted by: Patrick James Lynch Senior Advisor: Dr. Donna DiMichele Featured Advertiser: Sanofi Genzyme #GHRpod #hemophilia #clinicalresearch #bloodstreammedia

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3. The Pain Podcast

Why this podcast?

Pain is a part of life. But what if it never stopped? Chronic pain affects more than 20 percent of Americans; there are many tools, techniques, and resources for managing it, but what do we actually understand about pain? The Pain Podcast explores this and other pain-related questions to better understand the overall pain experience. Season 4 is when we really start to have some fun!

The Pain Podcast

The Pain Podcast

BloodStream Media

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Acute pain. Chronic pain. Physical pain. Emotional pain. Psychological pain. Spiritual pain. Pain is a part of life, it’s everywhere, and it can be devastating. There are many tools, techniques, and resources for managing it, but what do we actually understand about pain? The Pain Podcast explores this and other pain-related questions. Subscribe now, and tell a friend about us! Produced by BloodStream Media. Presenting Sponsor: Tremeau Pharmaceuticals.

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4. BloodStream

Why this podcast?

BloodStream is an entertaining and informational podcast for the bleeding disorders community. On each episode, patient advocate Patrick James Lynch and non-profit nerd Amy Board are joined by patients, caregivers, advocacy leaders, medical experts, and others to discuss the latest news and updates impacting people affected by inherited blood disorders.

BloodStream

BloodStream

BloodStream Media

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BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

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5. Cheat Codes: A Sickle Cell Podcast

Why this podcast?

Cheat Codes brings listeners a series of segments and interviews packed with critical education and research information that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike).

Cheat Codes: A Sickle Cell Podcast
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Cheat Codes: A Sickle Cell Podcast, is led by expert hosts Dr. Ahmar Zaidi and Dr. Mike Callaghan from the Comprehensive Sickle Cell Center at the Children's Hospital of Michigan, and produced by BloodStream Media. Each episode of Cheat Codes: A Sickle Cell Podcast brings listeners a series of segments packed with critical education and research information that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Cheat Codes also features interviews with leading experts, moments from major conferences, and contributions from people living with sickle cell, all while Dr. Z and Dr. Mike keep the show fresh, fun, and off-the-cuff! Enjoy, share, and subscribe to Cheat Codes: A Sickle Cell Podcast.

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